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CML Horizons 2017 - Learn. Share. Grow: Presentations, Photo Gallery and Web streams now available!

 

CML-Logotip-Frankfurt-2017-1

 

CML Advocacy: Learn. Share. Grow. 

26-28 May 2017, Frankfurt, Germany

 

During the annual CML Horizons Conference on 26 to 28 May 2017 the CML Advocates Network welcomed 100 delegates (among them 24 newcomers) supporting patients and families affected by Chronic Myeloid Leukemia (CML) to Frankfurt, Germany. Delegates from around the world (Europe, North America, Asia, Africa, Middle East and Latin America) came to Frankfurt to learn from experts both medical and patient advocates on the latest information about CML, share best practises in patient advocacy in order to grow their organisations in their own countries and give back to their own communities. We also featured a poster board where our members were able to present some of their activities that they have had during the year. In addition to this our members had the opportunity to submit abstracts and feature in our “best Practice session” on a successful activity they had on their own country. Furthermore, at this year's conference a new CML Horizons Steering Committee was elected. 

CML Horizons is a wholly community-run and multi-sponsored conference, which has evolved from the "New Horizons" conferences 2002-2011. The annual conference is run by the CML Advocates Network, hosted by the non-profit, swiss-based and patient-driven "Leukemia Patient Advocates Foundation".

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Presentations, Photo Gallery and Videostreams are available now!

Click on "PDF" to see all presentations. If you wish to translate selected presentation, please contact Celia Marín at  and ask for the PowerPoint-file! This will make it easier for you to translate the presentation to the language of your choice.

Please note that the speakers have authorized CML Advocates Network only to provide the PDFs on this website, but it is not allowed to upload the PDFs somewhere else! So if you want to share the slides, please do this by linking to this page or the files on this site! 

To stream individual sessions, click on "Webstream" below. 

To check out the CML Horizons 2017 Photo Gallery, click HERE

 

Read more ...

CML Horizons 2018: Video Streams Gallery

CML Logotip Warsaw 2018 1

  

CML Horizons 2018 Video Streams Gallery 

 

DAY 1 - FRIDAY, 4 May 2018

Here you will find the video web streams of all CML Horizons 2018 sessions of DAY 1 (Friday).

Click on the play button to see and hear the presentation. Once the video plays, you can also click on the "full screen" button to improve readability of the slides. 

 


 

Welcome to Warsaw and to CML Horizons 2018

Jana Pelouchová and Giora Sharf (co-founders of the CML Advocates Network) and Euzebiusz Jan Dziwinski (Vice President of the Nationwide Association for CML Patients Aid) 

 


 

Update on the CML Advocates Network

Jana Pelouchova and Giora Sharf (co-founders of the CML Advocates Network)

 

 

 


Tribute to Ferdinand Mwangura 

Hrim Amal (AMAL General Secretary)

  

 


CML 301 – Introduction into CML, science and data

Šarūnas Narbutas (CML Advocates Network Steering Committee - Region Central and Eastern Europe & West Asia representative)  and Jan Geissler (co-founder of the CML Advocates Network)

 


 

Medical #1: CML Management in Countries with Access Challenges  


CML Horizons 2018 FRI12 Access to treatment (Eastern Europe) from CML Advocates Network on Vimeo.

 


CML Horizons 2018. FRI12 Access to monitoring (Africa) from CML Advocates Network on Vimeo.

 

 

CML Horizons 2018 FRI12 TFR in low and middle-income countries (Asia) from CML Advocates Network on Vimeo.

 

 


Advocacy #1: Improving the communication with patients

CML Horizons 2018. FRI13 Advocacy 1 Improving the communication with patients. Cristian Neves. Roleplay with Gail Sperling, Giantonio Rosti and Erin Schwarz.

CML Horizons 2018. FRI13Advocacy 1 Improving the communication with patients from CML Advocates Network on Vimeo.

 

 

CML Horizons 2018. FRI13 Managing anxiety from CML Advocates Network on Vimeo.

 

CML Horizons 2018 FRI13 Talking to teenage patients from CML Advocates Network on Vimeo.

 

CML Horizons 2018 FRI13 Empowering the caregivers from CML Advocates Network on Vimeo.

 

 


Regional report

CML Horizons 2018. FRI14 Regional report from CML Advocates Network on Vimeo.

