Shipment of magnetic pins for World CML Day 2014 pins has ended!
This is to inform you that no more magnetic pins for World CML Day 2014 can be ordered, as we are out of stock! Since three weeks, a total of 35.000 buttons of "World CML Day" are travelling all across the world, and some of them are still on their way! Thanks to you all for your orders! We look forward to receiving your pictures!
World CML Day on 22 September is approaching... Pins are travelling!
About 35.000 buttons of "World CML Day" are travelling these days across the world, to be with CML advocacy organisations and healthcare professionals on 22 Sept (9/22). This photo shows the different options we looked at: the one on the bottom left is the magnetic button produced this year, the little one in the middle is our 2013 pin (the bigger ones were samples we also tested)! Excited to see the photos when people all around the world will wear the pins on 22 September!
To our member organisations - see our news here how to get the pins and books, if you have not ordered them already!
Now also in Spanish: CML patients' declaration on quality and consistency in use of generics
An important topic of increasing attention discussed between CML patients and health professionals is the introduction of generics in CML treatment. Patients welcome that generics may improve patient access to more affordable therapies in many countries. However, patients also raise concerns about impact on their cancer when switched between different products for non-medical reasons, if their equivalence in terms of quality and efficacy is uncertain.
In May 2014, CML patient groups published a declaration calling governments, health authorities and healthcare professionals to minimize potential uncertainties and risks for patients with five measures. Thanks to our friends at Fundación Colombiana de Leucemia y Linfoma and the Max Foundation, a Spanish translation of the declaration is now available. See also our Generics knowledge base which is continuously updated.
Getting ready for World CML Day 2014!
Group by group, advocate by advocate, and survivor by survivor, World CML Day is raising awareness about the needs of people living with CML around the world through numerous simultaneous events being organized by leukemia patient associations on all continents on 22nd of September. Visit our World CML Day Section on this website to learn more about World CML Day about key initiatives planned for this year´s Sept 22! From today, you can also place your orders for our International CML Book („Faces of courage and hope --
16 inspirational journeys of people living with Chronic Myeloid Leukaemia“) and the new "World CML Day magnetic pins". We look forward to a wonderful World CML Day 2014 and everybody´s active contribution!
Pediatric CML Guidelines published
The pediatric CML steering committee of the international BFM group (I-BFM) has recently published the guidelines for treatment and management of pediatric CML in the British Journal of Haematology. The authors are pediatric experts from from United Kingdom, France, Italy, Netherlands, Belgium, and Germany. These guidelines will contribute to harmonisation of treatment of children and adolescents with CML. See our "Junior CML Advocates" section on cmladvocates, specifically the section "Scientific Publications" where the full text is available for download. Alternatively, you can access the full article by clicking here.
The CML Advocates Network welcomes its newest member: now 90 patient organisations from of 68 countries in the CML Advocates Network
We are delighted to welcome our newest member: "CanSurvive" from Egypt! CanSurvive is the first Egyptian member of the CML Advocates Network. From today, the Network connects 90 organisations from 68 countries across all continents. See the list of CML groups in the Network on our world map.
