coiaward2010

Zimbabwe: CML ZIMBABWE

CONTACT INFORMATION:

Mailing/Postal Address:

P O BOX M249
MABELREIGN
HARARE

Telephone: +263 9 62925
Email: 
Web: under construction

KEY CONTACT:

+263 772144766 Loretta Williams Deputy Chairperson
+263 712733719 Anesu Kadsande Chairperson
+263 773211957 Onward Mudindo Secretary
+263 77226691 Graham Macloed Treasurer

BRIEF DESCRIPTION OF ORGANIZATION:

Established in 2016 CML Zimbabwe is a non profit making organisation. After our official registration on the 4th March 2016 Reg. number MA0000198/2016 we held our official launch in October 2016, together with our first Maximize life campaign with countrywide television and press coverage our launch was a huge sucess, when 120 people joined us on our awareness march though the city streets.Representing over 140 CML & Gist patience we were finally able to speak with one voice and be heard. We have 2 Oncologists on our team.

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

To reduce Leukemia & GIST mortality rate in ZImbabwe through our main objectives :-
SUPPORT: Establish support system and counselling for CML and GIST patients, caregivers and survivors.
AWARENESS: To create training workshops and hold seminars with doctors, do our own research and disperse helpful information to patience and caregivers. Also making the public aware of CML.
INFORMATION: To establish a coalition to mobilize resources for Leukemia & GIST and advocating for health concerns to be mainstreamed in relevant government and non-government agencies.

Number of members or patients organisation represents today

140 (as per March 2017)

 

Senegal: A.G.I.L.

CONTACT INFORMATION:

Mailing/Postal Address:
 

30 Avenue, Pasteur Dakar Senegal

Tel.: 775201141

E-Mail:
Web: www.agil.comli.com

 

KEY CONTACT:

Mr Abdoulayd Fofana

BRIEF DESCRIPTION OF ORGANIZATION:

This organization has for aim to help patients living with CML and GIST take help each other mentally  and psychologically.

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

Support each other mentally and psychologically.
Lobbying to have assistance from the government for the monitoring of the disease.
Have access to the best care for this disease.
Inform the population about this disease.
Decrease the stjgmatization of the disease.

Number of members or patients organisation represents today

50

 

Palestine: CML Palestine

CONTACT INFORMATION:

Mailing/Postal Address:

Al Adel Street, Awqaf building , First Floor, Palestine

 

Tel.: 00972599205019
Fax:

E-Mail:

Web: www.cmlpalestine.org

KEY CONTACT:

Jamal Hurani, founder of CML palestine and current chairman

BRIEF DESCRIPTION OF ORGANIZATION:

CMl palestine was established for the purpose of serving the CML patients and to raise the knowledge about CML within the community.

The organization was registered recently and in the process of preparing initiatives

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

The main objetives are:
Providing help and advice for CML patients
Distributing knowledge about CML
Help in regards to drugs and lab tests provisions for patients
Coordination with CML societies localy and internationaly
Lobbying for the improvement of legislative environment regarding CML treatments

Number of members or patients organisation represents today

7

 

Saudi Arabia: CML Saudi Group (Saudi Cancer Foundation)

CONTACT INFORMATION:

Saudi Cancer Foundation
Prince Majid Street
Alkhobar, Saudi Arabia

Telephone of organisation: +966138647557

E-Mail:

Website address: www.scf.org.se

KEY CONTACT:

Dr. Mohamed ElSayes, Medical Director

BRIEF DESCRIPTION OF ORGANIZATION:

Saudi Cancer Foundation is a 12 years old organisation working in all fields of Cancer. SCF managed to become the leading foundation in Saudi Arabia after owning 4 mobile mammograms to be first in the world. following this success, SCF decided to expand their work in Lung cancer & we build one of the biggest early detection center in the world.

