CML Advocates Network receives "ESO Cancer on Internet Award 2010" at UICC World Cancer Congress
The "CML Advocates Network" has received the "ESO Cancer on Internet Award 2010" at the UICC World Cancer Congress in China on 19 August 2010. The focus of this year's award provided by the European School of Oncology (ESO) is on e-cancer patients. It has the aim to raise awareness of the evolution of the internet and the impact of social media networks in the cancer patient community by recognising organisations and groups that have provided quality-based and easy-to-use communication platforms through the Internet.The prize of 4.000 EUR will be used to extend that social media functionality of the website which is based on free software and is run by volunteers.
8th "New Horizons" 2010: 144 patient advocates from 56 countries met in Vienna, Austria
Rising Sun for people living with CML in Asia
On 9-11 April 2010, cancer advocates working in Asia witnessed a new beginning: the first conference for CML advocates in the region, Rising Sun, conveyed in Hong Kong. This unprecedented event was a "dream come true" for many of the participants.
Representatives from China, Hong Kong, Indonesia, Malaysia, India, Japan and the Philippines, joined by advocates from New Zealand, Australia, US and UK, spend two days getting to know each other, sharing best practices, and learning from each other. People who up to now had lived parallel lives without knowing each other, finally had the chance to meet in person and develop tight connections.
ASH 2009 Recollections and why I went there again
"Actually, why do I always spend St Nicholas in the US, instead of with my family", I asked myself when I boarded the plane to the USA on 4 Dec, in anticipation of a boring 16 hour trip to New Orleans, arriving jetlagged, hiding for days in the dungeons of a large convention center, lacking any sense of the city I am in. Year by year, more than 20.000 hematologists and healthcare people attend the annual meeting of the American Society of Hematology, lovingly called 'the ASH' by repatriates. Its publications are all available on the Internet. "Is it really worth the effort being there again, instead of just using my browser?", I thought. It is. Definitely.
CML and GIST conference 2009 in Lisbon: Forging alliances for global advocacy
The 7th annual international "New Horizons Conference for Organisations Representing People with CML or GIST" was held this year in Lisbon, Portugal from June 26 to 28. Sponsored by Novartis and held for the seventh year, the conference once again demonstrated the value of bringing together patient advocacy groups from around the world to share their ideas and experiences and to get latest updates from medical professionals. The conference featured 30 hours of presentations from a dedicated and enthusiastic faculty of various disciplines and stakeholder groups.
European Action Against Rare Cancers
At 24th of June 2009 a new campaign European Action Against Rare Cancers has been launched. The new campaign urges European policy-makers to prioritise better treatment and care for patients with rare cancers within the framework of the new Commission Communication on cancer and other recent policy initiatives such as the Council Recommendation on Rare Diseases. The CML Advocates Network is one of the supporting organisations. The campaign has launched a Call to Action – an international petition appealing to all stakeholders to initiate targeted actions to address the challenges of rare cancers.
