More CML Educational Videos available

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Advocacy & Knowledge

Two new CML Educational Videos available: Testing & Monitoring and Adherence video in Dutch language

Last Updated: Thursday, 09 October 2014 16:55 | Print

Testing monitoring The "CML Education and Science Section" is constantly being expanded. Two new videos in Dutch language are available now. Here is the full list of currently available videos in multiple languages:

What you need to know about adherence to therapy (now also available in Dutch!)
What you need to know about side effects and how to manage them
What you need to know about testing and monitoring (now also available in Dutch!)

See the videos here!

New CML Educational Video available: Testing & Monitoring video in Czech language

Last Updated: Thursday, 25 September 2014 14:34 | Print

Facilitating access to information and providing educational material to patients is key to patient advocacy groups. In 2012, a European workgroup of patient advocacy groups and CML experts started to develop and produce a series of educational videos on CML, supported by Bristol-Myers Squibb. Videos are available in several languages. Currently there are three videos available:

What you need to know about adherence to therapy
What you need to know about side effects and how to manage them
What you need to know about testing and monitoring (as of today, also available in Czech language!)

See the videos here!

On World CML Day 9/22, leukemia patients worldwide unite to address the courage and hope required to live with chronic myeloid leukemia, and call for access to best available treatment and care for all patients

Last Updated: Monday, 22 September 2014 07:36 | Print

Group by group, advocate by advocate, and survivor by survivor: on World CML Day on 22 September, the global patient community is raising awareness about the needs of people living with chronic myeloid leukemia (CML). Simultaneous events, publications and meetings on all continents put a spotlight on the real needs of patients and their relatives, and demonstrate the power and unity of a unique worldwide community that knows no borders. Their brand-new book “Faces of Courage and Hope” further provides an insight into the journeys of 16 CML patients in 15 countries.

Members of the CML Advocates Network, which is today comprised of 90 patient advocacy groups in 68 countries, are honoring World CML Day on September 22nd 2014 through actionable events taking place in their communities. All events worldwide aim to underscore the importance of the needs of people living with CML. The needs of patients in different regions vary largely – from basic challenges of access to treatment and care, over uncertainty on the quality of treatments, to living with cancer as a chronic disease.

Now available: Our patient-friendly summary of the ELN CML Treatment Recommendations!

Last Updated: Thursday, 18 September 2014 12:54 | Print

The CML Advocates Network has published the updated patient-friendly summary of the "2013 European LeukemiaNet recommendations for the management of CML. It is made available in English, French, Italian, German, Hebrew, Russian, Polish, Spanish, Portuguese, Arabic and Serbian (as a start). More languages might follow.

Our patient-friendly summary of the 2009 version of the European LeukemiaNET Treatment Recommendations on CML has been picked up very strongly by the community, demonstrating the demand of patients to understand the expert recommendations: Our web versions of the patient-friendly summary were viewed 8.300 times in Spanish, 8.600 times in Italian, 14.500 times in French, 17.100 times in English since 2011 - not counting the PDF downloads from our website and printed versions that were disseminated at meetings. The summaries were not only used by patients, but also by physicians as a tool to explain treatment milestones and monitoring in a more understandable way. With great support from the community, our last summary was actually made available in 11 languages.

New CML Educational Video available: Adherence video in Czech language

Last Updated: Thursday, 19 March 2015 13:38 | Print

Facilitating access to information and providing educational material to patients is key to patient advocacy groups. In 2012, a European workgroup of patient advocacy groups and CML experts started to develop and produce a series of educational videos on CML, supported by Bristol-Myers Squibb. Videos are available in several languages. Currently there are three videos available:

What you need to know about adherence to therapy (as of today, also available in Czech language!)
What you need to know about side effects and how to manage them
What you need to know about testing and monitoring

See the videos here!

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