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Egypt: Power of CML

CONTACT INFORMATION:

Power of CML

Mohamed Mokhtar st, 218
El- Koba Gardens
Cairo- Egypt

Tel.: +2 01009700765

E-Mail:  ; 
Web: https://www.facebook.com/PowerofCML

 

KEY CONTACT:

Ahmed Awad, Founder of Power of CML.

Yousra Ibrahim, Power of CML team leader and Social Media Admin.

 

BRIEF DESCRIPTION OF ORGANIZATION:

Power of CML was established in June 2014 by Ahmed Awad inside Cansurvive NGO, then it became an independant initiative in Oct. 2015, and starting from 30th of July 2017 it became officialy affiliated Shabab Forsan NGO as responsible for CML patient groups support and awareness activities.

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

Our long-term goal is to enable CML patients to take part in the decision making process of health policies and strategies affecting them.

To achieve this goal, a lot of steps must be taken on three levels:

1. The patients and care givers: we organize supporting sessions, providing them with data, encouraging them to take part in different activities, and to follow up updated medical researches.

2. The society. We arrange awareness campaigns as well as continuous surveys to measure the effectiveness of the anti-stigma campaigns we manage, and above all advocating the patient rights.

3. The policy maker. We plan to contact the persons in charge to negociate patient’s problems and to suggest further solutions.

 

Number of members or patients organisation represents today

25 (July 2017)

 

Zimbabwe: CML ZIMBABWE

CONTACT INFORMATION:

Mailing/Postal Address:

P O BOX M249
MABELREIGN
HARARE

Telephone: +263 9 62925
Email: 
Web: under construction

KEY CONTACT:

+263 772144766 Loretta Williams Deputy Chairperson
+263 712733719 Anesu Kadsande Chairperson
+263 773211957 Onward Mudindo Secretary
+263 77226691 Graham Macloed Treasurer

BRIEF DESCRIPTION OF ORGANIZATION:

Established in 2016 CML Zimbabwe is a non profit making organisation. After our official registration on the 4th March 2016 Reg. number MA0000198/2016 we held our official launch in October 2016, together with our first Maximize life campaign with countrywide television and press coverage our launch was a huge sucess, when 120 people joined us on our awareness march though the city streets.Representing over 140 CML & Gist patience we were finally able to speak with one voice and be heard. We have 2 Oncologists on our team.

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

To reduce Leukemia & GIST mortality rate in ZImbabwe through our main objectives :-
SUPPORT: Establish support system and counselling for CML and GIST patients, caregivers and survivors.
AWARENESS: To create training workshops and hold seminars with doctors, do our own research and disperse helpful information to patience and caregivers. Also making the public aware of CML.
INFORMATION: To establish a coalition to mobilize resources for Leukemia & GIST and advocating for health concerns to be mainstreamed in relevant government and non-government agencies.

Number of members or patients organisation represents today

140 (as per March 2017)

 

Senegal: A.G.I.L.

CONTACT INFORMATION:

Mailing/Postal Address:
 

30 Avenue, Pasteur Dakar Senegal

Tel.: 775201141

E-Mail:
Web: www.agil.comli.com

 

KEY CONTACT:

Mr Abdoulayd Fofana

BRIEF DESCRIPTION OF ORGANIZATION:

This organization has for aim to help patients living with CML and GIST take help each other mentally  and psychologically.

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

Support each other mentally and psychologically.
Lobbying to have assistance from the government for the monitoring of the disease.
Have access to the best care for this disease.
Inform the population about this disease.
Decrease the stjgmatization of the disease.

Number of members or patients organisation represents today

50

 

Algeria: Philadelphia LMC

CONTACT INFORMATION:

Mailing/Postal Address:
 

Cite1600 logements bloc135 appartement 5 khroub

025200 Constantine

Country

Algeria

Tef: 002132699100

Fax: 0021337860227

E-Mail: 
Web: http://lmcalgeria.blogspot.com

 

KEY CONTACT:

Mr Khaldoun Wahid, Vice President

BRIEF DESCRIPTION OF ORGANIZATION:

Non-profit organization created in 2013 by and for CML patients what is the first and only CML patient’s association in Algeria.

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

Our goals

1-Patient’s support

2-Patient’s advocacy

3-Patient’s education

4-Reach the maximum number of patients on a national scale: Make a national project

Number of members or patients organisation represents today

153

 

Palestine: CML Palestine

CONTACT INFORMATION:

Mailing/Postal Address:

Al Adel Street, Awqaf building , First Floor, Palestine

 

Tel.: 00972599205019
Fax:

E-Mail:

Web: www.cmlpalestine.org

KEY CONTACT:

Jamal Hurani, founder of CML palestine and current chairman

BRIEF DESCRIPTION OF ORGANIZATION:

CMl palestine was established for the purpose of serving the CML patients and to raise the knowledge about CML within the community.

The organization was registered recently and in the process of preparing initiatives

KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION

The main objetives are:
Providing help and advice for CML patients
Distributing knowledge about CML
Help in regards to drugs and lab tests provisions for patients
Coordination with CML societies localy and internationaly
Lobbying for the improvement of legislative environment regarding CML treatments

Number of members or patients organisation represents today

7

 

Saudi Arabia: CML Saudi Group (Saudi Cancer Foundation)

CONTACT INFORMATION:

Saudi Cancer Foundation
Prince Majid Street
Alkhobar, Saudi Arabia

Telephone of organisation: +966138647557

E-Mail:

Website address: www.scf.org.se

KEY CONTACT:

Dr. Mohamed ElSayes, Medical Director

BRIEF DESCRIPTION OF ORGANIZATION:

Saudi Cancer Foundation is a 12 years old organisation working in all fields of Cancer. SCF managed to become the leading foundation in Saudi Arabia after owning 4 mobile mammograms to be first in the world. following this success, SCF decided to expand their work in Lung cancer & we build one of the biggest early detection center in the world.

The SCF established a stand out group for CML last year called "Saudi CML Evangelists" to echo CML patients voice & help improve their quality of life & strengthen their engagement in the society . Additionally, the group will advocate to foster research & help expats access more quality medicines

MEMBERS:

7000 (status: March 2016)

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