The European Society for Blood and Marrow Transplantation is a collaborative peer network of professionals working, in centres and as individuals, in the field of clinical bone marrow transplantation and cellular therapy.
Every year, they hold the Annual Meeting as the most important event for research and education in the field of bone marrow transplantation and cellular therapy in Europe.
We are proud to announce that our Abstract titled “Chronic Myeloid Leukemia Access To Tyrosine Kinase Inhibitors And Polymerase Chain Reaction Testing. A Patient Advocacy Perspective From Central-Eastern Europe And West Asia Region. Jelena Čugurović, Šarūnas Narbutas, Jana Pelouchová, Denis Costello, Celia Marin.” has been accepted for poster presentation at the 48th Annual Meeting of the European Society for Blood and Marrow Transplantation (EBMT 2022) to be held as a hybrid event in Prague, Czech Republic from the 19th to the 23rd of March 2022.
Moreover, on Monday March 21, our co-founder Jana Pelouchová, President of the CML Patient Organisation of the Czech Republic, Diagnoza CML, and co-author if this Abstract will be participating as speaker at the session “Patient Advocacy: From gaps to bridges – The future of patient advocacy in Central and Eastern Europe” presenting “CZ patient Advocacy Experience – What is needed?”
Since 2007, EBMT organizes one day called “The Patient, Family and Donor Day”, with the aim of improving the communication between EBMT professionals and patients.
The Patient, Family and Donor Day will take place virtually on Saturday 19th March, 2022, and registration for this meeting is free.
Furthermore, EBMT is offering full congress registration to 30 patient Advocates.
If you are interested in attending the full EBMT Annual Meeting (March 19-23, 2022), in addition to Patient, Family and Donor Day, please, visit this website for more information about the agenda, registration and instructions to apply:
https://www.ebmt.org/annual-meeting/patient-family-donor-day
Patient, Family and Donor Day Agenda
This year, programme of the Patient, Family and Donor Day will be split in four virtual live sessions as follows:
Saturday, March 19, 09:50 – 11:15 PFD1 Patient, Family and Donor Day: Being the perfect match.
- Welcome.
- From donor to patient: Exploring the stem cell journeys.
- Motivations, experiences and perspectives of bone marrow donation.
- Donating to a Family Member: More than Just a Medical Procedure.
- Q&A
Saturday, March 19, 11:45 – 13:00 PFD2 Patient, Family and Donor Day: Living Beyond Bone Marrow Transplantation.
- After the stem cell transplant – dealing with fatigue.
- After care plan” for transplant survivors?
- Insurance and financial issues.
- Normal life after a bone marrow transplant: Finding meaning and moving on.
- Q&A
Saturday, March 19, 13:10 – 13:55 PFD3 Patient, Family and Donor Day: Lunch with Prof. Buchanan & Kate Washington – Special Lecture
- GVHD new approaches: Current status and future directions
- Latest CAR T cell therapy developments: new indications and progress in previous indications
- Improving the CAR-T therapy patient and carer experience
- Q&A
Saturday, March 19, 15:45 – 17:00 PFD5 Patient, Family and Donor Day: Registries matter
- Do we still need a bone marrow donor registry?
- Securing marrow registry diversity: overcoming cultural, religious and sexual orientation barriers.
- The EBMT registry: what happens to patients medical data, challenges and opportunities.
- Q&A
- Closing and farewell.
Celia Marín – Head of Communications – celia@cmladvocates.net
