USA: The Leukemia & Lymphoma Society

CONTACT INFORMATION:

Mailing/Postal Address:
1311 Mamaroneck Avenue
White Plains, NY 10605
USA

Telephone: (914) 821-8871
Facsimile: (914) 821-3671
Email:
Website: www.LLS.org

KEY CONTACT:

Name: Gail Sperling, MPH, CHES
Position: Senior Information Resource Specialist

ORGANIZATIONAL OBJECTIVES:

Research: To accelerate the acquisition and application of scientific understanding, to advance the treatment, diagnosis, or prevention of leukemia, lymphoma and myeloma.

Patient Services: To reach all patients at the time of diagnosis and make a significant difference in the lives of all who choose to receive the Society's services through education and patient services.

Advocacy: To increase influence with private and public organizations to achieve the Society's strategic goals.

BRIEF DESCRIPTION OF ORGANIZATION:

The Leukemia & Lymphoma Society is the world´s largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society´s mission: Cure leukemia, lymphoma, Hodgkin´s disease and myeloma, and improve the quality of life of patients and their families.

AUDIENCE/CONSTITUENCY:

Patients with blood cancers and their families; nurses, social workers,
physicians and other health care professionals working with blood cancer patients.

NUMBER OF MEMBERS:

The Society has chapters throughout the United States and Canada with
paid staff and volunteers.

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

The United States and Canada.

WAYS OF COMMUNICATING WITH CONSTITUENCY:

Via a toll free call center, website, print materials, telephone education conference calls and web
conferences and in-person education programs.

KEY PROGRAMS:

Education: Live and archived presentations by experts. Information Resource Center (call center)
which provides accurate, up-to-date, disease-related information and referral services.
Family Support Groups: Healthcare professionals lead regularly scheduled group meetings in the community and online (chats) bringing
together patients, families and friends.
Research Grants: provided to scientists at the forefront of blood-related cancer research at institutions
throughout the world.