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CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

USA: The Leukemia & Lymphoma Society

CONTACT INFORMATION:

Mailing/Postal Address:
1311 Mamaroneck Avenue
White Plains, NY 10605
USA

Telephone: (914) 821-8871
Facsimile: (914) 821-3671
Email:
Website: www.LLS.org

KEY CONTACT:

Name: Gail Sperling, MPH, CHES
Position: Senior Information Resource Specialist

ORGANIZATIONAL OBJECTIVES:

Research: To accelerate the acquisition and application of scientific understanding, to advance the treatment, diagnosis, or prevention of leukemia, lymphoma and myeloma.

Patient Services: To reach all patients at the time of diagnosis and make a significant difference in the lives of all who choose to receive the Society's services through education and patient services.

Advocacy: To increase influence with private and public organizations to achieve the Society's strategic goals.

BRIEF DESCRIPTION OF ORGANIZATION:

The Leukemia & Lymphoma Society is the world´s largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society´s mission: Cure leukemia, lymphoma, Hodgkin´s disease and myeloma, and improve the quality of life of patients and their families.

AUDIENCE/CONSTITUENCY:

Patients with blood cancers and their families; nurses, social workers,
physicians and other health care professionals working with blood cancer patients.

NUMBER OF MEMBERS:

The Society has chapters throughout the United States and Canada with
paid staff and volunteers.

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

The United States and Canada.

WAYS OF COMMUNICATING WITH CONSTITUENCY:

Via a toll free call center, website, print materials, telephone education conference calls and web
conferences and in-person education programs.

KEY PROGRAMS:

Education: Live and archived presentations by experts. Information Resource Center (call center)
which provides accurate, up-to-date, disease-related information and referral services.
Family Support Groups: Healthcare professionals lead regularly scheduled group meetings in the community and online (chats) bringing
together patients, families and friends.
Research Grants: provided to scientists at the forefront of blood-related cancer research at institutions
throughout the world.


 
   
 

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