The 5th International “New Horizons†Conference for Organizations
Representing People with
CML and GIST, held in Bad Nauheim, Germany,
(29 June – 1 July 2007) brought together 80 representatives from 22
patient advocacy groups in 28 countries. This yearly event has become a platform for
CML and GIST advocates from
all over the world to meet and learn from the experience of each other. Advocacy issues that were discussed at the meeting included:
CML and GIST medical updates, strategic alliances, challenges of running a newly established patients
groups, how patients can contribute to the design and implementation of
clinical trials, drug access, fund raising, and many more.
CML
Chronic Myeloid Leukemia, also called Chronic Myelogenous Leukemia
A chronic disease of the blood and bone marrow that results from a transformation of a stem cell.
Bad Nauheim, 1 July 2007 · Four patient groups from the UK, Germany, Israel and Czech Republic launched the "CML Advocates Network" as an international platform for organisations supporting patients and relatives suffering from "Chronic Myeloid Leukemia" (CML). The worldwide network offers support by sharing of best practice, information and advice for CML patient advocates across the world. Innovative use of Internet technologies will further increase collaboration.
The "4th CML and GIST New Horizons in Treating Cancer summit" for patient group representatives was held in Budapest from 23rd to 25th of June 2006. The summit brought together 70 patient group representatives from 26 countries.