 

 


DAY 2 - SATURDAY, 5 May 2018

Here you will find the video web streams of all CML Horizons 2018 sessions of DAY 2 (Saturday).

 

Advocacy #2: Evidence Based Advocacy 1 - Generating the evidence

CML Horizons 2018 SAT09 Barking up the right tree on access, policy & research. from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT09 Doing surveys: The Leukaemia Care Patient Experience Survey from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT09 Social Media-based data Facebook Group example from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT09 Patient-Reported Outcome Measures from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT10.5 Doing Focus Groups. Max Foundation Focus Group on PCR. Cathy Scheepers from CML Advocates Network on Vimeo.

 

 


 

Medical #2: First-line decision making

 

CML Horizons 2018 SAT11 Did the introduction of generics change clinical decisions in first-line therapy from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT11 Update on Treatment Guidelines from CML Advocates Network on Vimeo.

 


 

Medical #3: Side Effect Management

CML Horizons 2018 SAT11 Long-term side effects of TKIs from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT11 Collaboration of cardiologists and hematologists from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT11 Side effect management Nurse experience. from CML Advocates Network on Vimeo.

 


 

Advocacy #3: Stopping CML treatment - clinical data, bad practice, patient information

CML Horizons 2018 SAT12 Clinical update on TFR studies from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT12 Bad Practice examples from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT12 Informing patients about TFR from CML Advocates Network on Vimeo.

 

 


DAY 3 - SUNDAY, 5 May 2018

Here you will find the video web streams of all CML Horizons 2018 sessions of DAY 3 (Sunday).

 

Medical #4: New Agents / New Regimens

CML Horizons 2018. SUN09 ABL001 Ascitinib trials. from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SUN09: Is there any evidence to use lower TKI doses from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SUN09 How will therapeutic landscape in CML change in next 5 years in your region? from CML Advocates Network on Vimeo.

 


Advocacy #4: Evidence based advocacy 2 - Using the evidence (Theory & Examples)

CML Horizons 2018 SUN10 Influencing industry from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SUN10 Influencing regulators and HTA from CML Advocates Network on Vimeo.

 


CML Horizons 2018 SUN10 Influencing scientists and clinicians from CML Advocates Network on Vimeo.

 


Best Poster Award, closing and farewell

CML Horizons 2018 SUN11 Best poster award. Closing and farewell from CML Advocates Network on Vimeo.

 

 

 

 

 

 

 

 

 

 

 

CML Horizons 2018 - Preliminary Program

CML Logotip Warsaw 2018 2

 

Register here - Preliminary Program - Conference feeScholarship Application
- Call for Poster Presentation Abstracts - Travel - Visas - Venue & Accommodation - Acknowledgements 

 

Preliminary Programme of CML Horizons 2018

Friday 4th to Sunday 6th May 2018

mATRIX 2018

Faculty - TBC

Overall contact and programme coordination

  • Please contact  Lidija Pecova Tel: +389 7838 8235, or Jan Geissler   or Giora Sharf should you need any clarification about the conference programme.

 

CML Horizons 2018 - Call for Poster Presentation Abstracts

CML Logotip Warsaw 2018 2

 

Register here - Preliminary Program - Conference feeScholarship Application
- Call for Poster Presentation Abstracts - Travel - Visas - Venue & Accommodation - Acknowledgements 

 

Call for CML Advocacy Best Practice Poster Presentation Abstracts

This year's conference will include special poster session that will be held on Saturday 5th May at 17:00 to 18:00. We are inviting Horizon Participants to submit an abstract for poster presentation.
Poster presentations, are a great opportunity to interact with other CML Patient Organisations and showcase your organisation on a worldwide platform and share your activities and/or best practices.

The CML Advocacy Poster Area is a separate area inside the venue where CML Horizons 2018 participants can display a paper poster illustrating their CML patient advocacy activities, projects and outcomes. Posters will remain displayed throughout the conference in this allocated area. During CML Horizons conference, your poster will be shown and accessible by all conference participants and on Saturday 5th May we have a dedicated Poster Presentation session. This will require the delegate who has the poster to verbally present and talk through your project/activity/best practice. Please be sure to read through the attached Template & Guideline for Best Practice Poster Presentation Abstracts.

