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CML-CAB 2017

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2nd CML-CAB: Frankfurt, Germany, 24-26 February 2017

 

On 25-26 February 2017, the CML Community Advisory Board (CML-CAB), a workgroup of the CML Advocates Network, has hosted its second meeting to discuss issues of major concern to the CML community.

CML-CAB Members attending the 2nd CML-CAB as patient experts

 

The CML Advocates Network was represented by expert patient advocates from all world regions:

  • Jan Geissler, Germany (Co-chair)
  • Giora Sharf, Israel (Co-chair)
  • Jana Pelouchova, Czech Republic
  • Mercedes Arteaga,  (representing Latin America)
  • Gail Sperling, USA (representing North America)
  • Bahija Gouimi, Morocco (representing Africa and Middle East)
  • Rita Christensen, Denmark (representing Western Europe)
  • Jelena Cugurovic, Serbia (representing Eastern Europe)
  • Rod Padua, Philippines (representing East Asia and Pacific)
  • Felice Bombaci, Italy (Western Europe)
  • Parameswaran Puthen, India (East Asia / Pacific)
  • Ferdinand Micho, Kenya (Africa)
  • Silvia Castillo De Armas, Guatemala (Latin America)
  • Sarunas Narbutas, Lithuania (Eastern Europe)
  • Lidija Pecova (Programme Manager)
  • Celia Marin (Programme Manager)

 

CML-CAB with Novartis, 26 Feb 2017, 8:00-15:30

The following topics were discussed during the CML-CAB:

  • Presentation and Discussion: Clinical Development
  • Presentation and Discussion: Patient-Reported Outcomes
  • Presentation and Discussion: CML Today and Tomorrow
  • Presentation and Discussion: TFR Communication & Educational Materials
  • Discussion: Dialogue and Next Steps

Non-confidential minutes of the meeting are available to CML Advocates Network members here. Please log in on the website with your memership account, and then download the file here. Link will not work if you are not logged in!

 

CML-CAB with Takeda and Incyte, 25 Feb 2017, 14:00-18:00

The following topics were discussed during the CML-CAB:

  • Takeda, ARIAD and Incyte
  • Presentation and Discussion: Clinical Development
  • Access to Ponatinib
  • Collaboration
  • Next Steps

Non-confidential minutes of the meeting are available to CML Advocates Network members here. Please log in on the website with your memership account, and then download the file here. Link will not work if you are not logged in!

 

For more information, please contact the CML-CAB co-chair Jan Geissler <>

 

 


 
   
 

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EHA_Hematology
Thanks to all who attended #EHA22! Hope you had a great time as we did. See you next year at #EHA23 in Stockholm! #hematology

Retweeted Sunday, 25 June 2017

HeretoHelpMDS
Day 1 #eha22: patient advocacy professionals. C.Chomienne opening our meeting for our very eager newbies + wise vet… twitter.com/i/web/status/8…

Retweeted Sunday, 25 June 2017

Noirin0Neill
Nice to feature on the @symplur montage of #EHA22 Participants @EHA_Hematology #Madrid #PatientsInvolved pic.twitter.com/rY5fLoBV5Q

Retweeted Sunday, 25 June 2017