About the Network

cmladvocates widelogo print

 

The CML Advocates Network Story

The CML Advocates Network is an active network specifically for leaders of Chronic Myeloid Leukemia (CML) patient groups, connecting 126 patient organisations in 93 countries on all continents. It was set-up and is run by CML patients and carers. Its aim is to facilitate and support best practice sharing among patient advocates across the world.

The idea to form the CML Advocates Network was first discussed in 2005 during the 4th International "New Horizons in Cancer" conference in Dublin for CML & GIST patient advocacy groups. Since their initiation in 2002, the "New Horizons" annual conferences have become a key networking event and a platform for best practice and knowledge sharing for CML and GIST patient groups from all five continents. Presentations by expert clinicians, medical professionals and patient group organizers enable the sharing of the most up to date clinical information, of best practice in patient advocacy as well as of hands-on experience, e.g. and on how to run patient advocacy organisations. The CML Advocates Network website was then set up in 2007 to keep the international networking going also after the annual meetings, as well as to bridge geographical distances between patient leaders.

The network was initiated by four patient groups from Germany, UK, Czech Republic and Israel, facilitated by an unrestricted grant from Novartis. It is run independently by CML patients and hosted by the patient-run Leukemia Patient Advocates Foundation. The website has turned out to be a very powerful tool to support patient leaders around the world, to provide a knowledge base on CML advocacy, and to facilitate best practice sharing.

We welcome members from all CML patient group organizations throughout the world to become part of the CML Advocates Network

Our Objectives

The four main objectives of the CML Advocates Network are:

The website does not intend to be a platform for public discussions. Hence interactive functionality is mainly being offered in a non-public, member-only area which is accessible by registered representatives of leukemia patient groups only. 

Our Team

The CML Advocates Network is run by the elected CML Steering Committee composed of six CML patient advocates representing the major regions of the world plus the three co-founders of the network. The management is supported by the Executive Director with our Programme Managers.

- The CML Steering Committee -

 

 
felice1
 
FELICE BOMBACI

Co-chairman of the CML Advocates Network. 

Chairman of the Gruppo AIL Pazienti Leucemia Mieloide Cronica, Italy.

Region Western Europe Representative

 

 

 

Sarunas Narbutas
 
SARUNAS NARBUTAS

Co-chairman of the CML Advocates Network. 

Lithuanian Cancer Patient Coalition (POLA).

Region Central and Eastern Europe & West Asia Representative.

 

 

 

jana low

 

 

JANA PELOUCHOVÁ

Co-founder of the CML Advocates Network.

President of Diagnoza Leukemie, Czech Republic.

 

 

 

Giora web

 

 

GIORA SHARF

Co-founder of the CML Advocates Network.

Director of Flute of Light, Israel.

 

 

 

JAN Low

 

 

JAN GEISSLER

Co-founder of the CML Advocates Network.

Chair of LeukaNET, Germany

 

 

   

 

 

lisa2 

 

 

LISA MACHADO

Treasurer of the CML Advocates Network

Canadian CML Network Executive Director, Canada.

Region North America Representative.

 

 

Bahija Low

 

 

 

BAHIJA GOUIMI

President of the Association AMAL, Morocco.

Region Middle East & Africa Representative.

 

 

 

 

jose3 

 

JOSÉ CASTRO

Fundraiser, Legal and Scientific Affairs of AGALEMO, Asociación Amalia y Glenn Dewey para Pacientes con Leucemia y Mieloma, Costa Rica.

Region Latin America Representative.

 

 

ROD Low 

 

ROD PADUA

President of Touched By Max, Philippines.

Region Asia-Pacific Representative.

