It is with great sadness that we share that our friend, colleague, and CML patient advocate Trevor Steyn passed away on 9th November 2021 at the age of 63.

CML Advocates Network loses a friend, a CML patient for over 32 years and also a very active patient advocate, leading the CML patient organisation CML SA founded in 2013 to offer up-to-date information, emotional support and advocacy on behalf of all CML patients in South Africa.

Trevor was a very smart person, someone who was very outspoken at our network meetings with very well reflected questions, and such a wonderful and caring individual. In words of our colleague Bahija Gouimi from AMAL, Morocco, “We lost a devoted leader and a great friend. I will really miss you calling me my dear Sister. Know that you're unforgettable. I will really miss you. I send my prayers and support to Delphine, your amazing wife and your family during this difficult time.”

CML Horizons 2020: Learn. Share. Grow.

22 – 24 October 2021, Virtual Conference

CML Advocates Network (CML AN) initially planned to hold the 19th International CML Horizons 2021 as a Hybrid event from 22nd to 24th October of 2021 in Netanya, Israel, however, in light of the ever-evolving and unpredictability of COVID-19 and the various variants that are now posing a health risk globally, the Steering Committee decided to move to a fully virtual event for 2021 and keeping the same dates. 

2021 CML Horizons virtual event attracted high interest with close to 300 registrations from 74 countries from all corners of the world. The 19th Conference Programme consisted of 3 half days with 150 daily participants and from the daily feedback we were receiving from our members it showed that once again this virtual event was immensely successful.

Watch videos of all sessions on demand

The 63rd ASH Annual Meeting and Exposition organised by the American Society of Hematology will be presented at the Georgia World Congress Center in Atlanta, Georgia – and virtually – from December 11-14, 2021.

This year we will be attending this important meeting for the CML patient advocacy community to discover the newest advances in hematology, review many scientific abstracts highlighting updates on chronic myeloid leukemia and prepare a comprehensive report of of the most critical presentations on CML.

Read more about the agenda to be followed by the CML patient advocates. Please, note all times listed are in US Eastern Time (EST):

 Register here -  Draft Agenda - Call for Posters - Call for Nominations  -  Call for Abstracts - Acknowledgements

Join us for the 19th “CML Horizons: Learn. Share. Grow" Conference

DATE: 22 - 24 October 2021

LOCATION: Virtual

Taking place during the Time Zone of Central European Time (CET).

- Virtual Event -

The CML Horizons conference is dedicated to the development of our members as patient advocates and in light of the ever evolving and unpredictability of COVID-19 and the various variants that are now posing a health risk globally, the Steering Committee has decided to move to a fully virtual event for 2021.

Please register for the 19th CML Horizons: Learn. Share. Grow" Conference by clicking here:

EHA2021 VIRTUAL: 26th EHA Annual Congress

Only two weeks left to start the European Hematology Association Congress 2021 from June 9 to 17 and get informed about the highlight state-of-the-art clinical practice, recent advances, new data and views from different stakeholders as well as international organizations.

Once again, we will be attending this key meeting for the CML patient advocacy community that will be held online due to the impact of COVID-19 for the second time in its history, and sharing with you the information on our social media channels and website.

This is an excellent opportunity to explore the newest developments in CML and beyond and new evidence-based approaches to diagnosis and treatment. Moreover, this year the European Hematology Association is introducing several new session types at #EHA2021 as on-demand Guidelines Sessions or live Thematic Debates.

Check out the CML featured sessions we have summarized for you:

It is with great sadness that we share the loss of another friend and CML patient advocate Minella López, President of FUNDALMC, the patient organisation supporting CML patients in Venezuela. She passed away on 4th April 2021, due to COVID19 infection.

Minella was a fighter, passionate person, and a lover of structured things who made enormous efforts on behalf of the CML patient community in Venezuela, reaching the scope that FUNDALMC has today.

She always received full support of her colleagues within the Foundation, aligning the advocacy work with the CML patient needs for better access to medicines and health care in her country.

One of the most important milestones Minella achieved with the support of the CML advocates was the establishment of a legal, solid and well-structured patient organisation in Venezuela so that no CML patient is left behind.

"Mother hen, Minella was a beautiful, good-hearted, perfectionist, persevering, kind, and compassionate woman. She has left us too soon but her sense of commitment to the patient needs and advocacy work will inspire us to drive high-level projects on her behalf to keep on supporting CML patients in Venezuela. We will do our best to push forward to ensure her dreams, esteem vision, and memory continue", as FUNDALMC Board and many patients stated.

We wish Minella's family and all friends all the strength and courage they need in these difficult times. 

May there be comfort in knowing that someone so special will never be forgotten.

Rest in peace, dear Minella.