The aim of the Poster Presentation is to provide participants with the opportunity to share their key activities and learn from the initiatives and experience of other CML organisations from around the world in CML advocacy.

Win the Best Poster Award!

During the conference, there will be an opportunity to vote (once only per organisation) for the best poster and we will announce the winners on Sunday, 6th May.
So, we invite you to bring your poster to the conference and interact with the other delegates and illustrate your organisation. We will not be able to print the poster on spot, so bring your printed posters with you, please.

This is a great way to showcase your organization on a worldwide platform and share your activities.

How can I submit a poster?

It’s very simple participants who would like to display and present a poster in the CML Advocacy Poster Area are invited to create a poster using the template and guidelines below. Participants can use this poster template or can have their own design.

Be as creative as you like!

Here is the template and the guideline for presenting and creating a poster:

Template & Guideline for Best Practice Poster Presentation Abstracts.

 

 

CML Horizons 2018 - Visas

CML Logotip Warsaw 2018 2

 

Register here - Preliminary Program - Conference feeScholarship Application
- Call for Poster Presentation Abstracts - Travel - Visas - Venue & Accommodation - Acknowledgements 

 

USEFUL TIPS FOR OBTAINING A VISA TO POLAND 

Poland is a member of the European Union. A Schengen-visa is required to enter the country.

Though we are doing our best to accelerate the approval of all visa, please do;

  1. not wait any longer and start applying for your visa NOW (all in all, obtaining a visa for Poland can take up to 90 days).
  2. make sure that you have valid travel documents!

In this PDF documentyou will find helpful advice and tips to guide you all the way through the visa application process. Please read the document carefully!

On the official website of the https://www.schengenvisainfo.com/poland-visa/ you will find all relevant information on the requirement of a visa. The website answers important questions such as:

-        Do I need a visa to enter Poland

-        How to apply for a visa?

-        Where do I find visa application forms and where do I apply?

 

Please remember that most of your questions can be answered at the Polish Embassy in your country or another Embassy that represents Poland. 

We wish you well with your visa-application! If you need any help, please do not hesitate to contact Lidija from our management team via email 

 

Thank you.

Giora, Jan & Lidija

CML Advocates Network

 

 

CML Horizons 2018 - Scholarships

CML Logotip Warsaw 2018 2

 

Register here - Preliminary Program - Conference feeScholarship Application
- Call for Poster Presentation Abstracts - Travel - Visas - Venue & Accommodation - Acknowledgements 

 

Application for Scholarship / Conference Grant

CML Horizons 2018 will take place in Warsaw, Poland. All participants are expected to cover their own travel costs to Warsaw and to pay the conference fee which covers accommodation, local transportation from airport and back, food, drinks and the cost of the conference.

We encourage everyone to seek sponsors in early 2018 to cover the travel and conference costs. However, we acknowledge that not everybody is able to find an organisation or sponsor to participate in CML Horizons 2018.

Therefore, a limited number of 25 scholarships, full or partial, are available for patient advocates who are interested in attending the conference and who cannot find sponsors for their attendance. Applications for these scholarships are invited from interested advocates. Those that are granted will receive an economy class return ticket to Warsaw and will not need to pay the conference fee.

Eligibility criteria

To be eligible for a scholarship, candidates should:

  • Be a staff member or volunteer of an established CML patient organization that is a member of CML Advocates Network,
  • Be in a country where a local sponsor is unavailable to support attendance at the conference OR be an individual who is in the process of setting up a CML patient organization where regulations prohibit local sponsoring his/her attendance at the conference.
  • Hold a position where they can shape ongoing advocacy activities and initiate new ones
  • Be proficient in English
  • Preference will be given to applicants coming from countries with limited resources.

Scholarship types

We are offering two different types of scholarships, which will be given according to the needs of each applicant.

  • Full scholarship: This scholarship will cover both the flight costs and an exemption from the conference fee.
  • Partial scholarship: This scholarship will cover either the flight costs or the conference fee. 

Application procedure

Interested advocates should submit an application with the attached application form by 1st March 2018. Please email your application to Vanja at email:

The CML Horizons Steering Committee members will review and prioritize all applications received. Applicants will be informed whether they will receive a grant and whether it is a full or partial grant, As soon as possible. According to our policy, there is a maximum of 1 scholarship per patients organization.

 

 

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