 

 

 

 

 

 - The team -

Denis webpage 1

 

 

DENIS COSTELLO

Executive Director of the CML Advocates Network

denis@cmladvocates.net

 

 

 

 

Celia

 

 

CELIA MARÍN

Head of Communications and Programme Manager of the CML Advocates Network

celia@cmladvocates.net

 

 

 

 

lidija 3

 

 

LIDIJA PECOVA

Head of Member Relations, Events and Programme Manager of the CML Advocates Network

lidija@cmladvocates.net

 

 

 

Our Audience

Visitors of the website are

  • Patient advocates leading leukemia support groups, aiming to get in touch with other national groups, and to share experience in advocacy in the member area
  • Patients and their relatives to locate support groups, e.g. in their home country or in other countries
  • Health professionals and carers who are interested in key issues of the CML patient community.

The website does not aim to provide information to medical professionals. Hence, the website is provided in plain, patient-friendly language, and is hesitant in using medical terms.

Features for members

Most of the website's content, including news from the network, the CML glossary, the CML trial registry and CML-related information are openly accessible.

The member area is only accessible to registered members and requires a login. A login account can be provided by the moderators of the website after registration. The moderators will then check whether the applicant is representing a leukemia patient organization.

Access to the member-only area is only granted leaders of patient organizations, not to individual patients or non-patient stakeholders. The reason is that the main goal of the network is to link up patient advocates and to facilitate best practice sharing in CML advocacy. However, we invite individual patients to use our website to search for a local patient organization in their country.

The following functionality is available to registered members:

  • Discussion forums, with subforums e.g. on advocacy, on how to set up patient websites, what activities the groups have, share their successes and failures that they encounter, so all the others can learn from these experiences, etc.
  • Download area for files, e.g. conference material.

Legal disclaimer

The maintainers of this website have no medical qualifications and the information contained on this site is not intended to replace expert medical advice that you may be given. We do our best to ensure that any information we publish is accurate and strongly advise that any decisions about your treatment should be made after discussions with your haematologist or other suitably qualified medical professional.

We are purely patient-run, non-profit and public interest. Talking to each other is always the best solution. Before taking any legal action against us for whatever reason, please contact us - we are very confident we can solve any issue in both interests without the need for any legal steps.

How to contact us

This website - and the CML Advocates Network - is formally hosted by the "Leukemia Patient Advocates Foundation", a global patient-led non-profit foundation registered in Switzerland. The foundation is connecting leukemia patient organizations on all continents to strengthen their advocacy work. Its mission is to improve the lives and survival of patients affected by leukemia as well as their relatives by supporting leaders in providing help and support.

You can get in touch with us at info@cmladvocates.net

You can also use the Contact us website. We're happy to receive your feedback or enquiry!

The formal responsibility of this website belongs to the following organisation:

lpaf-logo_200x_trans

Leukemia Patient Advocates Foundation
P.O.B. 453
CH-3000 Bern 7
Switzerland

The trustees of the Leukemia Patient Advocates Foundation are Jana Pelouchová (President), Giora Sharf (Treasurer), Jan Geissler (Vice President and Managing Director) and Erik Aerts.

Technology

The website was built on free software and is hosted and maintained on a low-cost basis. This was to make sure the website does not require significant funding after its initial set-up. The website was set up using the Open Source Software Joomla. We would like to thank the enthusiasm of those engaged in Open Source Software. This project would have never been possible without open source projects and their communities!

 

About Leukemia Patient Advocates Foundation

lpaf-logo 600x trans

The Leukemia Patient Advocates Foundation is a patient-led non-profit foundation in Switzerland. Its mission is to improve the lives & survival of patients affected by Leukemia. It is a platform for discussions & best practice sharing to Leukemia patient groups worldwide. The foundation collaborates with all stakeholders involved in research, policy, treatment and care. It also acts as a platform for patient organisations concentrating on educating, connecting and supporting patient group leaders.

The foundation acts as a legal platform for self-sustained patient advocacy networks: The CML Advocates Network (126 patient organisations in 93 countries), the MPN Advocates Network, the CLL Advocates Network and the Acute Leukemia Advocates Network (ALAN).

