CML Advocates Network Survey - your ideas count

We need your ideas and feedback!

The CML Advocates Network was set up to support communication between CML patient representatives. The main goals of the "CML Advocates Network" website are:
  • To provide a worldwide web directory of CML patient groups, to allow patient groups to find national support groups in another country
  • To provide a platform of communication for CML patient advocates, e.g. to share best practice on cancer patient advocacy.
  • To build a joint knowledge base, e.g. sharing documents, photos and ideas

But are we achieving our goal? How could we help you better?

Giora, Jana and Jan, the coordinators of the network, are driven by the mission to support your work for CML patients in your country. We need your ideas! We would be grateful if you took the time to provide your ideas and feedback here on how the CML Advocates Network could be more helpful to you

Your name (*)

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Your email address (*)

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Your patient organisation (*)

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What is most useful on the CML Advocates Network website today? How does it help you in your advocacy work?

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What is least useful? What does not work well? Why? How could it be improved?

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Please let us know your ideas! What else should the CML Advocates Network website offer to make it more useful? Do you have examples of other Internet services that would be helpful?

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It would be very helpful for us to know about your interest and experience with Internet services and "Social Media".

Please let us know which Internet services you use as a patient advocate regularly.

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Overall, please give us an overall rating of the CML Advocates Network (1 = least useful, 5 = most useful) (*)

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Tweet Feed

CML Advocates Network with the Rare Disease Day 2018… @cmlnet

Retweeted Wednesday, 21 February 2018

@SamanthaNier @EHA_Hematology Very happy to meet you there, Samantha! #EHA23 #patient #advocacy #cml #leukemia

Wednesday, 21 February 2018 in reply to SamanthaNier