CML Advocates Network

For Chronic Myeloid Leukemia Patient Group Advocates

 
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ASH 2008: Impressions from a CML patient advocate
Saturday, 10 January 2009
welcome_to_ash2.jpgEvery year, around the day of St Nicholas in December, hematologists from around the world meet at the annual congress of the American Society of Hematology (ASH). It has become the most important event for this profession. This year, around 23.000 experts from more than 100 countries met in December 2008 at San Francisco for the 50th "ASH Annual Conference" to share knowledge about the latest results in research on leukemias. We've also had the chance to join this year, and we'd like to share our subjective impression on progress in CML therapy. An impression from a layman perspective.
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More than 50 CML patient groups sign the "Baveno CML Declaration"
Monday, 18 August 2008
declaration.jpgPress Release - More than 50 organisations supporting patients with chronic myeloid leukaemia have signed the "Baveno CML Declaration" to call for improved access to cancer treatment and better adherence to international treatment guidelines.
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New Horizons in Treating Cancer Conference 2008 in Italy: A global voice for CML
Thursday, 31 July 2008
baveno.jpgThe 6th annual international New Horizons Conference for Organisations Representing People with CML or GIST was held from 27 to 29 June 2008 in Baveno, Italy, with the highest ever attendance. For the first time the Congress had a truly global representation, with almost 100 delegates from more than 35 different countries covering Europe, North America, Australia, Asia, Africa and Latin America.
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CML and GIST patient groups met in Germany (2007)
Wednesday, 17 October 2007
new_horizons_2007.jpgThe 5th International “New Horizons” Conference for Organizations Representing People with CML and GIST, held in Bad Nauheim, Germany, (29 June – 1 July 2007) brought together 80 representatives from 22 patient advocacy groups in 28 countries. This yearly event has become a platform for CML and GIST advocates from all over the world to meet and learn from the experience of each other. Advocacy issues that were discussed at the meeting included: CML and GIST medical updates, strategic alliances, challenges of running a newly established patients groups, how patients can contribute to the design and implementation of clinical trials, drug access, fund raising, and many more.
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Patient Groups Launch International Platform "CML Advocates Network" (2007)
Monday, 09 July 2007
logo_cmladvocates_106.gifBad Nauheim, 1 July 2007 · Four patient groups from the UK, Germany, Israel and Czech Republic launched the "CML Advocates Network" as an international platform for organisations supporting patients and relatives suffering from "Chronic Myeloid Leukemia" (CML). The worldwide network offers support by sharing of best practice, information and advice for CML patient advocates across the world. Innovative use of Internet technologies will further increase collaboration.
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CML Advocates met in Budapest (2006)
Sunday, 25 June 2006
new_horizons_2006.jpgThe "4th CML and GIST New Horizons in Treating Cancer summit" for patient group representatives was held in Budapest from 23rd to 25th of June 2006. The summit brought together 70 patient group representatives from 26 countries.
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