Vision and Mission of the Leukemia Patient Advocates Foundation

Our vision is a world in which all leukemia patients have access to the best treatment, care and support available.

Our mission is:

  • To improve the lives and survival rates of patients affected by leukemia, as well as their relatives, worldwide
  • To support patient leaders in providing help and support to leukemia patients and their relatives
  • To provide a platform for education and best practice sharing of leukemia patient groups worldwide
  • To collaborate with other stakeholders involved in research, treatment and care of leukemia patients

The Leukemia Patient Advocates Foundation hosts the global CML Advocates Network, MPN Advocates Network, CLL Advocates Network and the last one, the Acute Leukemia Advocates Network (ALAN).

CML Advocates Network

CML Advocates Network-logo-rectangle

Hosted by the Leukemia Patient Advocates Foundation, the global "CML Advocates Network" (https://cmladvocates.net) connects 126 patient organisations in 93 countries on all continents. The CML Advocates Network is a worldwide network designed and run by CML patients and carers who are registered patient group advocates and organisers.

The Leukemia Patient Advocates Foundation hosts the "CML Horizons" conference as the annual global leadership meeting that welcomes patient leaders from all world regions (https://www.cmladvocates.net/cmlhorizons). An elected "CML Horizons Steering Committee", as a steering committee (as defined in the foundation's statutes) within the Leukemia Patient Advocates Foundation, carries all responsibility to run the "CML Horizons" conferences. Following elections by the worldwide CML community in May 2019, the CML Horizons Steering Committee consists of the following nine members of which six are CML patients themselves, and which represent all major regions of the world.

  • Felice Bombaci (Italy, Western Europe region representative; Co-chairman of the CML Advocates Network)
  • Sarunas Narbutas (Lithuania, Central and Eastern Europe & West Asia region representative; Co-chairman of the CML Advocates Network)
  • Giora Sharf (Israel, co-founder of the CML Advocates Network)
  • Jan Geissler (Germany, co-founder of the CML Advocates Network)
  • Jana Pelouchová (Czech Republic, Co-founder of the CML Advocates Network)
  • Bahija Gouimi (Morocco, Middle East & Africa region representative)
  • Lisa Machado (Canada, North America region representative; Treasurer of the CML Advocates Network)
  • José Castro (Costa Rica, Latin America region representative)
  • Rod Padua (Philippines, Asia-Pacific region representative)

The management is supported by the Executive Director, Denis Costello with our Head of Communications and Programme Manager Celia Marín celia@cmladvocates.net and the Programme Manager Lidija Pecova lidija@cmladvocates.net

 

MPN Advocates Network

mpn-advocates-logoHosted by the Leukemia Patient Advocates Foundation, the global "MPN Advocates Network" (https://www.mpn-advocates.net) was founded by representatives from the Netherlands, Spain and the UK. The MPN Advocates Network's immediate goal is to increase the international scope of the organisation by contacting MPN patient groups in other countries and inviting them to become part of the network. The initial focus will be groups in Europe, but the intention is to be a worldwide organisation.

The MPN Advocates Network hosts the "MPN Horizons", the international conference for MPN patient advocacy leaders, works on educating patient advocates, building patient groups’ capacity, implementing advocacy initiatives with a real impact in the countries and finally enforcing cooperation in the global “MPN Advocates Network”.

A Steering Committee within the Leukemia Patient Advocates Foundation carries all responsibility to run the MPN Advocates Network. The members of the Steering Committee are:

  • Chairperson: Jon Mathias, London UK
  • Vice Chairperson: Peter Loffelhardt, Barcelona/Switzerland
  • Secretary/Treasurer: Cheryl Petruk, Canada
  • Giora Sharf, LePaf Representative, Israel
  • Felice Bombaci, Italy
  • Lexi Moore & Michelle Woehrle , USA
  • Mirjana Babamova, Macedonia
  • Robi Zelig, Israel
  • Werner Zinkand, Germany

Giora Sharf (Israel), as a trustee of the Leukemia Patient Advocates Foundation, supervises the finances of the MPN Advocates Network and its compliance with Swiss Regulatory requirements regarding the non-profit status.

