CML Horizons 2020 conference moves to November 2020

HZ SC final

 

In light of the circumstances surrounding the global COVID-19 outbreak, the CML Advocates Network Steering Committee met via video-conference on March 19 to decide on the future of our annual CML Horizons conference which was due to take place in San José, Costa Rica from May 1-3.
 
Given the health risks posed to patients as well as the current travel restrictions for which there is no firm indication as to how long they may continue, the Steering Committee has decided to cancel the Costa-Rica CML Horizons conference and to re-schedule the event, circumstances permitting, in Europe in November 2020. 

Even though it has been a difficult decision, the health of conference delegates remains our priority.  We will continue to closely monitor the global situation and incorporate WHO recommendations on safety and travel into our sources of advice.

We will confirm the new dates, venue and further details about the conference in the coming days.

We would also like to express our sincere gratitude to all CML patient advocates, doctors, service providers and volunteers who have helped us with the organisation and program planning for Horizons 2020 Costa Rica. 
 
Our commitment now is to work hard to reschedule and prepare an excellent CML Horizons conference for which we intend to exceed the expectations of conference attendees as they continue to learn, share and grow all together.
 
Stay tuned and follow our social media channels for more information!

 

 

Coronavirus disease and CML patients

The novel Coronavirus and the COVID-19 Disease

Information for Chronic Phase Chronic Myeloid Leukemia Patients

State of the Art as of 08 March 2020

 

Dr Michael Deininger (USA), Dr François Guilhot (France), Dr Jeroen Janssen (Netherlands), Dr Tim Hughes (Australia), Dr Jeffrey Lipton (Canada), Dr Franck Nicolini (France),

Dr Jerry Radich (USA), Dr Delphine Rea (France), Dr Giuseppe Saglio (Italy), Dr Suzanne Saussele (Germany), Dr Rick Silver (USA), Dr Juan Luis Steegmann (Spain).

 

Introduction

SARS-Cov 2 is a novel coronavirus that belongs to the large Coronaviruses (CoV) family. It emerged in December 2019 in Wuhan, China. This new virus is responsible for an illness called COVID-19 ranging from a simple cold to a more severe respiratory infection. The virus is spreading across the globe, representing a pandemic alert. 

Transmission 

Conventional routes of transmission of the new coronavirus consist of contact with respiratory droplets from infected persons. People may also possibly be infected when touching a surface or object that has the live virus on it then touching their mouth, eyes or nose although it may not be the main route of infection since in general, survivability of coronaviruses on surfaces is considered as poor. Finally, the new coronavirus can be detected in the gastrointestinal tract, saliva and urine, so these routes of potential transmission are currently under investigation. 

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CML Advocates Network statement on Coronavirus Disease 2019 (COVID-19)

who 1The CML Advocates Network is closely monitoring the information concerning the Coronavirus Disease 2019 (COVID-19) worldwide.

At the present time, all our activities including the CML Horizons Conference 2020 continue as planned.

In the event that the situation changes, we will immediately inform our members and the wider CML community of the new circumstances through our website and communication channels. For updates, please follow us on Twitter, Facebook or LinkedIn.

We are committed to guarantee the safety of our participants with all possible measures and are currently seeking CML-specific medical advice from CML medical experts.

Please, make sure you follow the recommendations provided by the World Health Organization (WHO) and your local authorities.

For further information about the CML Horizons Conference 2020 or any other CML Advocates Network activity, please contact us at

Summary of the CML educational session from ASH 2019

 

Patients, borders, money, and mission:

A global perspective of chronic myeloid leukemia

- Summary of the CML educational session from ASH 2019 -

Chairs:
Hemant Malhotra, MD, FRCP; Mahatma Gandhi Medical College Hospital, Jaipur, India
Speakers:
  • The US Experience with Generic Imatinib in CML: Did Cost Predictions Meet Reality?

post ash 1Gary H. Lyman, MD, Fred Hutchinson Cancer Research Center, Seattle, WA

  • Meeting the Needs of CML Patients in Resource-Poor Countries: a Roundtable Discussion
Jerald P. Radich, MD, Fred Hutchinson Cancer Research Center
Hemant Malhotra, MD, FRCP
Mahatma Gandhi Medical College Hospital, Jaipur, India
Pat Garcia-Gonzalez, The Max Foundation, Seattle, WA
 

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New drugs for CML in clinical trials: ASH 2019

This summary will cover a few of the important topics regarding CML that were presented at ASH 2019 including:

  1. New Drugs for CML
  2. Update on the French and German Interferon combination studies
  3. Age-adjusted treatment in CML- Elderly and Pregnancy report for young CML patients. (our report regarding pediatric CML was published separately).
  4. Generic Imatinib 

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Results from ASH: Discontinuation of TKIs in children with CML

pediatric report1 defTKIs seem to allow most CML patients, including children, to live a normal lifespan under continued treatment. However, the medication’s long-term side effects such as growth impairment and the need to take the drug for the rest of life, are an issue of concern, especially for children. Recent clinical trials in adults have suggested that some CML patients in deep molecular response on TKI therapy may have a chance to discontinue TKI treatment. However, the biology of CML in children may differ from adults with more aggressive presentation, and data of TKI discontinuation in CML children are limited.

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