Japan: IZUMI (The Association of CML patients & families)

CONTACT INFORMATION:

Mailing/Postal Address:
5-20-13 Nishi-Ohnuma,
Sagamihara Kanagawa
229-0012 JAPAN

Telephone: 090-9001-1190
Facsimile: 042-745-0989
Email:
Website: http://members.jcom.home.ne.jp/firstsight/izumi/

KEY CONTACT:

Name: Hidehito Tamura
Position: Representative

BRIEF DESCRIPTION OF ORGANIZATION:

To improve both the treatment of CML and patients' QOL through educational activities involving information provision and exchange for patuients and their families and also foster accurate recognition of CML amongst the public.

KEY INITIATIVES:

  • Forums to educate and communicate the latest clinical inforamtion on CML treatment to patients and public.
  • establishmen of website: timely provision of relevant and high quality informatuin.
  • relationship-building with medical institutions and pharmaceutical companies
  • approach the goverment

NUMBER OF MEMBERS:

200 (August 2008)

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

Japan