Chronic Myeloid Leukemia patients call for quality and consistency when generics are introduced to treat their cancer
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On 2-4 May 2014, patient organisations from 58 countries supporting patients and families affected by Chronic Myeloid Leukemia (CML) met in Serbia to learn from medical experts, share best practice in patient advocacy and grow their organisation's capacity. An important topic of increasing attention discussed between patients and health professionals was the introduction of generics in CML treatment. Patients welcome that generics may improve patient access to more affordable therapies in many countries. However, patients also raise concerns about impact on their cancer when switched between different products for non-medical reasons, if these products’ equivalence in terms of quality and efficacy is uncertain. |
CML Horizons 2014 webstreams of all presentations now available!
Webstreams of all presentations held at CML Horizons 2014, the global meeting of CML patient advocacy groups, are now available.
The faculty included Neil Shah (USA), Qian Jiang (China), Andrija Bogdanovic (SR), Giuseppe Saglio (IT), Susanne Saussele (DE), Sarah Liptrott (IT), Yoseph Caraco (IL), Tamás Beretzky (HU), Martin Godfrey (UK), Annette Freidank (DE), and many more - as well as a keynote by Dr. Brian Druker!
The presentations covered highly relevant topics like updates from CML research, discussions around CML generics, information about drug interactions and pharmacology, issues around sexuality and self-esteem, the use of social media in advocacy, building a patient advocacy strategy, and reports from the key challenges in CML care in the five world regions.
Go to our CML Horizons 2014 page to listen to the presentations!
The CML Advocates Network welcomes two new members: now 89 patient organisations from of 67 countries in the CML Advocates Network
We are delighted to welcome "DANCE WITH CANCER" (Turkey) and "FUNDACIÓN COLOMBIANA DE LEUCEMIA Y LINFOMA, FCL" (Colombia) as new members of the CML Advocates Network. The network now connects 89 organisations from 67 countries across all continents. See the list of CML groups in the Network on our world map.
CML Horizons 2014: Presentations available now, video streams will follow soon!
CML Horizons 2014, the 12th annual international conference for organizations representing people with CML was held from 2 to 4 May 2014 in Belgrade, Serbia. We were thrilled to have 119 delegates from 58 countries attending this year´s conference. The presentations of all sessions (PDF files) are available now! Please share the links in your communities! Very soon we will also share the webstreams and photos of the conference.
NEW CML EDUCATIONAL VIDEO AVAILABLE!
We are proud to announce that a new educational video has been added to our YouTube-channel:
Currently, the video is only available in English language. However, more languages will follow.
See all videos here and feel free to share them!
More CML Educational Videos available on our YouTube-channel!
In the last few days, further videos in different languages have been added to our YouTube-channel. Currently there are two videos available:
- What you need to know about adherence to therapy
- What you need to know about side effects and how to manage them
See the videos here! And feel free to share them!
A third video is soon to come!
