CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Russia: CML-Stop

Contact address:

Moscow, Russia

Telephone: +79663230862

Website: http://www.cml-stop.ru
Email: info.cml-stop@ya.ru

Facebook: https://www.facebook.com/cmlstop/?ref=pages_you_manage

Key contacts:

Rostislav Alekseevich Fedorov - Founder of the organization and community leader
Email: ROS1342@yandex.ru
Mobile: +79663230862

Mikhail Chernobrovkin - Deputy of community leader
Email: mikeoch@mail.ru
Mobile: +79104458261

Brief description of organization:

Web-community CML-STOP

Audience/Constituency:

More than 7000 patient with CML from Russia and other countries.

Ways of communication with constituency:

Website

Organizational objectives and key programs:

Our organizational objectives are:

  • Support for the patients.
  • Consultations of our hematologists for the patients.
  • Coverage of the main events in hematology.
  • Сollaboration with patient organizations.

Our key programs are:

  • Consultations for the patients by lawyers (5-10 per year).
  • Consultations for the patients by hematologists (100 per year).
  • Fight for access to novel drugs and qualitative medical care (registration of ponatinib in Russia).
  • Coverage of the main events in hematology.

Year of establishment:

2011

Year of becoming a CML Member:

2011

Members:

600+


 
   
 

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