Register here - Preliminary Program - Conference fee -  Scholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

Venue and Accommodation for CML Horizons 2019

City of Lisbon

Lisbon is located on 7 hills situated near the Tagus river a historical city full of stories to tell, where the sun shines 290 days a year and the temperature rarely drops below 15.C. Lisbon the capital of Portugal has a unique beauty and shows multiple contrasts between the historical and modern, combining different cultures, trends and lifestyles. Landmarks such as the Medieval Castle of St. George, Medieval Cathedral, Belem Tower, Jeronimos Monastery, National Pantheon, Palace Square and the Downtown are some of the Lisbon city highlights that charms people from around the world.

Conference venue: Lisbon Marriott Hotel  

Address: Avenida dos Combatentes 45, Lisbon 1600-042 Portugal Telephone: +351 21 723 5400

https://www.marriott.com/hotels/travel/lispt-lisbon-marriott-hotel/?scid=bb1a189a-fec3-4d19-a255-54ba596febe2

Lisbon City Tour on Sunday

The city centre was destroyed by an earthquake in 1755 but was rebuilt by the marquês de Pombal. This seagirt city of multicoloured houses and elegant parks and gardens has been reconstructed as a bustling modern metropolis. In fact, Lisbon was designated a European City of Culture in 1994. The general outlines of the city remain as they have for hundreds of years and is still a city of balconies and vistas. Some of the most striking of the latter can be seen from the miradouros, the terraces maintained by the municipality on seven of its hillsides.

For those interested, we will be offering an optional 3.5-hour tour on Sunday afternoon. This will not be an official part of the program, and those who will like to join this tour will need to register at the registration website or at the hospitality desk at the hotel.

For any questions regarding the conference, please contact Lidija Pecova (lidija@lepaf.org) +389 7838 8235 or Giora Sharf (giora1@inter.net.il) 

 Register here - Preliminary Program - Conference fee -  Scholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

Call for Posters: CML Advocacy Poster Area  at CML Horizons 2019

What is the CML Advocacy Poster Area?

The CML Advocacy Poster Area is a separate area inside the venue where CML Horizons 2019 participants can display a paper poster illustrating their CML patient advocacy activities, projects and outcomes.

During CML Horizons 2019  conference, your poster will be shown and accessible by all conference participants and shared throughout our social media channels.

The aim of the Poster Area is to provide participants with the opportunity to share their key activities and learn from the initiatives and experience of other CML organisations from around the world in CML advocacy.

Win the Best Poster Award!

During the conference, there will be an opportunity to vote (once only per organization) for the best poster and we will announce the winners on Sunday, 19th May. 

So, we invite you to bring your poster to the conference and please note that we will not be able to print the poster on spot, so bring your printed posters with you, please.

This is an amazing opportunity to showcase your organisations' yearly activity or a special project that made an impact for the CML Community in your country on a worldwide platform and share your activities.

How can I submit a poster?

Participants who would like to display a poster in the CML Advocacy Poster Area are invited to create a poster using the template and recommendations below. Participants can use this poster template or can have their own design.

Be creative!

You can be as creative as you like or you can use our poster guideline and template we have made for you. You can download this template HERE.

 Register here - Preliminary Program - Conference fee -  Scholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

Arrival and departure dates and times

Arrival date: Thursday 16th May or Friday 17th May 2019

• The official opening session will open at 09:00, to be on time for this session, your flight should arrive in Lisbon the latest by 07:00.
• Traveling from the airport to the hotel will take you at least 15 -20 minutes, depending on traffic. A shuttle service from the Airport to the hotel will be arranged (see below for details).

Departure date: Sunday, 19th May 2019

• Flights should not depart earlier than 16:30; in case you would like to participate in the City Tour, then the flights should not depart before 20:30

Visa

Please make sure that you have valid travel documents, please visit our page that explains Visas in detail.  

Travel of patient advocates

Regular advocates and Pharma sponsors are expected to book and cover their own travel to Lisbon International airport (e.g. flights).

A limited number of travel grants (scholarships) are available for some advocates who are unable to fund their own travel and the conference fee (see section on scholarships)

Transport from the airport to the conference venue will be provided for free.

After registration, please provide Vanja Muratovic from our logistics agency "Balkan-Adriatic " at email cml2019@balkan-adriatic.com with your travel details so we can arrange your local transport and accommodation accordingly. These details should be provided no later than 1 month before the meeting, or by April 17, 2019. 

Travel of Steering Committee members, receivers of scholarships, and speakers

We will book flights for Steering Committee members, those receiving a travel grant from us, and speakers. Please do not book your own travel in these cases. Please indicate your preferences for departure day and time, which origin airport, an airline, etc. in the respective fields of the registration form. Also, provide your preferred return day and time. The travel agency will try to book your flights according to your preferences, taking also into account costs as our non-profit organization has a very limited budget. Please do this as soon as possible - as it is important we get the best available rates as soon as possible - they increase every day closer to the conference.

