CML Horizons 2020 Virtual - Call for Posters
Call for posters
This year your posters will be displayed virtually and within our conference platform. There will be a Poster Area where we will display an image of participants poster illustrating their CML patient advocacy activities, projects, and outcomes.
Call for submissions closed on 5th November. Thanks you very much for your participation!
Welcome, FUNDALMC from Venezuela!
We hereby proudly welcome a new member organisation in the CML Advocates Network:
FUNDALMC - Fundación para la Asistencia al Paciente con Leucemia Mieloide Crónica based in Venezuela.
World CML Day 2020: Today, together, more than ever. For a life without CML
Every 22nd September, the CML Advocates Network leads the World CML Day global awareness campaign. On this day, chronic myeloid leukemia (CML) patients across the globe come together to raise awareness about our needs to the general public, politicians, and medical professionals across the world.
Today, together, more than ever due to the COVID-19 pandemic, the CML patient advocates need to connect as a worldwide community through digital tools by developing online activities.
Two months ahead of 22nd September, today we launch the World CML Day campaign, encouraging CML patients and patient organisations, health care providers, collaborators and all CML friends to join the global movement under a powerful motto:
"Today, together, more than ever. For a life without CML"
EHA 2020 Congress: CML updates and tips to a virtual attendance
EHA25 VIRTUAL: 25th EHA Annual Congress: "Unfolding the future!”
Just a week left until the European Hematology Association's annual congress starts as a virtual meeting this year! We hope many patients of the hematology community and specifically CML patient advocates, will be attending this impressive meeting from June 11-21, 2020 that is going to be held online due to the COVID-19 global pandemic.
Facing new challenges to bring an online platform to attendees, EHA2020 is offering this year a program with new types of sessions and schedulings through "On-demand" and "Live sessions" such as plenary presentations, award lectures, the presidential symposium and Satellite Symposia and Updates-in-Hematology organized by pharmaceutical companies.
Read more to see what has been offered specifically for patient advocates, hematologists and other stakeholders at #EHA25Virtual this year:
Results of the TFR for CML patients' study published in Leukemia
Bern, Switzerland, 28th May 2020.
“The psychological well-being of CML patients should be a consideration of healthcare professionals and addressed at all stages of the treatment-free remission journey”
- CML Advocates Network, the global network connecting 125 CML patient organisations in 93 countries, has published a paper in the prestigious journal Leukemia, considered one of the leading journals in hematology and oncology.
- The study, the main author of which is Giora Sharf, himself a CML patient, has identified chronic myeloid leukemia (CML) patients’ unmet needs during the treatment-free remission (TFR) journey.
The results of the study published on the paper “Treatment-free remission in chronic myeloid leukemia: the patient perspective and areas of unmet needs" indicate that there are points in the TFR journey where patients do not always get all the advice, information or support they want around psychological issues and tyrosine kinase inhibitors (TKIs) withdrawal.
Welcome, ARCRare from Romania and HEMA from Macedonia!
We hereby proudly welcome two new member organisations in the CML Advocates Network:
Asociația Română de Cancere Rare/ Romanian Rare Cancers Association based in Romania and
HEMA-Association for support of patients and caregivers of Hematology diseases based in Macedonia.
The CML Advocates Network now counts a total of 125 member organisations in 93 countries worldwide! See the list of CML groups in the Network on our world map.
