Madagascar: ASSOCIATION FANOMEZANA LMC
CONTACT INFORMATION:
KEY CONTACT:
ERIC RATSIMANDRESY, President.
BRIEF DESCRIPTION OF ORGANIZATION:
This organisation is founded between the adherents to the present statutes and it is registered officially.
KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION
This association aims to support individuals with CML and their families and aims to:
- to help and support new patients psychologically,
- to share everyone's experiences (diet, lifestyle, effects management....),
- undesirable treatment,
- to advise on the steps to follow to join the group,
- to seek financial resources to help those in need (as part of the confirmation of diagnosis: Philadelphia chromosome, in follow-up examinations),
- represent and defend the interests of patients with the Malagasy State, the various organizations and associations working in the field of health (monitoring and control, the evolution of the technology from the material point of view).
Number of members or patients organisation represents today
53 (as per September 2018).
Egypt: Power of CML
CONTACT INFORMATION:
Power of CML
Mohamed Mokhtar st, 218
El- Koba Gardens
Cairo- Egypt
Tel.: +2 01009700765
E-Mail: ahmedawad15@gmail.com ; yosrasalah25@gmail.com
Web: https://www.facebook.com/PowerofCML
KEY CONTACT:
Ahmed Awad, Founder of Power of CML.
Yousra Ibrahim, Power of CML team leader and Social Media Admin.
BRIEF DESCRIPTION OF ORGANIZATION:
Power of CML was established in June 2014 by Ahmed Awad inside Cansurvive NGO, then it became an independant initiative in Oct. 2015, and starting from 30th of July 2017 it became officialy affiliated Shabab Forsan NGO as responsible for CML patient groups support and awareness activities.
KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION
Our long-term goal is to enable CML patients to take part in the decision making process of health policies and strategies affecting them.
To achieve this goal, a lot of steps must be taken on three levels:
1. The patients and care givers: we organize supporting sessions, providing them with data, encouraging them to take part in different activities, and to follow up updated medical researches.
2. The society. We arrange awareness campaigns as well as continuous surveys to measure the effectiveness of the anti-stigma campaigns we manage, and above all advocating the patient rights.
3. The policy maker. We plan to contact the persons in charge to negociate patient’s problems and to suggest further solutions.
Number of members or patients organisation represents today
25 (July 2017)
Zimbabwe: CML ZIMBABWE
CONTACT INFORMATION:
P O BOX M249
MABELREIGN
HARARE
KEY CONTACT:
+263 772144766 Loretta Williams Deputy Chairperson
+263 712733719 Anesu Kadsande Chairperson
+263 773211957 Onward Mudindo Secretary
+263 77226691 Graham Macloed Treasurer
BRIEF DESCRIPTION OF ORGANIZATION:
Established in 2016 CML Zimbabwe is a non profit making organisation. After our official registration on the 4th March 2016 Reg. number MA0000198/2016 we held our official launch in October 2016, together with our first Maximize life campaign with countrywide television and press coverage our launch was a huge sucess, when 120 people joined us on our awareness march though the city streets.Representing over 140 CML & Gist patience we were finally able to speak with one voice and be heard. We have 2 Oncologists on our team.
KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION
To reduce Leukemia & GIST mortality rate in ZImbabwe through our main objectives :-
SUPPORT: Establish support system and counselling for CML and GIST patients, caregivers and survivors.
AWARENESS: To create training workshops and hold seminars with doctors, do our own research and disperse helpful information to patience and caregivers. Also making the public aware of CML.
INFORMATION: To establish a coalition to mobilize resources for Leukemia & GIST and advocating for health concerns to be mainstreamed in relevant government and non-government agencies.
Number of members or patients organisation represents today
140 (as per March 2017)
Senegal: A.G.I.L.
CONTACT INFORMATION:
30 Avenue, Pasteur Dakar Senegal
Tel.: 775201141
E-Mail: cmlsenegal@gmail.com
Web: www.agil.comli.com
KEY CONTACT:
Mr Abdoulayd Fofana
BRIEF DESCRIPTION OF ORGANIZATION:
This organization has for aim to help patients living with CML and GIST take help each other mentally and psychologically.
KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION
Support each other mentally and psychologically.
Lobbying to have assistance from the government for the monitoring of the disease.
Have access to the best care for this disease.
Inform the population about this disease.
Decrease the stjgmatization of the disease.
Number of members or patients organisation represents today
50
Algeria: Philadelphia LMC
CONTACT INFORMATION:
Cite1600 logements bloc135 appartement 5 khroub
025200 Constantine
Country
Algeria
Tef: 002132699100
Fax: 0021337860227
E-Mail: khaldounwahid@hotmail.com
Web: http://lmcalgeria.blogspot.com
KEY CONTACT:
Mr Khaldoun Wahid, Vice President
BRIEF DESCRIPTION OF ORGANIZATION:
Non-profit organization created in 2013 by and for CML patients what is the first and only CML patient’s association in Algeria.
KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION
Our goals
1-Patient’s support
2-Patient’s advocacy
3-Patient’s education
4-Reach the maximum number of patients on a national scale: Make a national project
Number of members or patients organisation represents today
153
Palestine: CML Palestine
CONTACT INFORMATION:
Al Adel Street, Awqaf building , First Floor, Palestine
KEY CONTACT:
Jamal Hurani, founder of CML palestine and current chairman
BRIEF DESCRIPTION OF ORGANIZATION:
CMl palestine was established for the purpose of serving the CML patients and to raise the knowledge about CML within the community.
The organization was registered recently and in the process of preparing initiatives
KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION
The main objetives are:
Providing help and advice for CML patients
Distributing knowledge about CML
Help in regards to drugs and lab tests provisions for patients
Coordination with CML societies localy and internationaly
Lobbying for the improvement of legislative environment regarding CML treatments
Number of members or patients organisation represents today
7
