List of Groups
This is a world-wide list of patient groups supporting those patients and families affected with Chronic Myeloid Leukemia (CML). If your group not listed here, please register. If details have changed, please contact us.
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Estonia: Eesti Leukeemia ja Lümfoomihaigete Liit (Estonian Leukaemia and Lymphoma Patients Society)
Last Updated on Friday, 09 November 2012 16:28 | 
CONTACT INFORMATION:
Mailing/Postal Address:Tallinna 22, 71001 Viljandi, postkast 9
Estonia
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website: www.leukeemia.ee
KEY CONTACT:
Name: Karin NaaritsPosition: Chairman of board
BRIEF DESCRIPTION OF ORGANIZATION:
Founded in October 2005, Estonian Leukaemia and Lymphoma Patients Society is a non-profit and non-governmental organization aiming to unite all affected by the disease of leukaemia and lymphoma patients, their families and supporters.AUDIENCE/CONSTITUENCY:
leukaemia and lymphoma patients and their supportersNUMBER OF MEMBERS:
75COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:
EstoniaWAYS OF COMMUNICATING WITH CONSTITUENCY:
Website www.leukeemia.ee, meetings (patients, doctors, pharmaceuticalcompanies representatives), e-mailing list, newsletters, etc.
KEY PROGRAMS:
- Treatment. We campaign to make this essential treatment available to all patients.
- Bone marrow transplants. Bone marrow transplants have to become more available to leukaemia patients, for which it is necessary to form new state policy allowing bone marrow donor banks, formulate appropriate legislation and support international co-operation.
- Increasing public and government awareness on leukaemia and lymphoma
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