Welcome to the CML Advocates Network!
We are a worldwide network of non-profit organisations supporting patients with Chronic Myelogeneous Leukemia (CML) and their relatives. We do this by sharing knowledge and best practice, running joint campaigns, and educating advocates how to build and grow patient organisations. The network is run by volunteers who are CML patients.
Patient-friendly summary of the ELN CML Treatment Recommendations now also in Croatian language - and 19 other languages
It is now available in 20 languages: English, Arabic, Albanian, Azerbaijani, Bulgarian, Chinese (traditional and simplified), Croatian, Danish, Dutch, French, Georgian, German, Hebrew, Italian, Polish, Portuguese, Russian, Serbian, Spanish and Turkish (new: Croatian, a big thank you to Dražen Vincek (president of CML Club in Croatian Leukaemia and Lymphoma Society (HULL)) and his colleagues for translating, reviewing and approving this new version of the lay-friendly summary!
See our ELN Summary here: http://www.cmladvocates.net/cmlsummary
Free EHA congress registrations for representatives of hematology patient organizations: Deadline 3 May 2016!
This year's EHA Congress will be held 9-12 June 2016 in Copenhagen, DK. Thanks to very patient-centric thinking, EHA continues to work closely with the patient community and is again offering a “Patient Advocacy Track” within the scientific program.
As in previous years, EHA is again providing 50 free congress registrations for leaders of hematology patient organizations to give patient advocates the opportunity to attend the EHA congress in Copenhagen. The free registrations are only available to representatives of patient organizations, and EHA is requiring them to attend our capacity building session (planned for Saturday afternoon). The registration allows access to the scientific congress, but will not cover travel or accommodation costs.
Deadline for free registrations is 3 May 2016! There will be no extension of the deadline and no late registrations. EHA, MDS Alliance and CML Advocates Network will do their best to allocate the 50 free registrations fairly amongst organisations and advocates. Please note that registrations are to be confirmed by the EHA office -- the MDS Alliance and CML Advocates Network just collect statements of interest on behalf of the patient community. We will let applicants know as soon as possible.
Welcome, "CML Saudi Group"! Now 106 patient organisations from 81 countries in the CML Advocates Network
We hereby proudly welcome a member organisation in the CML Advocates Network: The "CML Saudi Group", which is a part of the "Saudi Cancer Foundation" based in Saudi Arabia. The CML Advocates Network now counts a total of 106 member organisations in 81 countries worldwide! See the list of CML groups in the Network on our world map.
Welcome, "Taiwan Bone Marrow Transplantation Association" and "CML Busters Family Support Group of California"! Now 105 patient organisations from 80 countries in the CML Advocates Network
We hereby proudly welcome two new members to our network: The "Taiwan Bone Marrow Transplantation Association" based in Taiwan and "CML Busters Family Support Group of California" based in the USA. The CML Advocates Network now counts a total of 105 member organisations in 80 countries worldwide! See the list of CML groups in the Network on our world map.
We are looking forward to the 14th CML Horizons conference, held in Ljubljana / Slovenia on 6-8 May 2016. The CML Horizons Steering Committee has worked hard to ensure that the conference includes topics of importance to the CML patient community, and provides a unique opportunity for participants to share experiences and best practice. We hope that as a result of this meeting, CML patient groups globally will improve their capacity to meet the needs of their patients, and strengthen their advocacy activities.
Patient-friendly summary of the ELN CML Treatment Recommendations now also in Albanian language - and 18 other languages
It is now available in 19 languages: English, Arabic, Albanian, Azerbaijani, Bulgarian, Chinese (traditional and simplified), Danish, Dutch, French, Georgian, German, Hebrew, Italian, Polish, Portuguese, Russian, Serbian, Spanish and Turkish (new: Albanian, a big thank you to Jeton Lika (Kosovo Association for Support to Chronic Leukaemiae Patients) and Dr Aferdita Ukimeraj (Director of the department for Haematology, University Clinical Centre in Pristina, Kosovo) for translating, reviewing and approving this new version of the lay-friendly summary!
See our ELN Summary here: http://www.cmladvocates.net/cmlsummary
In September 2014, the CML Advocates Network published the international CML Book "Faces of Courage and Hope" an English-language book that illustrates the life of 16 CML patients from 15 countries. The book features wonderful photos and moving interviews. Selected patient stories are now also available in form of animated videos! The animated stories bring to life the emotional impact of CML on patients and their friends and family, in addition to their future hopes and aspirations. Two new story are now available in form of animated videos:
- Living with CML: Carin´s story of courage and hope (English / Swedish)
- Living with CML: Michelly´s story of courage and hope (English / Portuguese)
Here you will find other videos available to date:
TODAY IS WORLD CML DAY!
One day, one community, one life changing reality… Today, we are together to make a status, share and involve on our needs!
The mobile app is available for free in English, French, Spanish, German, Portuguese, Arabic, Hebrew, and more languages will follow soon.
Please also check out the activities that are being carried out all over the world on World CML Day 2015 and the campaign materials developed by members of the CML Advocates Network.
In order to make all our information available more conveniently wherever you are, the cmladvocates.net website is now also smartphone-ready. All information on cmladvocates.net, e.g. the news on the homepage, are now optimized for small screens when accessed from mobile phones.
... is the motto for this year´s World CML Day campaign! One day, one community, one life changing reality… Today, we are together to make a status, share and involve on our needs!
To help our members spread the message of awarenss and strenghten their voice, this year the CML Advocates Network is providing a World CML Day "Toolkit" that includes adaptable artwork for print and online use (posters & flyers), a photo-database, a press release and communication guidelines containing valuable strategies and hints for how to get the most out of the campaigns. Visit our World CML Day Section on this website to learn more about World CML Day, about this year´s campaign and about key initiatives planned and campaign materials prepared by our members for this Sept 22. Wishing you all an inspiring and successful World CML Day 2015!