For more information, please visit the MPN Advocates Network website

CLL Advocates Network

cllan-logo-500px

Hosted by the Leukemia Patient Advocates Foundation, the establishment of the CLL Advocates Network (CLLAN) (https://www.clladvocates.net) and commencement of the new network’s activities aims to ensure the successes seen in CML are replicated for CLL and common goals are shared. The CLL Advocates Network (CLLAN) was founded by representatives from Canada, Czech Republic, France, Israel, Portugal, UK and the United States. The CLL Advocates Network Steering Committee consists of the following 8 members, of which 3 are CLL patients and one a carer. The other members are CLL patient advocates:

  • Nick York, UK - Interim Chair
  • Pierre Aumont, France - Vice-Chair
  • Jana Pelouchova, LePAF Rep, Czech Rep. - Treasurer
  • Michael Rynne, Ireland - Communications Officer
  • Felice Bombaci, Italy
  • Brian Koffman, United States of America
  • Deborah Baker, Canada

The CLL Advocates Network’s immediate goals include connecting across the globe with CLL patient groups, CLL patient advocates and patient organisations supporting blood cancer patients including CLL.

The CLL Advocates Network hosts the "CLL Horizons", a unique opportunity for CLL patient organization representatives to meet and network, giving them the opportunity to discuss issues facing CLL patients and hopefully start to think about what they could do better to help CLL patients in their communities. 

Acute Leukemia Advocates Network  (ALAN)

ALANThe newest patient advocates network within the Leukemia Patient Advocates Foundation is the Acute Leukemia Advocates Network (ALAN)  (https://acuteleuk.org).

The ALAN is an independent global network of patient organisations representatives and patient organisations, dedicated to

  • changing outcomes of patients with acute leukemias by strengthening patient advocacy in that area by developing patient information and specific support for patients with acute leukemias and their carers in all countries; 
  • strengthening patient organisations by sharing best practices and providing toolkits in patient advocacy;
  • creating awareness about acute leukemias and how to better support leukemia patients; advocating for better treatment, care & access to healthcare services;
  • improving education for healthcare professionals serving leukemia patients as well as collaborating with other initiatives and stakeholders with similar goals.

Similar to the CML Advocates Network, MPN Advocates Network and CLL Advocates Network within the LePAF, the ALAN is not a network mainly targeting (english-language) patients and carers directly, but acts as a “network of organisations”. It aims to build capacity in the members of the network to deliver tailored services to acute leukemia patients and carers on the national level, while joining forces between organisations on the policy and research level across countries.

The first ALAN Steering Committee consists of the following patient advocates:

  • Zack Pemberton-Whiteley, Chair (UK)
  • Anita Waldmann (Germany)
  • Sophie Wintrich (UK)
  • Jan Geissler (Leukemia Patient Advocates Foundation representative)

Board of the Leukemia Patient Advocates Foundation

The foundation's statutes mandate the foundation board only with supervisory and financial management roles, while its statutory committees, as listed above, are fully self-governed, autonomous initiatives. Projects are run by the committees, not by the foundation board. Formally, the Leukemia Patient Advocates Foundation is represented by the following trustees of the Foundation:

  • Jana Pelouchová (President, Czech Republic)
  • Jan Geißler (Vice President and Managing Director, Germany)
  • Giora Sharf (Treasurer, Israel)
  • Erik Aerts (Board Member, Switzerland)

Registered Address & Contact Details

We are purely patient-run, non-profit and public interest, and we have no legal department. Talking to each other first is always the best solution. If you see a challenge for whatever reason, please contact us directly - we are very confident any issue can be solved.

