coiaward2010

Spain: Pacientes LMC

CONTACT INFORMATION:

Rambla del Celler, 55,

08172 Sant Cugat del Vallès,

Barcelona, Catalunya
SPAIN

Tel.: 0034669004790

E-Mail:
Web: https://www.facebook.com/groups/LMCES/

KEY CONTACT:

Toni Montserrat, Promoter and Coordinator.
María José García, Promoter and first CML'er.
Sandra Otero, Promoter.
Cristina Carmona, Promoter.

BRIEF DESCRIPTION OF ORGANIZATION:

Interest group created as an on-line support platform for patients of CML and relatives, using other groups as a model with the aim to participate with the CML community.

KEY OBJECTIVES AND INITIATIVES:

Defend the interests of patients with chronic myeloid leukemia (CML), both in front of the Administration and before the medical, pharmaceutical and other groups that may affect the objective itself.

Support CML patients at all levels.

Participate in initiatives for public recognition and awareness of the needs of CML patients.

Working with the aim to become a member of FECEC and participate in the definition of the Quality of Life policies of Cancer chronic patients.

Defend the rights of patients due to side effects of the disease itself or the medication in front of the Medical Courts, or by an adequate pharmaceutical prescription and not conditioned by economic issues.

Collaborate with the Health Administrations in the elaboration of policies of social and medical support.

Participate internationally in advocates entities of CML patients, being a stakeholder as an interest group and NGO.

Code of conduct:

Always be guided by objective criteria marked by CML patients and never by industry or other people's estates.

To seek positive and useful results for the CML patient community, without seeking profit in any case.

Registered in Registre de grups d’interès de l’Administració de la Generalitat i del seu sector públic (Generalitat de Catalunya Departament de Justícia Direcció General de Dret i d'Entitats Jurídiques) with ID 1278 on January 10th 2017.

MEMBERS:

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EHA_Hematology
Thanks to all who attended #EHA22! Hope you had a great time as we did. See you next year at #EHA23 in Stockholm! #hematology

Retweeted Sunday, 25 June 2017

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Day 1 #eha22: patient advocacy professionals. C.Chomienne opening our meeting for our very eager newbies + wise vet… twitter.com/i/web/status/8…

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