Uruguay: Asociación Uruguaya de Leucemia ASUL
CONTACT INFORMATION:
ASUL
Bulevar España, 968 Código Postal 11300
Tel.: +59894520118
Fax: +59894520118
E-Mail: asul.uruguay@gmail.com
Web:
KEY CONTACT:
Gabriel Tirelli, Secretary
BRIEF DESCRIPTION OF ORGANIZATION:
Founded in 2006 by CML patients ( Chronic Myeloid Leukemia ) and their families, achieving legal entity in 2007.
KEY OBJECTIVES AND INITIATIVES OF YOUR ORGANISATION
The key goals of our organization are:
- To be there at the moment a patient is diagnosed
- To facilitate the creation of the bond physician-patient
- To keep the patients informed about their duties and rights
- To create a relationship between the physicians and the members of the organization
- To become known by new physicians
- To participate in training
- To advocate for patients, in tandem with health authorities and proposing different changes
- To organize activities with physicians and patients
- To create networks in all Latin America
- We created the network of oncologic groups in Uruguay, Gabriel being the vice-president of this organization. We now have 12 departments.
- We are plenary members of Alianza Latina.
- We participate in training by The Max Foundation.
- We are founders of the Latin-American Coalition of Blood Diseases
- We participate in GAPFA | Global Alliance for Patient Access
NUMBER OF MEMBERS:
114 registered