Leukemia Patient Advocates Foundation
P.O.B. 453
CH-3000 Bern 7
Switzerland
Registration: Chamber of Commerce of Canton Bern, Switzerland – CH-036.7.052.001-2

Written correspondence is preferred to be sent to the following address:

LeukaNET e.V.
Am Rothenanger 1b
85521 Riemerling
Germany
Email: info@cmladvocates.net

 

 

 

Partners and Memberships

The CML Advocates Network, hosted by the Leukemia Patient Advocates Foundation, would like to thank its partners for their friendship and mutual support!

 

icmlf-150The CML Advocates Network collaborates very closely with the International CML Foundation. The iCMLf is a charitable foundation established by a group of hematologists with a strong interest in Chronic Myeloid Leukemia. The mission of the iCMLf is to improve the outcomes for patients with CML globally. It aims to foster and coordinate global clinical and research collaborations and to improve clinical practice and disease monitoring in CML. Scientific advisors and national representatives spanning over 30 countries provide guidance and advice to further the aims of the iCMLf. Read more here.


The logo-rare cancerCML Advocates Network is a founding member of Rare Cancers Europe. Rare Cancers Europe (RCE) has been established as a partnership of all stakeholders that work together to place the issue of rare cancers firmly on the policy agenda, to identify and promote appropriate solutions and to exchange best practice.

It campaigns to foster the creation of reference networks for the treatment of patients with rare cancers, to spread knowledge and good practice guidelines on rare cancers, and to address obstacles to patients’ access to appropriate therapies. Read more here.


The PatientPowerCML Advocates Network cooperates with Patient Power. Patient Power brings in-depth information to patients with cancer and chronic illness. Audio and video interviews, with transcripts, help patients make informed decisions in partnership with their medical team. Founded by patient advocate, medical journalist, author and cancer survivor Andrew Schorr, Patient Power goes far beyond basic health information. Patient-centric programs focus on delivering the most credible, authoritative and up-to-date health information. More than 2,000 on-demand programs feature leading medical experts, inspiring patients, unforgettable stories and actionable medical guidance on serious health concerns. Connect with Patient Power on Facebook, YouTube, Twitter and Vimeo, and view the entire library of audio and video interviews on CML at www.PatientPower.info.


LOGO Eurordis member RVBThe Leukemia Patient Advocates Foundation / CML Advocates Network is a member or EURORDIS.

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 900 rare disease patient organisations in over 70 countries. Read more here.


wecan logoWECAN, the Workgroup of European Cancer Patient Advocacy Networks is an informal network of leaders of cancer patient umbrella organisations active in Europe. Its mission is to act as a well-coordinated cancer patient community towards all stakeholders by building levels of trust, collaboration, alignment and mutual support between pan-European cancer patient umbrella organisation.

The CML Advocates Network is co-founder and member of WECAN since 2016. Read more here.


Lepaf gets the membership of the Rare Diseases International organisation, the global alliance of people living with a rare disease of all nationalities across all rare diseases, in 2020.

RDI logoAs a member of RDI all LEPAF networks, including the CML Advocates Network, can fully participate in all Rare Disease International activities and projects and be represented at key international institutions and forums through this umbrella organisation.
Rare Diseases International aims to bring all umbrella rare disease patient organisations in every country and all regional and international networks for every rare disease into one global community to speak with one voice.  Read more here

The CML Advocates Network is co-founder and member of WECAN since 2016. Read more here.


globalgenesThe CML Advocates Network is from 2020 member of the Global Genes RARE Foundation Alliance, a coalition of more than 600 rare disease members, providing networking opportunities and effective strategies, tools and resources to organisations. 

  Read more here


EuropeanCancer Logo Tag PositiveThe CML Advocates Network, as one of the networks of the Leukemia Patient Advocates Foundation, is a member of the Patient Advisory Committee run by the European Cancer Organisation.

The European Cancer Organisation aims to reduce the burden of cancer, improve outcomes and the quality of care for cancer patients, through multidisciplinarity and multiprofessionalism.

