ASCO Dasatinib in pediatric CML patients report
The 2017 American Society of Clinical Oncology (ASCO) Annual Meeting were taking place June 2–6 in Chicago.
At ASCO, Lia Gore, MD, co-director of the Hematological Malignancies Program at the University of Colorado Cancer Center and pediatric oncologist at Children’s Hospital Colorado, presented exciting data about Dasatinib in pediatric CML patients: CML in children is ultra-rare, making it very difficult to study - CML cases make up only 3% of all leukemias in children.
The data presented here has been submitted to FDA and EMA for the approval in pediatric use, and is quite impressive: The side effect profile seems to be very favourable and the inhibition of bone growth in children on TKIs seems to be less of an issue in Dasatinib than in Imatinib.
However, given that administration of medicines in children and being adherent to therapy is often a challenge for young CML patients (and their parents), the availability of Dasatinib also as a powder-based suspension as well as the fact that the drug can be taken without or with food may make life much easier.
The investigators concluded that Dasatinib may be considered as a new standard of care for pediatric CML patients.
CML Horizons 2017 - Learn. Share. Grow: Presentations, Photo Gallery and Web streams now available!
CML Advocacy: Learn. Share. Grow.
26-28 May 2017, Frankfurt, Germany
During the annual CML Horizons Conference on 26 to 28 May 2017 the CML Advocates Network welcomed 100 delegates (among them 24 newcomers) supporting patients and families affected by Chronic Myeloid Leukemia (CML) to Frankfurt, Germany. Delegates from around the world (Europe, North America, Asia, Africa, Middle East and Latin America) came to Frankfurt to learn from experts both medical and patient advocates on the latest information about CML, share best practises in patient advocacy in order to grow their organisations in their own countries and give back to their own communities. We also featured a poster board where our members were able to present some of their activities that they have had during the year. In addition to this our members had the opportunity to submit abstracts and feature in our “best Practice session” on a successful activity they had on their own country. Furthermore, at this year's conference a new CML Horizons Steering Committee was elected.
CML Horizons is a wholly community-run and multi-sponsored conference, which has evolved from the "New Horizons" conferences 2002-2011. The annual conference is run by the CML Advocates Network, hosted by the non-profit, swiss-based and patient-driven "Leukemia Patient Advocates Foundation".
Presentations, Photo Gallery and Videostreams are available now!
Click on "PDF" to see all presentations. If you wish to translate selected presentation, please contact Celia Marín at and ask for the PowerPoint-file! This will make it easier for you to translate the presentation to the language of your choice.
Please note that the speakers have authorized CML Advocates Network only to provide the PDFs on this website, but it is not allowed to upload the PDFs somewhere else! So if you want to share the slides, please do this by linking to this page or the files on this site!
To stream individual sessions, click on "Webstream" below.
To check out the CML Horizons 2017 Photo Gallery, click HERE
ASCO CML Education Session 2017
The 2017 American Society of Clinical Oncology (ASCO) Annual Meeting is taking place June 2–6 in Chicago.
At the CML Education Session, CML expert Dr. Ehab Atallah, MD, associate professor of medicine in the division of hematology and oncology at the Medical College of Wisconsin, has been speaking during an Education Session about discontinuation of tyrosine kinase inhibitors in chronic myeloid leukemia (CML) presenting about the "Promise of stopping TKIs: Is it ready for prime time"?
Even though no new data was presented (see ASH 2016 Report), it has been very interesting to listen to the US perspective.
Welcome, Philadelphia LMC, Algeria! Now 115 patient organisations from 86 countries in the CML Advocates Network
We are proud to welcome a new member organisation to the CML Advocates Network: Philadelphia LMC based in Algeria. The CML Advocates Network now totals at 115 member organisations in 86 countries worldwide! See the list of CML groups in the Network on our world map.
EHA 2017 in Madrid, Spain: Patient Advocacy Programme
Not many weeks left until the European Hematology Association's annual congress opens its doors in Madrid, Spain. We are excited to see many of you at #EHA22 2017!
Over the past months, we've been working hard with the EHA team to set up an attractive patient advocacy programme during the congress. We have a joint booth of all European patient advocacy organisations, and once again also having a “Patient Advocacy Track” within the scientific program during the congress. Up to 50 free congress registrations were offered to patient advocates, so we hope there will be strong patient attendance!
Click on "Read more" what is offered specifically for patient advocates, hematologists and other stakeholders at EHA this year.
Free EHA congress registrations for representatives of haematology patient organizations: Deadline 29 April 2017!
This year EHA Congress will be held on the 22-25 June 2017 in Madrid, Spain. Thanks to very patient-centric thinking, EHA continues to work closely with the patient community and is once again offering a “Patient Advocacy Track” within the scientific program.
EHA FELLOWSHIP -- APPLY NOW, UNTIL 29 APRIL!
Once again in 2017, EHA will provide 50 Fellowships for their EHA congress which will be held during the 22-25 June 2017 in Madrid. The Fellowship provides free access to the full congress, but also includes a compulsory "capacity building programme" to educate all attending advocates and further their development and knowledge about haematology and science.
In collaboration with EHA and the European Reference Network EuroBloodNet, we're taking the next level this year and will provide a "EHA Capacity Building Meeting" for all Fellows on 22 June, from 14:00 - 17:00.
In this meeting, EHA Fellows will hear about EuroBloodNet, the ePAGs, about interpreting scientific data, and about how to get the best out of a scientific conference EHA (for all disease areas). This will then be followed with a summary of the most important data presented at EHA, specifically for Fellows in MDS, Myeloma, Acute Leukemias, Lymphomas & CLL, MDS and CML. The capacity building meeting on 22 June will be mandatory for all EHA Fellows. Priority will be given to advocates who have attended last year's capacity building event and/or are engaged in European hematology patient networks.
Please encourage your most important science-interested advocates to apply for an EHA Fellowship to attend EHA and speak to your umbrella group if they may be able to support EHA Fellows with travel costs.
The CML Advocates Network can provide a limited amount of travel grant of up to 500 EUR to those European CML Advocates that receive a fellowship.
To apply for an EHA Fellowship, please ask your advocates to register HERE
Deadline for applications is 29 April 2017, accepted advocates will be informed in the first week of May.
If you have any questions, please touch base with
