Rambla del Celler, 55,
08172 Sant Cugat del Vallès,
Toni Montserrat, Promoter and Coordinator.
María José García, Promoter and first CML'er.
Sandra Otero, Promoter.
Cristina Carmona, Promoter.
BRIEF DESCRIPTION OF ORGANIZATION:
KEY OBJECTIVES AND INITIATIVES:
Support CML patients at all levels.
Participate in initiatives for public recognition and awareness of the needs of CML patients.
Working with the aim to become a member of FECEC and participate in the definition of the Quality of Life policies of Cancer chronic patients.
Defend the rights of patients due to side effects of the disease itself or the medication in front of the Medical Courts, or by an adequate pharmaceutical prescription and not conditioned by economic issues.
Collaborate with the Health Administrations in the elaboration of policies of social and medical support.
Participate internationally in advocates entities of CML patients, being a stakeholder as an interest group and NGO.
Code of conduct:
Always be guided by objective criteria marked by CML patients and never by industry or other people's estates.
To seek positive and useful results for the CML patient community, without seeking profit in any case.
Registered in Registre de grups d’interès de l’Administració de la Generalitat i del seu sector públic (Generalitat de Catalunya Departament de Justícia Direcció General de Dret i d'Entitats Jurídiques) with ID 1278 on January 10th 2017.