Litva street 24
Name: Ibolya Kéri, chair
KEY OBJECTIVES & KEY INITIATIVES:
We provide three main kinds of support: patient education, emotional support and patient advocacy. The educational aspect keeps patients informed about their condition, the latest treatments, side effects, how to improve quality of life, etc. Emotional support is mainly provided through individual counselling and group activities.
We have different kinds of support groups for patients and families with CML, lymphoma, multiple myeloma, MDS, HCL, etc. and organize support group meetings frequently. We also have a moderated secret facebook group for CML patients so members can stay in touch permanently and help each other with practical advice in order to manage the problems caused by their condition in everyday life. We are strongly of the opinion that international partnerships are essential in patient advocacy. That’s why we collaborate with IMF, MPE, ECPC, Lymphoma Coalition and the CML Advocates Network.
BRIEF DESCRIPTION OF ORGANIZATION:
MOHA (acronym for Magyar Onkohematológiai Betegekért Alapítvány, Foundation for Hungarian Oncohaematological Patients) is a registered, non-profit, independent, non-governmental organization founded in 2014 especially for oncohaematological patients and families.
COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:
NUMBER OF MEMBERS:
500 (May 2016)