CML Advocates Network

Contact address:

Avenida Mutualista, Calle 23, No 3025
Santa Cruz de la Sierra, SCZ, Bolivia

Phone +591 70029100

Website address: www.facebook.com/celebrandolavidaScz/
E-Mail:

Key contacts:

Brenda Hurtado Wills (President)
Hilda Paz Ribera (Secretary of Conseil)

Brief description of organisation:

Non-for Profit Organization (NGO) representing patients of the CML (LMC) and families of patients affected, mainly in Santa Cruz Department, but including affected patients in the whole country of Bolivia - South America.
Mostly managed in Spanish also cover indigenous communities in the Highlands and Lowlands of Bolivia.

Key objectives and key initiatives:

Our key objectives are:

• Support and companion to new and existing patients affected by the CML since the initial diagnostic of the disease.
• Psychological and emotional support to the affected both patients and relatives.
• Public Awareness and public campaigns about the CML and another kind of similar diseases.
• Work in coordination and support with the Max Foundation at Bolivia.
• Works in Public Health policies in support of the CML affected communities and their relatives.
• Social control of the CML support health institutions, mainly governmental and the availability of medicines for the CML community; works with the Customs and Health authorities and also the medical, health community in support of all patients affected.
• All others activities related to the CML and the people that live with this health condition.

Members

82 (February 2018)