CML Advocates Network

CONTACT INFORMATION:

ASUL

Bulevar España, 968 Código Postal 11300

Tel.: +59894520118
Fax: +59894520118

E-Mail: asul.uruguay@gmail.com
Web: 

KEY CONTACT:

Gabriel Tirelli, Secretary

BRIEF DESCRIPTION OF ORGANIZATION:

Founded in 2006 by CML patients ( Chronic Myeloid Leukemia ) and their families, achieving legal entity in 2007.

KEY OBJECTIVES AND INITIATIVES OF YOUR ORGANISATION

The key goals of our organization are:

-      To be there at the moment a patient is diagnosed

-      To facilitate the creation of the bond physician-patient

-      To keep the patients informed about their duties and rights

-      To create a relationship between the physicians and the members of the organization

-      To become known by new physicians

-      To participate in training

-      To advocate for patients, in tandem with health authorities and proposing different changes

-      To organize activities with physicians and patients

-      To create networks in all Latin America

-      We created the network of oncologic groups in Uruguay, Gabriel being the vice-president of this organization. We now have 12 departments.

-      We are plenary members of Alianza Latina.

-      We participate in training by The Max Foundation.

-      We are founders of the Latin-American Coalition of Blood Diseases

-      We participate in GAPFA | Global Alliance for Patient Access

NUMBER OF MEMBERS:

114 registered