CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
CML Patient Organisations
Kazakhstan: Association of patients with hemoblastoses
Contact address:
050007, Saratovskaya street 17
Almaty city
Almaty city 050007, Saratovskaya
Kazakhstan
Telephone: +77012283228,+77772283822
Website: www.agem.kz
Email: gemoblastoz@mail.ru
Facebook: cml.stop.kz
Key contacts:
Lezzet Alikovna Akhmedyarova - President
Email: gemoblastoz@mail.ru
Phone: +77012283228
Mobile: +77772283822
Dilshat Zhalaldinivich Iliev - Founder
Email: d.iliyev@mail.ru
Phone: +77014920606
Brief description of organization:
The Association was founded in 2004 by doctors - hematologists and patients with chronic myeloid leukemia (CML) in Almaty. Due to numerous statements from various regions of Kazakhstan with a request to join members of the Association, in April 2010 was received the status of the Republican public association. January 2015 re-registration of the Association, election of a new president. The main objectives of the Association are to protect the social, labor, and legal interests of patients with chronic myeloid leukemia. Psychological support, assistance to patients with chronic myeloid leukemia and family members in adapting to a new full-fledged life.
Audience/Constituency
Patients with hemoblastosis and their relatives.
Ways of communication with constituency
Phone, personal meetings, e-mails, online conferences, WhatsApp chats.
Organizational objectives and key programs:
Our organizational objectives are:
- Providing patients with treatment.
- Protecting the rights of patients.
- Providing psychological support to patients and their loved ones.
- Interaction with government agencies to improve and develop the availability of treatment for patients.
- Interaction with doctors on the introduction of new treatment methods.
Our key programs are:
- Conducting patient schools.
- Organization of online patient consultations with hematologists.
- Solving problems with drug supply.
- Solving individual problems of patients.
- Training of members of the association to provide free legal services to protect the rights of patients.
Board of Directors:
5
Year of establishment:
2004
Year of becoming a CML Member:
2018
Members:
1000+
She has CML which was diagnosed in Almaty in 2004, but unfortunately she has failed to respond to Imatinib and also now nilotinib and we hope to perform a stem cell transplant.
She has one brother who currently lives in Almaty and I am trying to find out if it is possible to perform HLA Tissue Typing blood sampling in Almaty to identify if he would be a suitable stem cell donor.
I hoped that you might have a contacct name for someone in Almaty who may be able to help with this sampling or know of an intstitution I can contact directly.
Many thanks.
Mr Jeff Horn
Haematology and Bone Marrow Transplant nurse
Aberdeen Royal Infirmary
Aberdeen
Scotland, United Kingdon