The SCF established a stand out group for CML last year called "Saudi CML Evangelists" to echo CML patients voice & help improve their quality of life & strengthen their engagement in the society . Additionally, the group will advocate to foster research & help expats access more quality medicines

MEMBERS:

7000 (status: March 2016)

Lebanon: CML group

CONTACT INFORMATION:

Mailing/Postal Address:
Ashrafieh abdelwahab el englisi str.
saab building 12 floor mamari owner
Beyrout Lebanon

Telephone: +9613805538
Facsimile: +9618821538
Email:

KEY CONTACT:

Name: Georges Sayde
Position: President

ORGANIZATIONAL OBJECTIVES:

Make the group's existence known to the people. improve drug accessibility for patient providing information and support for other CML patients.

BRIEF DESCRIPTION OF ORGANIZATION:

"CML Group" is an advocacy group for CML patients in Lebanon and middle east. it has being created in December 2009 with the objective of improving health condition and drug access for patients.

AUDIENCE/CONSTITUENCY:

Around 10 members each meeting

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

Lebanon

Sudan: Charity Organization for patients with CML

CONTACT INFORMATION:

Mailing/Postal Address:
Aljumhoria Street
Khartoum
SUDAN

Telephone: 00249128342220
Facsimile: none
Email:

KEY CONTACT:

Name: Mr. Abubakr Elamin
Position: Executive Officer

ORGANIZATIONAL OBJECTIVES:

Offer treatment to patients in an honest way.

BRIEF DESCRIPTION OF ORGANIZATION:

Our organization deals with patients with CML. It was founded in Khartoum / Sudan. The president is Mr. Hushm Mahmoud.

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

Sudan

Uganda: Leukemia And GIST Advocacy Fraternity

CONTACT INFORMATION:

Mailing/Postal Address:
Mr. Lubega Edward
C/O: Data Figure & Co.Certified Public Accountants,
Plot 6, Rashid Khamis ROAD.
P.O. Box 15045 KAMPALA (UGANDA)

Telephone: +256 701 17 17 19
Facsimile: none
Email:

KEY CONTACT:

Name: Mr. Edward Lubega
Position: Chairperson

KEY OBJECTIVES & INITIATIVES:

KEY OBJECTIVES:
a) To establish support systems for counseling and support groups for Leukaemia & GIST patients, survivors and their families.

b) To design and implement cancer awareness and training workshops and seminars based on information derived from the research.

c) Improving the lives of people living with Leukemia and GIST so that they can live a more meaningful life

d) To research the availability of resources for people diagnosed with Leukaemia & GIST and identify existing information gaps and needs.

e) Identifying strategic and comprehensive medical treatment, care and support centre in Uganda to Leukemia and GIST positive patients, targeting poor resource settings or allocations.

KEY INITIATIVES:
We are looking forward to the Launch of Leukemia And GIST Advocacy Fraternity – Uganda (LGAFU). This is aimed at bringing patients around Uganda and their families together with an intention of educating them about the best ways of fighting cancer.

Some of the Proposed Activities During the Official Launch of LGAFU.

•Visit to Pediatric Oncology ward at the Uganda Cancer Institute – Mulago National Referral Hospital: This is intended to show children love through giving gifts ranging from assorted toys, fruits, gift packs, drinks, mosquito nets, pampers, exercise books, drawing books, pencils, markers, among others. This will let the children and their families know that they are of value and that there are people who love them.

•Short skits will be staged aimed at passing on healthy lifestyle promotion to participants more especially cancer patients: Healthy lifestyle behaviors to be emphasized will encompass weight management, a healthy diet, regular exercises, and smoking cessation.

• Sharing Life stories from cancer survivors to encourage newly diagnosed patients and those currently admitted at the Uganda Cancer Institute-demonstrating that there is life after cancer and cancer treatment.