Here are the contact details for All Tours travel agency:
Email: Booking@alltours.co.il 
Phone Office: +972 4867 0670 .
For emergencies: Avigail's mobile number +972 504 265 880 or Nimrod's Mobile: +972 504 265 878

For any of your travel queries please copy Giora Sharf at giora1@inter.net.il  

Travel of sponsors representatives 

Be aware that even though you need to book your own flights, we need your registration with flight details to be able to book your hotel room and arrange your transfers from the airport to the hotel and back.  

Questions?

Please contact Lidija Pecova lidija@lepaf.org  Tel: +389 7838 8235,  or Giora Sharf giora1@inter.net.il should you need assistance or see challenges in attending CML Horizons.

 Register here - Preliminary Program - Conference fee -  Scholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

Call for nominations for the upcoming elections of the CML Horizons Steering Committee

The CML Advocates Network is an active network of CML patient groups and presently connects 122 patient organizations in 92 countries across ALL continents.

Currently, the CML Steering Committee is composed of six CML patient advocate leaders representing the major regions of the world plus three CML Advocates Network Founders as permanent Steering Committee members. At a Steering Committee meeting held earlier this year, new guidelines and expectations were approved for the Steering Committee. The main change is that the steering committee is not only responsible for the organization of CML Horizons as it was until last year, but is now responsible for the management of the CML AN.

At the upcoming CML Horizons in Lisbon, Portugal, we will be holding elections for this newly-revised CML Steering Committee. The elected individuals will not only represent their respective regions but will also work to ensure the active involvement of their region in the many activities of the CML Advocates Network.
Specifically, this includes the following important Steering Committee activities:
• Contributing to the projects of the CML Advocates including CML Horizons, CML-CAB (Community Advisory Board)
• Actively representing the network in their region and proactively connect CML patient organisations to the global CML Advocates Network
• Agreeing to attend at least two face-to-face Steering Committee meetings per year
• Intending to participate in at least two (of approximately four) virtual teleconferences per year
• Contributing a minimum of 8 hours/month to work as a Steering Committee member
• Timely response to Steering Committee-related email communication

Please note the specific regions and terms. The terms will be discussed in more detail during the regional sessions at CML Horizons.
• North America (Term: May 2019 – May 2022)
• Central and Eastern Europe & West Asia (Term: May 2019 - May 2022)
• Middle East & Africa (Term: May 2019 – May 2021)
• Western Europe (Term: May 2019 – May 2021)
• Asia and Pacific (incl. Australia and New Zealand) (Term: May 2019 – May 2020)
• Latin America (Term: May 2019 – May 2020)

You can obtain the Nomination Form by clicking HERE. Nominations must be done by member organizations of the CML Advocates Network. Each organization may nominate only one person for a defined region. If you represent that organization, you may also nominate yourself. Interested individuals should carefully complete the attached nomination form and submit it to elections@cmladvocates.net by Thursday, May 9, 2019.
Nominees will need to be prepared to present themselves at the allocated time on Fridays Programme. All voting will occur within the Regional Meetings and the winners announced at the end of Saturday’s Programme.

We look forward to receiving your application and should you have questions about the terms or the new responsibilities please do not hesitate to contact Lidija lidija@lepaf.org or your current regional leader listed below.

Current CML Steering Committee 

• Giora Sharf (Israel/co-founder CML Advocates Network)
• Jan Geissler (Germany/co-founder CML Advocates Network)
• Jana Pelouchová (Czech Rep./co-founder CML Advocates Network)
• Gail Sperling (USA/North America)
• Bahija Gouimi (Morocco/Africa)
• Zack Pemberton-Whiteley (UK/Region Western Europe)
• Mercedes Arteaga, (Argentina/Latin America)
• Rod Padua (Philippines/Asia-Pacific)
• Šarūnas Narbutas (Lithuania/Central and Eastern Europe & West Asia)

CML Horizons 2018 Video Streams Gallery 

DAY 1 - FRIDAY, 4 May 2018

Here you will find the video web streams of all CML Horizons 2018 sessions of DAY 1 (Friday).

Click on the play button to see and hear the presentation. Once the video plays, you can also click on the "full screen" button to improve readability of the slides. 

Welcome to Warsaw and to CML Horizons 2018

Jana Pelouchová and Giora Sharf (co-founders of the CML Advocates Network) and Euzebiusz Jan Dziwinski (Vice President of the Nationwide Association for CML Patients Aid) 

Update on the CML Advocates Network

Jana Pelouchova and Giora Sharf (co-founders of the CML Advocates Network)

Tribute to Ferdinand Mwangura 

Hrim Amal (AMAL General Secretary)

CML 301 – Introduction into CML, science and data

Šarūnas Narbutas (CML Advocates Network Steering Committee - Region Central and Eastern Europe & West Asia representative)  and Jan Geissler (co-founder of the CML Advocates Network)

Medical #1: CML Management in Countries with Access Challenges  

CML Horizons 2018 FRI12 Access to treatment (Eastern Europe) from CML Advocates Network on Vimeo.

