Now available: David´s story in form of animated video
In September 2014, the CML Advocates Network published the international CML Book "Faces of Courage and Hope" an English-language book that illustrates the life of 16 CML patients from 15 countries. The book features wonderful photos and moving interviews. Selected patient stories are now also available in form of animated videos! The animated stories bring to life the emotional impact of CML on patients and their friends and family, in addition to their future hopes and aspirations. David´s story is now also available:
Other currently available videos are:
- Living with CML: Bert´s story of courage and hope (English)
- Living with CML: Mina´s story of courage and hope (English / French)
More videos will follow!
Please help us promote the book! And remember: CML Advocates Network Member Organisations can order copies of the books at production price (8.50 EUR per book incl. VAT, excluding shipping costs)! Order your copies now!
All non-members can buy the book via Amazon.co.uk and Amazon.de - Amazon ships the book world-wide!
Patient-friendly summary of the ELN CML Treatment Recommendations now also in Azerbaijani language - and 16 other languages
The CML Advocates Network, advised by medical experts, has developed a lay-friendly summary of the ELN Expert Treatment recommendations for CML.
It is now available in 17 languages: English, Arabic, Azerbaijani, Bulgarian, Chinese (traditional and simplified), Dutch, French, German, Hebrew, Italian, Polish, Portuguese, Russian, Serbian, Spanish and Turkish (new: Azerbaijani, a big thank you to Mehriban Bagirova from the Charter of Figthing of Leukemia Public Union Azerbaijan).
See our ELN Summary here: http://www.cmladvocates.net/cmlsummary
CML Advocates Network e-mail Newsletter of July 2015 published
The July 2015 edition of our e-mail newsletter provides updates about the following recent projects and activities within the CML Advocates Network:
- EHA 2015 congress in June 2015 in Vienna/Austria: patient advocacy a central topic in the scientific programme
- Call for volunteers: test phase for our CML adherence app starting soon. Technically-adept and less experienced users wanted!
- CML Horizons 2015: visit our photo gallery!
- "Junior CML Advocates" section on cmladvocates.net - new design, new content
- "What´s in the news?": share newspaper articles and reports related to generics and copy drugs!
- Two must-reads: CancerWorld articles on "Side effects of target treatments" and "Generic cancer drugs"
Read our CML Advocates Network Newsletter, July 2015 edition, here.
Find our archive of earlier newsletters here.
Subscribe to our E-Mail newsletter here.
Patient advocacy at the EHA 2015 congress in June 2015 in Vienna/Austria: presentations now available!
From 11-14 June 2015, the European Hematology Association's (EHA) Annual Congress opened its doors in Vienna, Austria. Again this year, the CML Advocates Network has been working closely with EHA to provide patient advocates with free congress registrations and exhibition booths. 48 patient advocates from 37 hematological patient organizations attended the congress. Patient advocates are recognized by EHA as competent and reliable partners.
Patient Advocacy sessions were again an integral part of EHA's annual congress program! PDFs of all three patient advocacy sessions are now available. Click on the respective presentation to download the slides.
New sub-section: Compilation of newspaper articles and reports on CML generics and copy drugs
We are pleased to announce the launch of a new sub-section on our website: The menue item "What´s in the news?", a sub-section of our "CML Generics" section, contains newspaper articles and reports related to generics and copy drugs in CML. This sub-section "lives" only if you make it grow! So please share all interesting and relevant articles that you come across with us! Please see the current list of articles here and share all articles related to CML generics and copy drugs that you come across!
Now available: Mina´s story in French language
In September 2014, the CML Advocates Network published the international CML Book "Faces of Courage and Hope" an English-language book that illustrates the life of 16 CML patients from 15 countries.
Mina´s story is now also available in French language. See here: "Living with CML: Mina´s story of courage and hope" (French)
Here are all other currently available videos:
- Living with CML: Bert´s story of courage and hope (English)
- Living with CML: Mina´s story of courage and hope (English)
More videos will follow!
Please help us promote the book! And remember: CML Advocates Network Member Organisations can order copies of the books at production price (8.50 EUR per book incl. VAT, excluding shipping costs)! Order your copies now!
All non-members can buy the book via Amazon.co.uk and Amazon.de - Amazon ships the book world-wide!
Retweeted Monday, 18 June 2018
Retweeted Sunday, 17 June 2018