BRIEF DESCRIPTION OF ORGANIZATION:

Leukemia and GIST Advocacy Fraternity-Uganda (LGAFU) is an association that advocates for leukemia and GIST patients and people with other rare cancers within Uganda. Its formation was an idea of two CML patients who had lost hope in life after they were diagnosed with CML. The two founders after seeking medical attention and carrying out an extensive research about CML, they realized that CML was not a death sentence as they initially thought. The need to help Ugandans who were being traumatized by the same problem and did not know what to do resulted in the formation of LGAFU. On the 13th of July, 2012 LGAFU was formally registered with Uganda Registration Service Bureau. LGAFU is operated exclusively for all charitable purposes, with emphasis on Cancer awareness, mitigation and reduction of Leukemia and GIST mortality rates in particular.

OUR VISION IS...

...improve the lives and survival rates of patients with Leukemia, GIST and any other rare cancers within Uganda

OUR MISSION IS....
...reduce Leukemia and GIST mortality rate in Uganda and provide advocacy regardless of ability to pay.

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

Uganda

Iraq: Leukemia Patients Care Association

CONTACT INFORMATION:

Mailing/Postal Address:
Baghdad-alhuria-416-28-16
IRAQ

Telephone: 009647901613966
Facsimile: none
Email:

KEY CONTACT:

Name: Mohammed Jaafar
Position: President

KEY OBJECTIVES:

Provide modern and sophisticated treatment and diagnostic equipment to help patients to overcome the barriers of this disease and help patients access social welfare benefits. Our main goal is to build a specialized hospital for leukemia patients in coordination with the Iraqi Ministry of Health.

BRIEF DESCRIPTION OF ORGANIZATION:

Our organization was founded on 7/3/2012 to reduce the matter of leukemia patients through the provision of modern treatments by the Iraqi Ministry of Health and provide moral support.

NUMER OF MEMBERS:

3000 (Sept 2013)

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

Iraq

Ethiopia: Ethiopian CML Foundation

CONTACT INFORMATION:

Mailing/Postal Address:
Jemal Simei
P.O.Box 50941
Addis Ababa
Ethiopia

Telephone: +251 923078220
Facsimile: none
Email:

KEY CONTACT:

Name: Jemal Simei
Position: Finance Officer

BRIEF DESCRIPTION OF ORGANIZATION:

Ethiopian CML Foundation was established more than 3 rears in Addis Ababa City capital city of Ethiopia. on specific objective in terms of CML patients interest.

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

  • Conducting regular meetings
  • To share experience with each other
  • To raise funds for our organization
  • To raise funds for needy patients
  • Publishing news bulletin for advocacy work
  • Giving interviews to local media for enhancing the activities of our organization
  • Giving financial and psychological support for CML patients
  • Supporting medical staff by solving administrative problem regarding medicine and treatment
  • Supporting CML patient

Number of members or patients organisation represents today

More than 200 (as per 2014-03-13)

 

Egypt: CanSurvive

CONTACT INFORMATION:

Mailing/Postal Address:
Esraa Elsherbiny
11 Mahgoub Thabit
Agouza, Cairo
Egypt

Telephone: 00201224730736
Facsimile: none
Email:

KEY CONTACT:

Name: Esraa Elsherbiny
Position: Executive Manager

BRIEF DESCRIPTION OF ORGANIZATION:

CanSurvive is one of Egypt's leading groups for cancer patients and survivors. As treatments improve, more people are living with cancer, yet patients and those who care about them face many challenges. We hope to be a source of support and inspiration for all those whose lives are affected by cancer. We want to be there to help alleviate some of the physical and emotional stress associated with cancer. CanSurvive is registered as a non-profit non-government organization with the Ministry of Social Affairs.

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

We created a group under the name Power Of CML:
 
Power of CML objectives are:

1. Highlight CML patients problems in Egypt regarding:
  • a. Accessibility to medications.
  • b. Accessibility to proper educational material & palliative care information.
  • c. Cancer Stigma problems.
  • d. Lack of information about new drugs & treatment.
2. Proposing solutions to the above problems to address the public & government.
3. Finding the psychological support to CML patient inside the group
 

Number of members or patients organisation represents today

300 (as per June 2014)

 

Niger: Association de Lutte Contre Les Leucemies Au Niger

CONTACT INFORMATION:

Mailing/Postal Address:
Association De Lutte Contre Les Leucemies Au Niger
SC/BP: 466 Niamey
Niger
 
Telephone: +227 988849
Facsimile: +227 94777777
Email:
Web: N/A

KEY CONTACT:

Name: BOUKARY ABDOUL NASSER
Position: President

BRIEF DESCRIPTION OF ORGANIZATION:

ASSOCIATION DE LUTTE CONTRE LES LEUCEMIES AU NIGER" IS A NON-PROFIT ORGANIZATION, WHO WORKS ON BEHALF OF PATIENTS WITH LEUKEMIA IN NIGER. SHE RECOGNIZED BY THE GOVERNMENT OF NIGER. SINCE IT IS DECEMBER 2010. THE MAJORITY OF MEMBERS OF PATIENT ARE LIVING WITH LEUKEMIA. THE PRESIDENT OF THE ORGANIZATION IS A PATIENT OF LEUKEMIA. THE ORGANIZATION'S HEADQUARTERS IS IN NIAMEY, REPUBLIC OF NIGER.

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

The overall objective of the association is to contribute to:

- The fight against leukemia;
- Make known leukemia;
- Improve the lives of patients with leukemia;
- Reducing the morbidity and mortality rates associated with leukemic diseases in the population of Niger;
- The identification of leukemia patients on the territory of Niger;
- Management of goods and products against leukemia donated or acquired on behalf of the association.

To achieve these objectives, the Association will:
- To inform and sensitize national opinion and the medical profession through forums and conferences with the support of the media or other appropriate means;
- To organize and support campaigns for screening and prevention of leukemia;
- Raising available diagnostic and therapeutic procedures;
- Work towards the establishment of educational institution and research on leukemia;
To work with individuals and / or entities involved in the fight and in scientific research and social education on leukemias.

Number of members or patients organisation represents today

260 (as per Feb 2015)

 

Togo: APSBES / DILIGENCE GROUP

CONTACT INFORMATION:

Mailing/Postal Address:
APSBES / DILIGENCE GROUP
05 BP 628 Lomé
TOGO
 
Telephone: +228 22 31 42 31
Facsimile: +228 22 25 19 01
Email:

KEY CONTACT:

Name: Thomas Mensah Vovo AWANYO
Position: Executive Director

BRIEF DESCRIPTION OF ORGANIZATION:

"APSBES"( Association pour la Promotion de la Santé et du Bien - Etre Social) is a non-profit, humanitarian, and philanthropic community- focused Non-Government Organization (NGO) called in English: Association for the Promotion of Health and Social Well- Being based in Lomé Togo (West Africa). We promote the health and the socio-economic development of deprived population thereby alleviating the suffering through high participatory development ventures. APSBE's vision is that of "a world where every individual access the chance to fully realize his life potential with dignity". Its mission is to achieve lasting improvements in the quality of life of deprived people particularly of children and women in developing countries through and empowering process. To this end a group of people supporting (CML) patients called "APSBES / DILIGENCE GROUP" was created within the organization on the initiative of the Executive Director Mr Thomas Mensah Vovo coordinator of the solidarity group activities which has a specific mission for CML patients. Our organization leading partner in the West African sub-region is “Global Health Initiative” (GHI) with whom we use the same site www.demo.glohealth.org

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

Our main goal is to strive for the protection of the health of the population for sustainable human development. especially CML patients. For this purpose we organize awareness campaigns on cancer in general through several rounds of talks discussions. Training of peer educators on various cancer risk as smoking, alcohol consumption, obesity, and the need to vaccinate girls against human papilloma virus that causes cervical cancer. We organize campaigns consultation freely to women for early detection of breast cancer and education sessions for girls on the risk of early sexual activity.

Number of members or patients organisation represents today

30 (as per Feb 2015)

 

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@jlsteeg Thank you so much for sharing our study! For more info please visit #CML Education & Science Adherence page bit.ly/2nGLoJH

Thursday, 23 March 2017 in reply to jlsteeg