Canada: CML ZERO CLUB

CONTACT INFORMATION:

67 Shoreham Avenue Ottawa, Ontario
Canada

Telephone of organisation: +1-613-726-1117
Fax of organisation: +1-613-282-4801
E-Mail:

KEY CONTACT:

Zavie Miller Creator of the Zavie's Zero Club.

BRIEF DESCRIPTION OF ORGANIZATION:

A Zero Club number is assigned to each patient that reaches CCR in their CML treatment. I started assigning Zero Club numbers the day I took my first dose of STI571 (Gleevec) on March 29, 2001 as part of the expanded access trial at OHSU in Portland, Oregon. Six months later I became # 102 in my own Zero Club. I consider myself truly blessed.

KEY OBJECTIVES:

To assist CML patients with their journey on their CML trip. This includes locating a CML specialist in their area, pointing the patient to organizations that provide free medication for their CML, moderating an on-line chat on a weekly basis, reporting new discoveries to the on-line support groups, organizing patient meetings in Ottawa, Florida and other parts of the world that I travel to.

NUMBER OF PATIENTS IN THE ZERO CLUB:

1340 (July 2010)