Life for me is a battle. A 7-year old girl who is supposed to enjoy the gift of life, youth and innocence, procured a sickness nobody would ever dreamed of.
My illness was discovered during my elementary school years. At first, my health “seems” fine. But when I reached Grade 4, I was in trouble. It was just a sudden change in my health, loss of appetite, I easily got tired, I got pale and physically weak.
Since then, I started taking 8 different oral medications and it’s like I’ve been taking different colored candies all my life with awful tastes! Then I stopped schooling,...
This is all too sudden, my eyesight cloudy from the tears constantly flowing, it pains me deeply just to write this e-mail...
My youngest son just turned 9 years old. Tragically, on the day of his birthday, my wife who was cradling him, noticed that his stomach was way too ...
Max was 14 when he was diagnosed with chronic myeloid leukemia (CML). A lingering cough and a doctor's check up revealed an enlarged spleen; from there, blood tests, more tests, shock. It was August of 1989.
Max went on to take hydrea and then a very promising drug at the time, Interferon, all the while we searched for a matching bone marrow donor. He did well on interferon and had little side effects. He was 15 by then and he would prepare his own interferon shots. Shots and blood draws soon became part of his routine.
Max lived with CML for almost 3 y...
Little Marina’s family got the shocking CML diagnosis of their daughter when she was only 2 years old, in the year 2003. It all came out so unexpectedly, when her parents took the little girl to the doctor for the regular check-up. The WBS Count showed a threatening figure of 110,000.
The only treatment that existed at that time was hydrea. We heard about the existence if Imatinib though, however unfortunately it was not available in the country. The drug was too expensive for us to buy from abroad. Luckily we could get Imatinib later when it was approved by the government in the li...
12 year old Fidan is suffering from Chronic Myeloid Leukemia since she is 5. As she never had access to any TKIs she started to get chemotherapy since she was diagnosed.
As if this was not enough, 2 years later her mother got another shocking news when she started feeling strange. This was a breast cancer. Instead of spending more time with her only child and worrying about her, she had to start caring about herself too, for both of them. There were two of them now against two cancers.
Mother and daughter are travelling to Iran very often for the chemotherapy procedures. Mot...
Junior CML News: News on pediatric CML
Welcome to "Junior CML", the young section of the CML Advocates Network. In this area we will publish news, e.g. when new publications were published on pediatric CML, or when the patient community takes action on CML in children and adolescents. Furthermore, you can learn what CML in children and adolescents is, and see the list of publications on pediatric CML. We also provide a list of organisations supporting children with CML and their persons. You can also subscribe to our EMail newsletters. This section is developed in partnership with the International CML Foundation.
The "CML Advocates Network", the international platform of patient groups supporting patients and relatives suffering from Chronic Myeloid Leukaemia, and the International CML Foundation join forces to support young patients affected by that rare form of leukaemia, as well as physicians and researchers. The project, launched on International Childhood Cancer Day on 15 February 2011, will encompass a range of activities to support collaboration and sharing of experience of parents of young patients as well as physicians treating children with this ultra-rare condition.