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Monday, 12 January 2009 |
 Welcome to CML Advocates Network! We are a worldwide virtual network of non-profit organisations supporting patients with Chronic Myeloid Leukemia (CML) and their relatives. We do this by sharing knowledge and best practice, supporting campaigns, and educating advocates how to build and grow patient groups. The network is solely run by volunteers who are CML patients themselves -- and is independent as it does not require any funding by third parties.
This is what you can do here: Find CML patient groups in our worldwide directory of CML patient groups. Find out more about the CML Advocates Network. See our directory of web links. If you are representing a CML patient group, please log in to access our Wiki, our discussion forum, our
photo gallery or our download area -- or please register
if you are not yet a member.
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Tuesday, 15 December 2009 |
 "Actually, why do I always spend St
Nicholas in the US, instead of with my family", I asked myself when I
boarded the plane to the USA on 4 Dec, in anticipation of a boring 16 hour trip
to New Orleans, arriving jetlagged, hiding for days in the dungeons of a large
convention center, lacking any sense of the city I am in. Year by year, more
than 20.000 hematologists and healthcare people attend the annual meeting of
the American Society of Hematology, lovingly called 'the ASH' by repatriates. Its
publications are all available on the Internet. "Is it really worth the
effort being there again, instead of just using my browser?", I thought. It is. Definitely.
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Monday, 24 August 2009 |
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The "CML Advocates Network", an international platform for patient groups supporting patients and relatives suffering from "Chronic Myeloid Leukaemia" (CML) now connects 40 organisations across all continents. This worldwide network offers support by sharing of best practice, information and advice for CML patient representatives.
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Friday, 07 August 2009 |
 The 7th annual international "New Horizons Conference for Organisations Representing People with CML or GIST" was held this year in Lisbon, Portugal from June 26 to 28. Sponsored by Novartis and held for the seventh year, the conference once again demonstrated the value of bringing together patient advocacy groups from around the world to share their ideas and experiences and to get latest updates from medical professionals. The conference featured 30 hours of presentations from a dedicated and enthusiastic faculty of various disciplines and stakeholder groups.
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Thursday, 25 June 2009 |
 At 24th of June 2009 a new campaign European Action Against Rare Cancers has been launched. The new campaign urges European policy-makers to prioritise better treatment and care for patients with rare cancers within the framework of the new Commission Communication on cancer and other recent policy initiatives such as the Council Recommendation on Rare Diseases. The CML Advocates Network is one of the supporting organisations. The campaign has launched a Call to Action – an international petition appealing to all stakeholders to initiate targeted actions to address the challenges of rare cancers.
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Saturday, 10 January 2009 |
 Every year, around the day of St Nicholas in December, hematologists from around the world meet at the annual congress of the American Society of Hematology (ASH). It has become the most important event for this profession. This year, around 23.000 experts from more than 100 countries met in December 2008 at San Francisco for the 50th "ASH Annual Conference" to share knowledge about the latest results in research on leukemias. We've also had the chance to join this year, and we'd like to share our subjective impression on progress in CML therapy. An impression from a layman perspective.
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Monday, 18 August 2008 |
 Press Release - More than 50 organisations supporting patients with chronic myeloid leukaemia have signed the "Baveno CML Declaration" to call for improved access to cancer treatment and better adherence to international treatment guidelines.
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