Poland: The Nationwide Association for CML Patients Aid

(Ogólnokrajowe Stowarzyszenie Pomocy Chorym na Przewlekla Bialaczke Szpikowa)

CONTACT INFORMATION:

Mailing/Postal Address:
ul. Bychowska 56
04-536 Warszawa
Poland

Email:
Website: http://www.spbs.com.pl/

KEY CONTACT:

Jacek Gugulski
President
Telephone: +48 504 153 136
EMail:

ORGANIZATIONAL OBJECTIVES:

access to new therapies, psychological support for the patients, free doctors’ consultations, help with access to valuable information

BRIEF DESCRIPTION OF ORGANIZATION:

Nationwide Association of CML Patients is located in Warsaw. We also have regional organizations in: Kraków, Lublin, Kielce, Łódź, Gdańsk, Szczecin, Wrocław, Poznań, Katowice, Białystok and Opole. We co-operate with many institutions – associations, companies, hospitals, authorities – all in order to make the situation of the patients better.

AUDIENCE/CONSTITUENCY:

patients, families

NUMBER OF MEMBERS:

300 all over Poland

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

not applicable

WAYS OF COMMUNICATING WITH CONSTITUENCY:

publications – newsletter, telephone, fax, www, e-mail

KEY PROGRAMS:

  • trainings for the patients
  • program the aim of which are contacts with decision makers in order to improve patients’ situation