On World CML Day 9/22, leukemia patients worldwide unite to address the courage and hope required to live with chronic myeloid leukemia, and call for access to best available treatment and care for all patients
Now available: Our patient-friendly summary of the ELN CML Treatment Recommendations!
The CML Advocates Network has published the updated patient-friendly summary of the "2013 European LeukemiaNet recommendations for the management of CML. It is made available in English, French, Italian, German, Hebrew, Russian, Polish, Spanish, Portuguese, Arabic and Serbian (as a start). More languages might follow.
New CML Educational Video available: Adherence video in Czech language
Facilitating access to information and providing educational material to patients is key to patient advocacy groups. In 2012, a European workgroup of patient advocacy groups and CML experts started to develop and produce a series of educational videos on CML, supported by Bristol-Myers Squibb. Videos are available in several languages. Currently there are three videos available:
- What you need to know about adherence to therapy (as of today, also available in Czech language!)
- What you need to know about side effects and how to manage them
- What you need to know about testing and monitoring
Shipment of magnetic pins for World CML Day 2014 pins has ended!
This is to inform you that no more magnetic pins for World CML Day 2014 can be ordered, as we are out of stock! Since three weeks, a total of 35.000 buttons of "World CML Day" are travelling all across the world, and some of them are still on their way! Thanks to you all for your orders! We look forward to receiving your pictures!
World CML Day on 22 September is approaching... Pins are travelling!
About 35.000 buttons of "World CML Day" are travelling these days across the world, to be with CML advocacy organisations and healthcare professionals on 22 Sept (9/22). This photo shows the different options we looked at: the one on the bottom left is the magnetic button produced this year, the little one in the middle is our 2013 pin (the bigger ones were samples we also tested)! Excited to see the photos when people all around the world will wear the pins on 22 September!
To our member organisations - see our news here how to get the pins and books, if you have not ordered them already!
Now also in Spanish: CML patients' declaration on quality and consistency in use of generics
An important topic of increasing attention discussed between CML patients and health professionals is the introduction of generics in CML treatment. Patients welcome that generics may improve patient access to more affordable therapies in many countries. However, patients also raise concerns about impact on their cancer when switched between different products for non-medical reasons, if their equivalence in terms of quality and efficacy is uncertain.
In May 2014, CML patient groups published a declaration calling governments, health authorities and healthcare professionals to minimize potential uncertainties and risks for patients with five measures. Thanks to our friends at Fundación Colombiana de Leucemia y Linfoma and the Max Foundation, a Spanish translation of the declaration is now available. See also our Generics knowledge base which is continuously updated.