As the not-for-profit federation of member organisations working in cancer at a European level, the European Cancer Organisation convenes oncology professionals and patients to agree policy, advocate for positive change and speak up for the European cancer community.

  Read more here

 

 

Please donate!

Please support CML Advocates Network / The Leukemia Patient Advocates Foundation

The Leukemia Patient Advocates Foundation, registered as a not-for-profit foundation in Switzerland, welcomes your donations to support its patient advocacy work. Your gift will be used to support our programs and initiatives.

Donations and Payments by Credit Card

We welcome donations by any credit card. Please use the Paypal "Donate" button below:

You do not need a PayPal account to make the payment via Credit Card - just click on "Don't have a PayPal account?" when the PayPal page opens.

Payment

Payment: International CML Book & Pins

Please settle the amount stated in your invoice by using the Paypal "Pay now" button below.

IMPORTANT NOTE: You can pay using any credit card. You do not need a PayPal account to make the payment via Credit Card - just click on "Pay with a debit or credit card" when the PayPal page opens.

Please note for administrative reasons, the payment will be processed by the German CML Patient Association Leukämie-Online e.V. (address leukaemie-online.de), given books and pins will be shipped and invoiced from Germany. 

About Us

What is the CML Advocates Network?

The CML Advocates Network is an active network specifically for leaders of Chronic Myeloid Leukemia (CML) patient groups, connecting 119 patient organisations in 89 countries on all continents. It was set-up and is run by CML patients and carers. Its aim is to facilitate and support best practice sharing among patient advocates across the world.

The idea to form the CML Advocates Network was first discussed in 2005 during the 4th International "New Horizons in Cancer" conference in Dublin for CML & GIST patient advocacy groups. Since their initiation in 2002, the "New Horizons" annual conferences have become a key networking event and a platform for best practice and knowledge sharing for CML and GIST patient groups from all five continents. Presentations by expert clinicians, medical professionals and patient group organizers enable the sharing of the most up to date clinical information, of best practice in patient advocacy as well as of hands-on experience, e.g. and on how to run patient advocacy organisations. The CML Advocates Network website was then set up in 2007 to keep the international networking going also after the annual meetings, as well as to bridge geographical distances between patient leaders.

The network was initiated by four patient groups from Germany, UK, Czech Republic and Israel, facilitated by an unrestricted grant from Novartis. It is run independently by CML patients and hosted by the patient-run Leukemia Patient Advocates Foundation. The website has turned out to be a very powerful tool to support patient leaders around the world, to provide a knowledge base on CML advocacy, and to facilitate best practice sharing.

We welcome members from all CML patient group organizations throughout the world to become part of the CML Advocates Network!

Objectives

The four main objectives of the "CML Advocates Network" are:

The website does not intend to be a platform for public discussions. Hence interactive functionality is mainly being offered in a non-public, member-only area which is accessible by registered representatives of leukemia patient groups only.

Governance

The CML Advocates Network is being coordinated by three founders of the network:

Giora Sharf Co-founder

Giora Sharf, CML patients organization, Israel
(& co-founder CML Advocates Network)

jangeissler-rectangle-small

Jan Geissler, LeukaNET e.V., Germany
(& co-founder CML Advocates Network)

Jana Pelouchova

Jana Pelouchová, Diagnoza CML, Czech Republic
(& co-founder CML Advocates Network)

 

Management 

The CML Advocates Network is being run by Leukemia Patient Advocates Foundation management team:

 Lidija

Lidija Pecova, Programme Manager
(Based in The Republic of Macedonia)

email: lidija@lepaf.org 

 foto celia marin  

Celia Marin, Programme Manager
(Based in Spain)

email: celia@lepaf.org

 

The network is supported by the elected "CML Horizons Steering Committee" representing the six major regions of the world.

