Advocacy & Knowledge
Two new CML Educational Videos available: Testing & Monitoring and Adherence video in Dutch language
The "CML Education and Science Section" is constantly being expanded. Two new videos in Dutch language are available now. Here is the full list of currently available videos in multiple languages:
- What you need to know about adherence to therapy (now also available in Dutch!)
- What you need to know about side effects and how to manage them
- What you need to know about testing and monitoring (now also available in Dutch!)
More CML Educational Videos available
Now available: Mina´s story in French language
In September 2014, the CML Advocates Network published the international CML Book "Faces of Courage and Hope" an English-language book that illustrates the life of 16 CML patients from 15 countries.
Mina´s story is now also available in French language. See here: "Living with CML: Mina´s story of courage and hope" (French)
Here are all other currently available videos:
- Living with CML: Bert´s story of courage and hope (English)
- Living with CML: Mina´s story of courage and hope (English)
More videos will follow!
Please help us promote the book! And remember: CML Advocates Network Member Organisations can order copies of the books at production price (8.50 EUR per book incl. VAT, excluding shipping costs)! Order your copies now!
All non-members can buy the book via Amazon.co.uk and Amazon.de - Amazon ships the book world-wide!
ASH 2011: Key news on CML from a patients' perspective
Like every year in December, about 21.000 hematologists and health professionals (as well as a small group of patient advocates) convened at the Annual Meeting of the American Society of Hematology (ASH) to hear latest news from research in leukemias, lymphomas and other blood disorders.
We have attended the scientific CML sessions at ASH 2011 and are now summarizing the most important presentations and posters, complemented by a patients' perspective. This report covers key presentations on Nilotinib, Dasatinib, Bosutinib, Ponatinib, DCC-2036, Imatinib-Interferon combination, STOP studies, as well as some studies on CML and diabetes or fatigue.
(Translations: English - Russian - Hebrew - German - French - Macedonian)
ASH 2011: Summary of Education Session on CML
Traditionally, the first day of the ASH Congress features Education Sessions. These sessions provide hematologists with the overall picture on a specific disease, including its biology, standard of care, current therapeutic challenges, results from recent trials and future outlook. This year, Prof Neil Shah (USA), Andreas Hochhaus (Germany) and Junia Melo (Australia) presented the state of play in CML treatment and care. This is our patient summary of the session.
(Translations: English - German - Russian - French)
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