CML Horizons 2018. FRI12 Access to monitoring (Africa) from CML Advocates Network on Vimeo.

CML Horizons 2018 FRI12 TFR in low and middle-income countries (Asia) from CML Advocates Network on Vimeo.

Advocacy #1: Improving the communication with patients

CML Horizons 2018. FRI13 Advocacy 1 Improving the communication with patients. Cristian Neves. Roleplay with Gail Sperling, Giantonio Rosti and Erin Schwarz.

CML Horizons 2018. FRI13Advocacy 1 Improving the communication with patients from CML Advocates Network on Vimeo.

CML Horizons 2018. FRI13 Managing anxiety from CML Advocates Network on Vimeo.

CML Horizons 2018 FRI13 Talking to teenage patients from CML Advocates Network on Vimeo.

CML Horizons 2018 FRI13 Empowering the caregivers from CML Advocates Network on Vimeo.

Regional report

CML Horizons 2018. FRI14 Regional report from CML Advocates Network on Vimeo.

DAY 2 - SATURDAY, 5 May 2018

Here you will find the video web streams of all CML Horizons 2018 sessions of DAY 2 (Saturday).

Advocacy #2: Evidence Based Advocacy 1 - Generating the evidence

CML Horizons 2018 SAT09 Barking up the right tree on access, policy & research. from CML Advocates Network on Vimeo.

CML Horizons 2018 SAT09 Doing surveys: The Leukaemia Care Patient Experience Survey from CML Advocates Network on Vimeo.

CML Horizons 2018 SAT09 Social Media-based data Facebook Group example from CML Advocates Network on Vimeo.

CML Horizons 2018 SAT09 Patient-Reported Outcome Measures from CML Advocates Network on Vimeo.

CML Horizons 2018 SAT10.5 Doing Focus Groups. Max Foundation Focus Group on PCR. Cathy Scheepers from CML Advocates Network on Vimeo.

Medical #2: First-line decision making

CML Horizons 2018 SAT11 Did the introduction of generics change clinical decisions in first-line therapy from CML Advocates Network on Vimeo.

CML Horizons 2018 SAT11 Update on Treatment Guidelines from CML Advocates Network on Vimeo.

Medical #3: Side Effect Management

CML Horizons 2018 SAT11 Long-term side effects of TKIs from CML Advocates Network on Vimeo.

CML Horizons 2018 SAT11 Collaboration of cardiologists and hematologists from CML Advocates Network on Vimeo.

CML Horizons 2018 SAT11 Side effect management Nurse experience. from CML Advocates Network on Vimeo.

Advocacy #3: Stopping CML treatment - clinical data, bad practice, patient information

CML Horizons 2018 SAT12 Clinical update on TFR studies from CML Advocates Network on Vimeo.

CML Horizons 2018 SAT12 Bad Practice examples from CML Advocates Network on Vimeo.

CML Horizons 2018 SAT12 Informing patients about TFR from CML Advocates Network on Vimeo.

DAY 3 - SUNDAY, 5 May 2018

Here you will find the video web streams of all CML Horizons 2018 sessions of DAY 3 (Sunday).

Medical #4: New Agents / New Regimens

CML Horizons 2018. SUN09 ABL001 Ascitinib trials. from CML Advocates Network on Vimeo.

CML Horizons 2018 SUN09: Is there any evidence to use lower TKI doses from CML Advocates Network on Vimeo.

CML Horizons 2018 SUN09 How will therapeutic landscape in CML change in next 5 years in your region? from CML Advocates Network on Vimeo.

Advocacy #4: Evidence based advocacy 2 - Using the evidence (Theory & Examples)

CML Horizons 2018 SUN10 Influencing industry from CML Advocates Network on Vimeo.

CML Horizons 2018 SUN10 Influencing regulators and HTA from CML Advocates Network on Vimeo.

CML Horizons 2018 SUN10 Influencing scientists and clinicians from CML Advocates Network on Vimeo.

Best Poster Award, closing and farewell

CML Horizons 2018 SUN11 Best poster award. Closing and farewell from CML Advocates Network on Vimeo.

 Register here - Preliminary Program - Conference fee -  Scholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

Preliminary Programme of CML Horizons 2019

Friday 17th to Sunday 19th May 2019

Faculty - Dr. Francois Mahon, Dr. Gianantonio Rosti, Dr. Qian Jiang, Dr. Abinya and Dr. Benneh from Ghana. More speakers are expected to confirm soon.

Overall contact and programme coordination