The CML Horizons Steering Committee 2018-2019 was elected in May 2017 and consists of the following elected representatives:

 Gail Sperling North America

Gail Sperling, The Leukemia & Lymphoma Society, USA
(Region North America)

 Bahija Gouimi

Bahija Gouimi, Association AMAL, Morocco
(Region Middle East & Africa, temporary)

 Zack at CML Horizons 2017

Zack Pemberton-Whiteley, Leukaemia CARE, United Kingdom
(Region Western Europe)

Mercedes Arteaga

Mercedes Arteaga, The Max Foundation, Argentina
(Region Latin America)

 Rod Padua Asia Pacific sm

Rod Padua, Touched By Max, Philippines
(Region Asia-Pacific)

Sarunas Narbutas

Šarūnas Narbutas, Lithuanian Cancer Patient Coalition (POLA), Lithuania
(Region Central and Eastern Europe & West Asia)

Audience

Visitors of the website are

  • Patient advocates leading leukemia support groups, aiming to get in touch with other national groups, and to share experience in advocacy in the member area
  • Patients and their relatives to locate support groups, e.g. in their home country or in other countries
  • Health professionals and carers who are interested in key issues of the CML patient community.

The website does not aim to provide information to medical professionals. Hence, the website is provided in plain, patient-friendly language, and is hesitant in using medical terms.

Features for members

Most of the website's content, including news from the network, the CML glossary, the CML trial registry and CML-related information are openly accessible.

The member area is only accessible to registered members and requires a login. A login account can be provided by the moderators of the website after a registration. The moderators will then check whether the applicant is representing a leukemia patient organization.

Access to the member-only area is only granted leaders of patient organizations, not to individual patients or non-patient stakeholders. The reason is that the main goal of the network is to link up patient advocates and to facilitate best practice sharing in CML advocacy. However, we invite individual patients to use our website to search for a local patient organization in their country.

The following functionality is available to registered members:

  • Discussion forums, with subforums e.g. on advocacy, on how to set up patient websites, what activities the groups have, share their successes and failures that they encounter, so all the others can learn from these experiences, etc.
  • Download area for files, e.g. conference material.

Legal disclaimer

The maintainers of this website have no medical qualifications and the information contained on this site is not intended to replace expert medical advice that you may be given. We do our best to ensure that any information we publish is accurate and strongly advise that any decisions about your treatment should be made after discussions with your haematologist or other suitably qualified medical professional.

We are purely patient-run, non-profit and public interest. Talking to each other is always the best solution. Before taking any legal action against us for whatever reason, please contact us - we are very confident we can solve any issue in both interests without the need for any legal steps.

How to contact us

This website - and the CML Advocates Network - is formally hosted by the "Leukemia Patient Advocates Foundation", a global patient-led non-profit foundation registered in Switzerland. The foundation is connecting leukemia patient organizations on all continents to strengthen their advocacy work. Its mission is to improve the lives and survival of patients affected by leukemia as well as their relatives by supporting leaders in providing help and support.

You can get in touch with us at info@cmladvocates.net or you can contact one of our Programme Managers: Lidija lidija@lepaf.org or Celia celia@lepaf.org 

You can also use the Contact us website. We're happy to receive your feedback or enquiry!

The formal responsibility of this website belongs to the following organisation:

lpaf-logo_200x_trans

Leukemia Patient Advocates Foundation
P.O.B. 453
CH-3000 Bern 7
Switzerland

The trustees of the Leukemia Patient Advocates Foundation are Jana Pelouchová (President), Giora Sharf (Treasurer), Jan Geissler (Vice President and Managing Director) and Erik Aerts.

Technology

The website was built on free software and is hosted and maintained on a low-cost basis. This was to make sure the website does not require significant funding after its initial set-up. The website was set up using the Open Source Software Joomla. We would like to thank the enthusiasm of those engaged in Open Source Software. This project would have never been possible without open source projects and their communities!

Please donate!

Please donate!

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