CML Advocates Network

We are delighted to welcome "The Canadian CML Network" and "Ethiopian CML Foundation" as members of the CML Advocates Network. The network now connects 85 organisations from 66 countries across all continents. See the list of CML groups in the Network on our world map.

Facilitating access to information and providing educational material to patients is key to patient advocacy groups. In 2012, a European workgroup of patient advocacy groups and CML experts started to develop and produce a series of educational videos on CML, supported by Bristol-Myers Squibb. Videos are available in several languages. Currently there are two videos available:

• What you need to know about adherence to therapy
• What you need to know about side effects and how to manage them

See the videos here!

On 4 February 2014, marked World Cancer Day 2014, a group of Europan patient advocacy organisations, healthcare leaders and Members of the European Parliament against Cancer (MAC) came together to launch the European Cancer Patient’s Bill of Rights in the European Parliament in Strasbourg. The CML Advocates Network, being one of the ECC Partners that was deeply involved in the drafting, welcomed the launch of the Cancer Patient's Bill of Rights, which is the result of over two years of work. It is a call to action to address the significant disparities that exist for European cancer patients today, and a call for more patient involvement and empowerment.

The Bill of Rights has just been published in "The Oncologist" and "The Lancet". The Bill of Rights is available in English, French, German, Greek, Italian, Polish, Romanian and Slovenian on its official website. Some photos taken at the launch meeting in the European Parliament, which was attended by the EU Commissioner for Health Tonio Borg as well as by members of the European parliament and the former French minister of Health, are also available, as is Jan Geissler's presentation during the launch meeting - with the "Faces of CML" included.

EHA is providing 50 free congress registrations for leaders of hematology patient organisations to give patient advocates the opportunity to attend the congress, but they will not cover travel or accommodation costs. Deadline for free registrations is 26 March 2014. Please note this is for leaders of patient advocacy organisations only, not for individual patients in their personal interest, health professionals or other stakeholders. And please also note that the free registrations are subject to confirmation by EHA.

If you are a patient advocate that will attend EHA 2014, please reserve your free registration here

Today, 4 Feb, is World Cancer Day. We are excited to announce that on this occassion the European Parliament in Strasbourg is launching The European Cancer Patient's Bill of Rights.

The European Cancer Concord (ECC) under the stewardship of the Society for Translational Oncology, Cancer Patient Advocacy Organisations from throughout Europe and Members of the European Parliament against Cancer (MEPs against Cancer) have come together in partnership on World Cancer Day 2014 at the European Parliament in Strasbourg to launch a special patient-centred initiative for the citizens of Europe. The European Cancer Patient’s Bill of Rights represents a catalyst for change, a Charter that provides a framework to deliver optimal standards of cancer research and cancer care for every European citizen. The launch coincides with the publication of two peer reviewed articles on the Bill of Rights in the premier international cancer journals Lancet Oncology and The Oncologist. For more information please follow the link: https://sto-online.org/ecp-bill-of-rights

We are delighted to welcome "MaxCare Nigeria" as a member of the CML Advocates Network. The network now connects 84 organisations from 66 countries across all continents. See the list of CML groups in the Network on our world map.