Switzerland: Foundation for Advancement of Bone Marrow Transplantation

CONTACT INFORMATION:

Mailing/Postal Address:
Vorder Rainholzstrasse 3
CH-8123 Ebmatingen
Switzerland

Telephone: +41 44 982 12 12
Facsimile: +41 44 982 12 13
Email:
Website: www.knochenmark.ch

KEY CONTACT:

Name: Heberlein, Candy
Position: President

ORGANIZATIONAL OBJECTIVES:

Providing patients afflicted with cancer in the bone marrow (as CML) with information. Annual gatherings of all patient groups in summer (104)and an other around Christmas (431 patients and their partners)

BRIEF DESCRIPTION OF ORGANIZATION:

In 1994 I have founded this Foundation (SFK) after having experienced losses in my family. More and more patients approached me to seek advice. It became evident that we have to move closer to the patients, unite them in their region. Thus I formed patient groups in seven cities/regions in Switzerland. Each group assembles monthly. Over the past years I was able to shape a stable network for leukemia- and myeloma patients.

AUDIENCE/CONSTITUENCY:

Patients and their partners/carers

NUMBER OF MEMBERS:

398 (Sept 2011)

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

Switzerland

WAYS OF COMMUNICATING WITH CONSTITUENCY:

  • Annual newsletter “Hand in Hand” which is sent to patients, cancer leagues, doctors, bone marrow donors etc.
  • Website www.knochenmark.ch
  • Annual performance of a fairy tale at Christmas, uniting 500 cancerous guest, children juveniles, adults with cancer.
  • Annual reunion of all patient group-participants at summertime in my garden

Heberlein, Candy Community Builder Avatar   10.02.2011 (17:30:44)
development Yes No The number of patients in my SOS-patient groups has more than doubled.
At the annual fairytale theatre on 9th of January 2011 I welcomed 431 little and grown guests, living with cancer.
As every year, on 25th of June the successfuly transplanted Ex-patients will be united. July 2nd, I shall receive the patients with cancer in the bone marrow, as every year. The patient groups in seven cities, which I take care of, had losses to mourn but firmly stand by each other, in the conviction that empathy is our strength to deal with the disease.Love to all from Candy in Switzerland
 
Candy Heberlein Community Builder Avatar   04.09.2011 (17:18:53)
Awareness Day Yes No Awareness about patients living with CML takes place time and again in articles in the newspapers. As my seven patient groups will now celebrate their tenth birthday, we will find attention in the media.
Not only ONE DAY but ALL THE TIME!