coiaward2010

Romania: "MIELOPRO" - Asociatia Pacientilor cu Neoplazii Mieloproliferative

CONTACT INFORMATION:

Mailing/Postal Address:
str. Dristorului, nr. 97-119, bl. 63, sc. 4, et. 3, ap. 718, sector 3
Bucharest
Romania

Telephone: +4072 362 3376
Facsimile: +4021 2750591
Email:
Website: www.mielopro.ro

KEY CONTACT:

Name: Leny Caban, President

KEY OBJECTIVES & KEY INITIATIVES:

Our main purpose is medical and humanitarian; we want to serve and to promote the main patients interests : medical education, disease informations (conferences, free booklets, website,etc), to represent them in the relations with health autorities and policy-forming institutions, to ensure the access to specific medication, to support them and their families in the fight with cancer. We are very interested and open to learn and share expertise and experience with other patients groups; we are also very interested of joint campaigns.

BRIEF DESCRIPTION OF ORGANIZATION:

Our organization - The Association of Patients with Myeloprolipherative Neoplasms „MIELOPRO” is a non-profit one, without political implications, formally registrered (registration number : 21736/A/2015) and with permanent character; it is recently founded. We are offering help and support to CML patients in Romania. So far, about 25 -30% of the total members of our organization are patients diagnosed with CML. Consequently, we are very interested in representing the interests of these patients.

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

Romania

NUMBER OF MEMBERS:

50 (May 2016)


 
   
 

Please donate!

Please donate!

LogIn

Tweet Feed

cmlnet
@jlsteeg Thank you so much for sharing our study! For more info please visit #CML Education & Science Adherence page bit.ly/2nGLoJH

Thursday, 23 March 2017 in reply to jlsteeg

jlsteeg
Factors influencing adherence in CML Results of a patient-driven survey of 2546 patients in 63 countries. ncbi.nlm.nih.gov/pubmed/28289895

Retweeted Thursday, 23 March 2017

cmlnet
Call for Abstracts: CML Advocacy Best Practice presentations at CML Horizons 2017.Submit your abstract here… twitter.com/i/web/status/8…

Wednesday, 22 March 2017