CML Advocates Network statement supporting fellow members and patients in Ukraine.
The CML Advocates Network is an active network specifically for leaders of Chronic Myeloid Leukemia (CML) patient groups, connecting 128 patient organisations in 93 countries on all continents. It was set-up and is run by CML patients
In the light of recent geopolitical events in Ukraine we fully support our members and patients and families living with CML.
Following the recent COVID-19 pandemic during which care for so many patients living with cancer has undeniably suffered it is unfortunate that the recent series of events has ocurred and will certainly prolong the effects on those living with cancer and with CML in Ukraine.
As a patient-led global organisation it has always been our belief that disease has no borders and we have always working together both within CML and with the wider patient community to advance the voice of those who have been touched by disease and their families in order to highlight its effect on society.
We stand by our fellow members and patients in Ukraine and with wider global community in asking for common sense and diplomacy to prevail so that normal people living their lives can continue as such and in particular those who find themselves living with cancer and in our case CML can access the care and treatment that they fundamentally need.
As CML Advocates Network we stand by our members and their families and the wider medical community affected during these times.
ASH 2021 CML Conference Report
The 63rd ASH Annual Meeting and Exposition organised by the American Society of Hematology was presented at the Georgia World Congress Center in Atlanta, Georgia – and virtually – from December 11-14, 2021.
We have prepared a Conference Report in order to provide you the latest updates on the management of chronic myeloid leukemia and the most important highlights presented in this key meeting for the CML community.
Download the ASH 2021 Conference report by clicking on the image below:
Celia Marín - Head of Communications - celia@cmladvocates.net
EBMT 48th Annual Meeting and Patient, Family and Donor Day
The European Society for Blood and Marrow Transplantation is a collaborative peer network of professionals working, in centres and as individuals, in the field of clinical bone marrow transplantation and cellular therapy.
Every year, they hold the Annual Meeting as the most important event for research and education in the field of bone marrow transplantation and cellular therapy in Europe.
We are proud to announce that our Abstract titled “Chronic Myeloid Leukemia Access To Tyrosine Kinase Inhibitors And Polymerase Chain Reaction Testing. A Patient Advocacy Perspective From Central-Eastern Europe And West Asia Region. Jelena Čugurović, Šarūnas Narbutas, Jana Pelouchová, Denis Costello, Celia Marin.” has been accepted for poster presentation at the 48th Annual Meeting of the European Society for Blood and Marrow Transplantation (EBMT 2022) to be held as a hybrid event in Prague, Czech Republic from the 19th to the 23rd of March 2022.
CML Advocates Network Steering Committee 2021
We are excited to formally welcome and introduce the three new members of the CML Advocates Network Steering Committee 2021:
- Zack Pemberton-Whiteley, Chief Executive Officer of Leukaemia Care, United Kingdom. Region Western Europe Representative.
- Eunice Orekha, President of Max Care Foundation, Nigeria. Region Middle East & Africa Representative.
- Felipe Tapia, Vice President of Maxi Vida Association, Chile. Region Latin America Representative.
In Memoriam Professor Michele Baccarani
We have learnt with deep sadness the passing away of Professor Michele Baccarani on 20th December 2021.
Dr. Baccarani was an outstanding renowned doctor, a great scientist, an excellent hematologist and one of the most important leaders on chronic myeloid leukemia worldwide.
He dedicated his life to research against leukemia, making a significant contribution to change the natural history of this disease and impact on the quality of life of patients.
The CML Advocates Network on behalf of the global CML patients community all around the world, are profoundly grateful to him for his remarkable work on the benefit of CML patients, moreover for the support provided to the birth of our member organisation, AIL Group of CML patients in Italy.
It was a privilege and an honour for us to know him and learn from him.
We wish his family, friends and colleagues all the strength and wisdom they need in these difficult times.
Rest in peace.
In Memoriam of Euzebiusz Jan Dziwiński
To the memory of our dearly departed friend. We will miss you with all our hearts. We may have lost you but your spirit lives on long after you’re gone.
It is with deep sadness that we inform the CML community about the passing of our friend, colleague, and CML patient advocate Euzebiusz Jan Dziwiński on 5th December 2021, at the age of 71.
CML Advocates Network loses a close friend who was also a very active patient advocate and member of the CML family from the outset of the global network.
