CML Advocates Network co-founders receive the 2022 iCMLf Prize

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During the month of March 2022, the International CML Foundation announced the iCMLf Prizes for 2022. These prestigious global awards are conferred on individuals who have played a major role in advancing the understanding and management of CML.

On this ocassion, Giora Sharf and Jan Geissler, chronic myeloid leukemia (CML) patient advocates and co-founders of the CML Advocates Network, have been awarded the 2022 iCMLf Prize for their achievements in the field of patient advocacy using the experience of their own diagnosis to help other patients across the world.

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Calling CML patients living in Ukraine

CML Advocates Network stands in solidarity with the CML patients in Ukraine.

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We call on the international community to address the basic human needs and solve disruptions in healthcare and treatment in Ukraine and the neighbouring countries welcoming those patients.
 
If you are a CML patient, a relative or a friend of someone living with CML in Ukraine or have crossed over to a neighbouring country please contact us directly to obtain support based on individual needs by sending an email to Lidija Pecova at lidija@cmladvocates.net or text message on +389 78388235 WhatsApp / Viber & Telegram is also enabled.

CML Advocates Network statement supporting fellow members and patients in Ukraine.

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The CML Advocates Network is an active network specifically for leaders of Chronic Myeloid Leukemia (CML) patient groups, connecting 128 patient organisations in 93 countries on all continents. It was set-up and is run by CML patients

In the light of recent geopolitical events in Ukraine we fully support our members and patients and families living with CML.

Following the recent COVID-19 pandemic during which care for so many patients living with cancer has undeniably suffered it is unfortunate that the recent series of events has ocurred and will certainly prolong the effects on those living with cancer and with CML in Ukraine.

As a patient-led global organisation it has always been our belief that disease has no borders and we have always working together both within CML and with the wider patient community to advance the voice of those who have been touched by disease and their families in order to highlight its effect on society.

We stand by our fellow members and patients in Ukraine and with wider global community in asking for common sense and diplomacy to prevail so that normal people living their lives can continue as such and in particular those who find themselves living with cancer and in our case CML can access the care and treatment that they fundamentally need.

As CML Advocates Network we stand by our members and their families and the wider medical community affected during these times.

 

ASH 2021 CML Conference Report

The 63rd ASH Annual Meeting and Exposition organised by the American Society of Hematology was presented at the Georgia World Congress Center in Atlanta, Georgia – and virtually – from December 11-14, 2021.


We have prepared a Conference Report in order to provide you the latest updates on the management of chronic myeloid leukemia and the most important highlights presented in this key meeting for the CML community.


Download the ASH 2021 Conference report by clicking on the image below:

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Celia Marín - Head of Communications - celia@cmladvocates.net

 

 

CML Advocates Network Steering Committee 2021

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We are excited to formally welcome and introduce the three new members of the CML Advocates Network Steering Committee 2021:

  • Zack Pemberton-Whiteley, Chief Executive Officer of Leukaemia Care, United Kingdom. Region Western Europe Representative.
  • Eunice Orekha, President of Max Care Foundation, Nigeria. Region Middle East & Africa Representative.
  • Felipe Tapia, Vice President of Maxi Vida Association, Chile. Region Latin America Representative.

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In Memoriam Professor Michele Baccarani

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We have learnt with deep sadness the passing away of Professor Michele Baccarani on 20th December 2021.

Dr. Baccarani was an outstanding renowned doctor, a great scientist, an excellent hematologist and one of the most important leaders on chronic myeloid leukemia worldwide.

He dedicated his life to research against leukemia, making a significant contribution to change the natural history of this disease and impact on the quality of life of patients.

The CML Advocates Network on behalf of the global CML patients community all around the world, are profoundly grateful to him for his remarkable work on the benefit of CML patients, moreover for the support provided to the birth of our member organisation, AIL Group of CML patients in Italy.

It was a privilege and an honour for us to know him and learn from him.

We wish his family, friends and colleagues all the strength and wisdom they need in these difficult times.

Rest in peace.

 

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