Today is World CML Day 2019. Play and Learn, Share, Grow with us!

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On the World CML Day 2019, the CML Advocates Network is launching an online QUIZ aimed at educating patients, their relatives and society in general about chronic myeloid leukemia as well as at increasing awareness about this disease.

Click on The 9/22 Quiz, start playing and share your score on social media to join the World CML Day awareness campaign!

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World CML Day 2019 events are starting worldwide!

 

 


 

 

Today, together, for a CML free world...

 

... is the motto for this year´s World CML Day campaign, which will take place in two days, Sunday, Sept 22!

 

The World CML Day 2019 campaign: "Today, together, for a CML free world."

In order to help you spread the message of awareness and strengthen your voice, the CML Advocates Network has developed World CML Day 2019 materials to make this day global and unique.

Feel free to download, adapt and share the posters, flyers, images and videos on your face to face meetings, websites and social media channels. Let's go to raise awareness on Chronic Myeloid Leukemia all together! 

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Welcome to EHA 2019 in Amsterdam, The Netherlands


eha24From June 13-16, 2019, the European Hematology Association holds the 24th EHA annual congress at RAI Amsterdam, The Netherlands. 

Address details RAI Amsterdam Europaplein 24, 1078 GZ Amsterdam, The Netherlands www.rai.nl/en

More than 10.000 hematologists coming from all over the world, patient organisations, patient advocates representing hematological diseases and other stakeholders will be attending this impressive meeting. Up to 60 free congress registrations were offered to patient advocates, including more than 20 advocates interested in CML, so we hope there will be strong patient attendance!

Click  "Read more" to see what has been offered specifically for patient advocates, haematologists and other stakeholders at #EHA24 this year.

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Welcome, Patients with chronic myeloid leukemia in Kyrgyzstan!

map 040419Now 122 patient organisations from 92 countries in the CML Advocates Network

We are proud to welcome a new member organisation to the CML Advocates Network: Patients with chronic myeloid leukemia in Kyrgyzstan.

The CML Advocates Network now totals at 122 member organisations in 92 countries worldwide!

Read more to see the list of CML groups in the Network on our world map.

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Welcome, ASUL, Uruguay!

map 2019Now 121 patient organisations from 91 countries in the CML Advocates Network

We are proud to welcome a new member organisation to the CML Advocates Network: Asociación Uruguaya de Leucemia ASUL,  based in Uruguay.

The CML Advocates Network now totals at 121 member organisations in 91 countries worldwide!

Read more to see the list of CML groups in the Network on our world map.

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CML Advocates Network with the Rare Disease Day 2019

Chronic Myeloid Leukemia is a Rare Disease

What a Rare Disease is? 

Rare_Disease_Day_2019_PosterAccording to the European Commission, any disease affecting fewer than 5 people in 10,000 in the EU is considered rare. Although this might appear small, it translates into approximately 246,000 people.

Most patients suffer from even rarer diseases affecting 1 person in 100,000 or more. Approximately 5,000-8,000 distinct rare diseases affect 6-8% of the EU population i.e. between 27 and 36 million people.

In the USA, a disease is defined as rare when it affects fewer than 200,000 Americans at any given time. 

The actual prevalence of rare diseases can vary between populations, making it difficult to provide a precise numerical definition

  • 80% of rare diseases have identified genetic origins whilst others are the result of infections (bacterial or viral), allergies and environmental causes, or are degenerative and proliferative.
  • 50% of rare diseases affect children.

Click here to check more information about Rare Diseases at Eurordis, Rare Diseases Europe.

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