Ecuador: Fundación Bekämpa

Contact adress

De Los Pumas N3-55 y Casitahua.
Quito, Ecuador.
Tel: 593 984022318
 
Telephone: +593984022318

Email: fundacionfublec@yahoo.com
 

Key contact

Patricio Fabian Baca Castro -  General Coordinator
Email: pbacac007@hotmail.com
Phone: +593984022318

Gabriela de Los Angeles Valdivieso - Legal Attorney
Email: vpzo_gavo@hotmail.com 
Phone: +593984022318

Brief description of organization:

The organization is focused on the protection and defense of the rights to health, life, and legal security of both cancer patients and their families. 

Ways of communication with constituency

We usually communicate with calls to conventional numbers and cell phones, when it is an emergency or priority. However, daily communications are through WhatsApp platform chat.

Organizational objectives and key programs:

Our organizational objectives are:

  • Help patients to be able to activate and better manage their disease.
  • Seek help from foundations and government entities so that patients and their families can have a quality of life.
  • Make patients aware of the rights they have so that they can take effective actions such as access to medicines

Our key programs are:

  • Training activities such as seminars and conferences.
  • Nutrition courses
  • Delivery of food supplies (donations)
  • Accompaniment to patients and their families

Board of Directors:

4

Year of establishment:

2019

Year of becoming a CML Member:

2021

Members:

53

Venezuela: FUNDALMC - Fundación para la Asistencia al Paciente con Leucemia Mieloide Crónica

Read more ...

Uruguay: Asociación Uruguaya de Leucemia ASUL

Read more ...

Panama: Asociación Panameña de Pacientes y Parientes con Enfermedades Hematológicas APPPEH

Read more ...

Mexico: Asociacion Mexicana de Leucemia y GIST, A.C.

Contact address:

Callejon San Joaquin #11, Col. La Asuncion, Alcaldia Iztacalco
MExico City
Mexico City 8600
Mexico

Telephone: +525526213654

Email: info@ameleg.org.mx

Facebook: @AMELEG.ORG
Twitter: @AMELEGAC
Instagram: @AMELEG_AC

Key contacts:

Martin Rosales - President
Email:martin.rosales@ameleg.org.mx
Phone: +525526398485
Mobile:+525532018015

Reynaldo Esquivel - Secretary
Email: reynaldo.esquivel@ameleg.org.mx
Phone:+525513798057

Brief description of organization:

We are a group of patients and caregivers with the concern of getting to know better our diseases and the best treatments available, and working on guide newly diagnosed people with the process of acceptance, and searching for the best way to access treatment. Informing them about their Health Rights.

Audience/Constituency

People diagnosed with any type of blood cancer or GIST. Caregiver of any person diagnosed with any type of blood cancer or GIST.

Ways of communication with constituency

Through web page principally.
Through phone or WhatsApp.
The physician gave them our contact information.

Organizational objectives and key programs:

Our organizational objectives are:

  • Provide emotional and health rights support to people living with blood cancer and gist.
  • Get medication for blood cancer and gist for free or for a more accessible price.

Our key programs are:

  • Regional Ambassador: A person in every state of the country in touch with the local patients making sure the patient is getting the treatment at the hospital.
  • With an agreement with some Pharma, we can sell medication at a very much lower cost to patients.
  • REINVENTION, CONSCIOUSNESS, AND ACTION: making aware campaigns with all the general public about the importance of knowing blood cancer characteristics; Also explaining to the Health Department about the importance of getting the best treatment for the people diagnosed with blood cancer and GIST.

Board of Directors:

4

Year of establishment:

2008

Year of becoming a CML Member:

2019

Members:

+500

Bolivia: Celebrando la Vida. Asociación de Lucha Contra La Leucemia

Contact address:

Barrio 2 de febrero, calle San Andrés No. 21
Santa Cruz de la Sierra
Provincia Andrés Ibáñez 0
Bolivia

Telephone: +59170029100

Email: dabrenhw@hotmail.com

Facebook: https://www.facebook.com/celebrandolavidaScz

Key contacts:

Brenda Silvana Hurtado - Presidente
Email: dabrenhw@hotmail.com
Phone: +59170029100

Hilda Paz - Secretaria de Hacienda
Phone: +59170040116

Brief description of organization:

Non-for Profit Organization (NGO) representing patients of the CML (LMC) and families of patients affected, mainly in Santa Cruz Department, but including affected patients in the whole country of Bolivia - South America.
Mostly managed in Spanish also cover indigenous communities in the Highlands and Lowlands of Bolivia.

Organizational objectives and key programs:

Our organizational objectives are:

  • Support and companion to new and existing patients affected by the CML since the initial diagnostic of the disease.
  • Psychological and emotional support to the affected both patients and relatives.
  • Public Awareness and public campaigns about the CML and other kind of similar diseases.
  • Work in coordination and support with the Max Foundation in Bolivia.
  • Works in Public Health policies in support of the CML-affected communities and their relatives.
  • Social control of the CML supports health institutions, mainly governmental and the availability of medicines for the CML community; works with the Customs and Health authorities and also the medical, health community in support of all patients affected.
  • All others activities related to the CML and the people that live with this health condition.

Members

82 

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