USA: CML Busters Family Support Group of California
Contact address:
292 Palmer Street Apt C-1
Costa Mesa
Calif 92627
United States
Telephone: +17143193193
Website: https://www.cmlbf.org
Email: fsg@cmlbf.org
Facebook: https://www.facebook.com/CMLBF.org
Twitter: https://twitter.com/CMLBF_ORG
LinkedIn: https://www.linkedin.com/company/CMLBF
Instagram: https://www.instagram.com/cmlbusterfoundation/
Key contacts:
Joan W Clements - CEO/ VP Mission
Email: joan.clements@cmlbf.org
Phone: +17143193193
Gail M Sperling - Dir FSG Development
Email: gail.sperling@cmlbf.org
Phone: +18184265115
Brief description of organization:
CML Busters’ Family Support Groups are dedicated to assisting US CML patients, their families, and caregivers to improve the quality of life through their journeys with Support, Empowerment, and Hope.
Audience/Constituency:
Support groups (380 members US). Online groups (thousands - Global). - Jan 2021
TARGET: The underserved US CML population (120,000+) and their caregivers and families (450,000+).
Ways of communication with constituency:
Face-to-face and virtual support groups meeting (monthly, website, social media groups, social media platforms (FB, Twitter, Instagram, LinkedIn, YouTube), conferences, webinars, newsletter, emails, telephone, teleconferences, special events, meet-the-experts’ events, mailed updates, messenger updates, video messenger updates.
Organizational objectives and key programs:
Our organizational objectives are:
- Empower CML warriors, their families, and caregivers.
- Provide emotional support through the human connection via face-to-face and virtual monthly peer-to-peer discussions and first contact mentorship.
- Sharing personal experiences, acquired knowledge while living with CML, and providing mutual support are cornerstones of this program.
- Provide links to current, curated, and reliable CML information through social media outreach and access to the US CML population.
- Provide empowerment opportunities for Patient Leaders and Members through participation in: a.Blood cancer conferences (internationally and nationally). b.CML related patient surveys, advisory groups, and advocacy opportunities to represent the CML patient’s voice. c.Lectures, webinars and CML updates such as ASH, ASCO, ESH, CMLHZ, etc.
Our key programs are:
- US Peer-to-peer Support Groups;
- First contact new patient engagement;
- Key events: World CML Day (9-22), Caregiver Appreciation Day (FEB), Holiday Celebration of Life (Dec);
- FSG Leadership Training updates;
- Fund the Cure for CML fundraisers (giving back empowerment).
Board of Directors:
6
Year of establishment:
2013
Year of becoming a CML Member:
2016
Members:
250+
USA: The National CML Society

Canada: The Leukemia & Lymphoma Society of Canada
CONTACT INFORMATION:
804-2 Lansing Square
Toronto, Ontario
M2J 4P8
Canada
Telephone: +1 (416) 661-9541
Fax: +1 (416) 661-7799
http://www.lls.org/canada
KEY CONTACT:
Lucy Di Carlo, National Manager - Patient Education and Support
Lucy.DiCarlo@lls.org
BRIEF DESCRIPTION OF ORGANIZATION:
A non-profit organisation that raises funds to support patient services, research and education for Canadian patients, families and health professionals. Focused on blood cancers.
ORGANIZATIONAL OBJECTIVES:
- Our four Canadian Chapters have a patient Services Manager, whose role is
- assist patients, upon diagnosis, with essential information
- hold regular patient/family support groups
- link newly diagnosed patients with a survivor
- present educational seminars
- link patients with healthcare professionals, as needed
KEY INITIATIVES:
- Fundraise to support our structure and programs
- Review and fund best research grants in blood cancers in Canada
- Patient service programs (as stated above)
- Fund the new "Therapy Acceleration Program" in partnership with biotechnology sector and clinical trial sites
- Support studentships for blood cancer research projects at Canadian medical schools
NUMBER OF MEMBERS:
250-300 (July 2008)
Canada: CML ZERO CLUB
CONTACT INFORMATION:
67 Shoreham Avenue Ottawa, OntarioCanada
Telephone of organisation: +1-613-726-1117
Fax of organisation: +1-613-282-4801
E-Mail: zmiller@sympatico.ca