Madagascar: ASSOCIATION FANOMEZANA LMC
Contact address:
Lot II L 67 bis Ankadivato
Antananarivo
Antananarivo 101
Madagascar
KEY CONTACT:
ERIC RATSIMANDRESY, President.
Brief description of organization:
This organization is founded between the adherents to the present statutes and it is registered officially.
Organizational objectives and key programs:
This association aims to support individuals with CML and their families and aims to:
- to help and support new patients psychologically,
- to share everyone's experiences (diet, lifestyle, effects management....),
- undesirable treatment,
- to advise on the steps to follow to join the group,
- to seek financial resources to help those in need (as part of the confirmation of diagnosis: Philadelphia chromosome, in follow-up examinations),
- represent and defend the interests of patients with the Malagasy State, the various organizations and associations working in the field of health (monitoring and control, the evolution of the technology from the material point of view).
Members:
51 - 100
Egypt: Power of CML
CONTACT INFORMATION:
Power of CML
Mohamed Mokhtar st, 218
El- Koba Gardens
Cairo- Egypt
Tel.: +2 01009700765
E-Mail: ahmedawad15@gmail.com ; yosrasalah25@gmail.com
Web: https://www.facebook.com/PowerofCML
KEY CONTACT:
Ahmed Awad, Founder of Power of CML.
Yousra Ibrahim, Power of CML team leader and Social Media Admin.
BRIEF DESCRIPTION OF ORGANIZATION:
Power of CML was established in June 2014 by Ahmed Awad inside Cansurvive NGO, then it became an independant initiative in Oct. 2015, and starting from 30th of July 2017 it became officialy affiliated Shabab Forsan NGO as responsible for CML patient groups support and awareness activities.
KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION
Our long-term goal is to enable CML patients to take part in the decision making process of health policies and strategies affecting them.
To achieve this goal, a lot of steps must be taken on three levels:
1. The patients and care givers: we organize supporting sessions, providing them with data, encouraging them to take part in different activities, and to follow up updated medical researches.
2. The society. We arrange awareness campaigns as well as continuous surveys to measure the effectiveness of the anti-stigma campaigns we manage, and above all advocating the patient rights.
3. The policy maker. We plan to contact the persons in charge to negociate patient’s problems and to suggest further solutions.
Number of members or patients organisation represents today
25 (July 2017)
Zimbabwe: CML ZIMBABWE
Contact address:
32 Burns Drive Malindela Bulawayo Zimbabwe
BULAWAYO
MATABELELAND NONE
ZIMBABWE
Telephone: +263772144766
Email: finance@fortwell.co.zw
Facebook: CML ZIMBABWE TRUST
Key contacts:
Mrs. LORETTA WILLIAMS - DEPUTY CHAIRPERSON/ACCOUNTANT
Email: finance@fortwell.co.zw
Phone: +263772144766
ANESU KATSANDE - CHAIR PERSON
Email: anesu2364@yahoo.com
Phone: +263782719471
Brief description of organization:
Established in 2016 CML Zimbabwe is a non-profit making organization. After our official registration on the 4th March 2016 Reg. number MA0000198/2016 we held our official launch in October 2016, together with our first Maximize life campaign with countrywide television and press coverage our launch was a huge success when 120 people joined us on our awareness march through the city streets. Representing over 140 CML & Gist patience we were finally able to speak with one voice and be heard. We have 2 Oncologists on our team.
Organizational objectives and key programs:
Our organizational objectives are:
- Education programs - Arrange patient caregivers and doctors to meet together to address patients' concerns and instill hope in newly diagnosed patients.
- Awareness campaigns - educate the public of CML and GIST and the benefits of early detection
- Fundraising events - to bring in the much needed proceeds to fund objectives 1 and 2.
Board of Directors:
4
Year of establishment:
2015
Year of becoming a CML Member:
2016
Members:
101 - 250
Senegal: A.G.I.L.
Contact address:
DAKAR
SENEGAL None
SENEGAL
Telephone: +22177454566
Email: panenediakhate@gmail.com
Facebook: AGIL du Sénégal
Key contacts:
Mouhamadou DIAKHATE - PRESIDENT
Email: panenediakhate@gmail.com
Phone: +221776454566
Saliou DIOP - GENERAL SECRETARY
Email: zalediops@gmail.com
Phone: +221778017158
Brief description of organization:
AGIL du SENEGAL was created in 2016 with the support of our physician. The first objective was to permit patients to express themselves through group therapy. Now, with more than 100 members, we want to facilitate access to the treatment especially the PCR Test.
Audience/Constituency
The patient's leukemia and their families.
Ways of communication with constituency
Particularly the meeting with the physician the patients and their families.
Organizational objectives and key programs:
Our organizational objectives are:
- Bring together all leukemia and gist patients from SENEGAL.
- Receive government assistance for prescribed treatment.
- Financial and psychological support for leukemia patients.
- Promote brotherhood between leukemia patients.
- Educate the population about Leukemia.
Our key programs are:
- Educate the population about Leukemia.
- Financially and psychological support to the LMC patients.
- Provide our Clinic with a GENE XPERT.
- Affiliate our association with the organization fighting cancer in SENEGAL for better visibility.
- Make free the PCR Test for all Patients LMC.
Board of Directors:
3
Year of establishment:
2016
Year of becoming a CML Member:
2017
Members:
51 - 100
Algeria: Philadelphia LMC
CONTACT INFORMATION:
Cite1600 logements bloc135 appartement 5 khroub
025200 Constantine
Country
Algeria
Tef: 002132699100
Fax: 0021337860227
E-Mail: khaldounwahid@hotmail.com
Web: http://lmcalgeria.blogspot.com
KEY CONTACT:
Mr Khaldoun Wahid, Vice President
BRIEF DESCRIPTION OF ORGANIZATION:
Non-profit organization created in 2013 by and for CML patients what is the first and only CML patient’s association in Algeria.
KEY OBJECTIVES AND KEY INITIATIVES OF ORGANISATION
Our goals
1-Patient’s support
2-Patient’s advocacy
3-Patient’s education
4-Reach the maximum number of patients on a national scale: Make a national project
Number of members or patients organisation represents today
153
Palestine: CML Palestine
Contact address:
Al Adel Street, Awqaf building , First Floor, Palestine
Telephone: +970599205019
Email: jamalhurani@gmail.com
Facebook: https://www.facebook.com/CMLPalestine/
Key contacts:
Jamal Hurani - Founder & Chairman
Email: jamalhurani@yahoo.com
Brief description of organization:
CMl palestine was established for the purpose of serving the CML patients and to raise the knowledge about CML within the community.
The organization was registered recently and in the process of preparing initiatives
Organizational objectives and key programs:
The main objectives are:
- Providing help and advice for CML patients
- Distributing knowledge about CML
- Help in regards to drugs and lab tests provisions for patients
- Coordination with CML societies localy and internationaly
- Lobbying for the improvement of legislative environment regarding CML treatments
Members:
7
