str. Dristorului, nr. 97-119, bl. 63, sc. 4, et. 3, ap. 718, sector 3
Telephone: +4072 362 3376
Facsimile: +4021 2750591
Name: Leny Caban, President
KEY OBJECTIVES & KEY INITIATIVES:
Our main purpose is medical and humanitarian; we want to serve and to promote the main patients interests : medical education, disease informations (conferences, free booklets, website,etc), to represent them in the relations with health autorities and policy-forming institutions, to ensure the access to specific medication, to support them and their families in the fight with cancer. We are very interested and open to learn and share expertise and experience with other patients groups; we are also very interested of joint campaigns.
BRIEF DESCRIPTION OF ORGANIZATION:
Our organization - The Association of Patients with Myeloprolipherative Neoplasms „MIELOPRO” is a non-profit one, without political implications, formally registrered (registration number : 21736/A/2015) and with permanent character; it is recently founded. We are offering help and support to CML patients in Romania. So far, about 25 -30% of the total members of our organization are patients diagnosed with CML. Consequently, we are very interested in representing the interests of these patients.
COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:
NUMBER OF MEMBERS:
50 (May 2016)