CML Advocates Network appoints Denis Costello as its first ever Executive Director.
We’re proud to announce that Denis Costello has recently been appointed as the first Executive Director of the CML Advocates Network, the global umbrella organisation dedicated to empowering patient leaders in Chronic Myeloid Leukemia (CML).
Denis comes to our CML family from EURORDIS, Rare Diseases Europe, where he worked since 2008 as the organisation’s Online Communications Manager.
During that time he has led the launch and operation of RareConnect, a global, multilingual social network for patients and families living with rare diseases (see www.rareconnect.org) which saw him work with over 1000 patient organisations of all sizes and from all over the world who now use the platform to host their online patient communities.
European Society of Medical Oncology Congress, Barcelona, 2019
From 27th September to 1st October, the European Society for Medical Oncology Congress takes place in Barcelona.
The ESMO Congress is the appointment in Europe for clinicians, researchers, patient advocates, journalists and the pharmaceutical industry from all over the world to get together, learn about the latest advances in oncology and translate science into better cancer patient care.
Approximately 30.000 oncology professionals from all around the world will be able to do more for their patients.
Today is World CML Day 2019. Play and Learn, Share, Grow with us!
On the World CML Day 2019, the CML Advocates Network is launching an online QUIZ aimed at educating patients, their relatives and society in general about chronic myeloid leukemia as well as at increasing awareness about this disease.
Click on The 9/22 Quiz, start playing and share your score on social media to join the World CML Day awareness campaign!
World CML Day 2019 events are starting worldwide!
Today, together, for a CML free world...
... is the motto for this year´s World CML Day campaign, which will take place in two days, Sunday, Sept 22!
The World CML Day 2019 campaign: "Today, together, for a CML free world."
In order to help you spread the message of awareness and strengthen your voice, the CML Advocates Network has developed World CML Day 2019 materials to make this day global and unique.
Feel free to download, adapt and share the posters, flyers, images and videos on your face to face meetings, websites and social media channels. Let's go to raise awareness on Chronic Myeloid Leukemia all together!
World CML Day 2019
2019
World CML Day
"Today, together,
for a CML free world."
Every year in 22nd September the CML global community lead by the CML patient Advocates holds the World CML Day. 9/22 represents the genetic change of Chromosomes 9 and 22 that is the cause of Chronic Myeloid Leukemia (CML).
Since 2011, the worldwide community unites to celebrate "World CML Day" on September 22 (9/22). This date has been chosen for global and local CML awareness activities adding symbolic significance to the events, projects and campaigns.
CML patient advocates are together focused on raising awareness of the needs of patients living with Chronic Myeloid Leukemia.
Know more about what we are planning for the World CML Day 2019 and be ready to be part of the worldwide awareness with "Today, together. For a CML free world."
Family Meeting of the German Parents' Organisation for Children with CML
From 31.05.-02.06.2019 the members of the Parents' Organisation for Children with CML e.V. met in Dortmund, Germany. 20 families followed the invitation of the first chairman Ullrich Duckstein and his wife. For many of them, it was a reunion but for 3 families it was the first personal contact with other affected parents after CML diagnosis of their child.
Our dear Cornelia Borowczak, a very active member of this organization, mother of a CML patient as well as a member of our CML Community Advisory Board has shared with the global CML community the following information about CML and children. Don't miss these interesting updates on "Pediatric Chronic Myeloid Leukemia":
