Advocacy & Knowledge
Welcome, ARCRare from Romania and HEMA from Macedonia!
We hereby proudly welcome two new member organisations in the CML Advocates Network:
Asociația Română de Cancere Rare/ Romanian Rare Cancers Association based in Romania and
HEMA-Association for support of patients and caregivers of Hematology diseases based in Macedonia.
The CML Advocates Network now counts a total of 125 member organisations in 93 countries worldwide! See the list of CML groups in the Network on our world map.
Welcome, FUNDALMC from Venezuela!
We hereby proudly welcome a new member organisation in the CML Advocates Network:
FUNDALMC - Fundación para la Asistencia al Paciente con Leucemia Mieloide Crónica based in Venezuela.
CML and COVID-19: New Website section on cmladvocates.net
The CML Advocates Network is closely monitoring the current COVID-19 outbreak worldwide.
We are happy to announce the launch of a new website section to better inform the CML patient advocacy community on what is happening around Chronic Myeloid Leukemia and COVID-19 globally.
In this section, we will regularly publish breaking news, scientific information and other support resources which may be of interest.
Advance your knowledge on the CML and COVID-19 global situation with access to the following topics:
CML Horizons 2020 conference moves to November 2020
In light of the circumstances surrounding the global COVID-19 outbreak, the CML Advocates Network Steering Committee met via video-conference on March 19 to decide on the future of our annual CML Horizons conference which was due to take place in San José, Costa Rica from May 1-3.
Given the health risks posed to patients as well as the current travel restrictions for which there is no firm indication as to how long they may continue, the Steering Committee has decided to cancel the Costa-Rica CML Horizons conference and to re-schedule the event, circumstances permitting, in Europe in November 2020.
Even though it has been a difficult decision, the health of conference delegates remains our priority. We will continue to closely monitor the global situation and incorporate WHO recommendations on safety and travel into our sources of advice.
We will confirm the new dates, venue and further details about the conference in the coming days.
We would also like to express our sincere gratitude to all CML patient advocates, doctors, service providers and volunteers who have helped us with the organisation and program planning for Horizons 2020 Costa Rica.
Our commitment now is to work hard to reschedule and prepare an excellent CML Horizons conference for which we intend to exceed the expectations of conference attendees as they continue to learn, share and grow all together.
Stay tuned and follow our social media channels for more information!
Coronavirus disease and CML patients
The novel Coronavirus and the COVID-19 Disease
Information for Chronic Phase Chronic Myeloid Leukemia Patients
State of the Art as of 08 March 2020
Dr Michael Deininger (USA), Dr François Guilhot (France), Dr Jeroen Janssen (Netherlands), Dr Tim Hughes (Australia), Dr Jeffrey Lipton (Canada), Dr Franck Nicolini (France),
Dr Jerry Radich (USA), Dr Delphine Rea (France), Dr Giuseppe Saglio (Italy), Dr Suzanne Saussele (Germany), Dr Rick Silver (USA), Dr Juan Luis Steegmann (Spain).
Introduction
SARS-Cov 2 is a novel coronavirus that belongs to the large Coronaviruses (CoV) family. It emerged in December 2019 in Wuhan, China. This new virus is responsible for an illness called COVID-19 ranging from a simple cold to a more severe respiratory infection. The virus is spreading across the globe, representing a pandemic alert.
Transmission
Conventional routes of transmission of the new coronavirus consist of contact with respiratory droplets from infected persons. People may also possibly be infected when touching a surface or object that has the live virus on it then touching their mouth, eyes or nose although it may not be the main route of infection since in general, survivability of coronaviruses on surfaces is considered as poor. Finally, the new coronavirus can be detected in the gastrointestinal tract, saliva and urine, so these routes of potential transmission are currently under investigation.