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Tuesday, 06 July 2010 |
 Welcome to CML Advocates Network! We are a worldwide virtual network of non-profit organisations supporting patients with Chronic Myeloid Leukemia (CML) and their relatives. We do this by sharing knowledge and best practice, supporting campaigns, and educating advocates how to build and grow patient groups. The network is solely run by volunteers who are CML patients themselves -- and is independent as it does not require any funding by third parties.
This is what you can do here: Find CML patient groups in our worldwide directory of CML patient groups. Find out more about the CML Advocates Network. See our directory of web links. If you are representing a CML patient group, please log in to access our Wiki, our discussion forum, our
photo gallery or our download area -- or please register
if you are not yet a member.
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Friday, 20 August 2010 |
 The "CML Advocates Network" has received the "ESO Cancer on Internet Award 2010" at the UICC World Cancer Congress in China on 19 August 2010. The focus of this year's award provided by the European School of Oncology (ESO) is on e-cancer patients. It has the aim to raise awareness of the evolution of the internet and the
impact of social media networks in the cancer patient community by
recognising organisations and groups that have provided quality-based
and easy-to-use communication platforms through the Internet.The prize of 4.000 EUR will be used to extend that social media functionality of the website which is based on free software and is run by volunteers.
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Monday, 19 July 2010 |
The "CML Advocates Network", an international platform for patient groups supporting patients and relatives suffering from "Chronic Myeloid Leukaemia" (CML) now connects 51 organisations from 43 countries across all continents. This worldwide network offers support by sharing of best practice, information and advice for CML patient representatives. We are delighted to welcome our new members, CML Association of Macedonia, CML Zero Club from Canada, CML Association of Serbia, Leucemie Espoir 06 from France, Shanghai Roots & Shoots: CML Home of Hope, Vivre avec la LMC from France, Touched By Max from Philippines, the CML group from Lebanon, and The National CML Society (USA).
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Tuesday, 20 July 2010 |
The 8th annual "International New Horizons Conference for Organizations Representing People with CML or GIST" was held this year in Vösendorf, Austria, from June 18 to 20, 2010. Sponsored by Novartis, the conference provided patient advocate leaders with an opportunity for 3 days of learning, companionship and the chance to share experiences across national boundaries. This year's conference was held on a particularly celebratory note, as it marked the 10th anniversary of imatinib and its revolutionary impact on the treatment of CML and GIST.
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Thursday, 15 April 2010 |
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 On 9-11 April 2010,
cancer advocates working in Asia witnessed a new beginning: the first
conference for CML advocates in the region, Rising Sun, conveyed in Hong Kong.
This unprecedented event was a "dream come true" for many of the participants.
Representatives from China, Hong Kong,
Indonesia, Malaysia, India, Japan and the Philippines, joined by
advocates from
New Zealand, Australia, US and UK, spend two days getting to know each
other,
sharing best practices, and learning from each other. People who up to
now had
lived parallel lives without knowing each other, finally had the chance
to meet
in person and develop tight connections.
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Monday, 14 December 2009 |
 "Actually, why do I always spend St
Nicholas in the US, instead of with my family", I asked myself when I
boarded the plane to the USA on 4 Dec, in anticipation of a boring 16 hour trip
to New Orleans, arriving jetlagged, hiding for days in the dungeons of a large
convention center, lacking any sense of the city I am in. Year by year, more
than 20.000 hematologists and healthcare people attend the annual meeting of
the American Society of Hematology, lovingly called 'the ASH' by repatriates. Its
publications are all available on the Internet. "Is it really worth the
effort being there again, instead of just using my browser?", I thought. It is. Definitely.
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Thursday, 06 August 2009 |
 The 7th annual international "New Horizons Conference for Organisations Representing People with CML or GIST" was held this year in Lisbon, Portugal from June 26 to 28. Sponsored by Novartis and held for the seventh year, the conference once again demonstrated the value of bringing together patient advocacy groups from around the world to share their ideas and experiences and to get latest updates from medical professionals. The conference featured 30 hours of presentations from a dedicated and enthusiastic faculty of various disciplines and stakeholder groups.
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