CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Czech Republic: Diagnoza CML

Contact address:

ÚHKT, U Nemocnice 1 (virtual site-for registration purposes)
Prague 2
Prague 128 20
Czechia

Telephone: +420728308360

Website: www.diagnoza-leukemie.cz
Email: jana.pelouchova@diagnozaleukemie.cz

Facebook: facebook.com/diagnoza.leukemie

Key contacts:

Ms. Jana Pelouchova - Chair person
Email: jana.pelouchova@diagnozaleukemie.cz
Phone: +420728308360

Brief description of organization:

Diagnoza leukemie is a patient-governed society building on the experience of a CML support organization (2006-2014) when it has expanded into the broader scope of blood cancers (all leukemias, MDS, MPN). Independent source of disease-related information through collaboration with medical study groups. Providing patients input into legislative changes by means of membership at the Patient Advisory Board of the Health Ministry. Facilitating peer-to-peer support.

Audience/Constituency

Patients and their family members in the role of caregivers.

Ways of communication with constituency

Non-stop telephone helpline.
Immediate Messanger and email communication.
Social media (Facebook.com/diagnoza.leukemie and closed Facebook forums for CML and CLL patients).

Organizational objectives and key programs:

Our organizational objectives are:

  • A reliable source of information and education.
  • Collaboration with HCP and other stakeholders within the Czech healthcare system.
  • Patient representative within the Health Ministry Advisory Board.
  • Providing opportunities for peer-to-peer support.
  • International connection through patient networks. 

Our key programs are:

  • Organizing "Regional Patient Meetings" - conferences performed at 3 major Czech cities.
  • Community patient meetings at locations of active patient involvement.
  • Video-library as a root information base on the website.
  • Updates on local and international activities via social media.
  • Connecting patients with researchers.

Board of Directors:

3

Year of establishment:

2006

Members:

250+


 
   
 

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