CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
CML Patient Organisations
Czech Republic: Diagnoza CML
CONTACT INFORMATION
Mailing/Postal Address:
DIAGNOZA CML o.s.
c/o J.Pelouchova, Jahodova 115, 106 00 Praha 10
Czech Republic
Telephone: +420 728 308 360
Email: jana.pelouchova@diagnozaleukemie.cz
Website: http://www.diagnoza-leukemie.cz
KEY CONTACT
Name: Jana Pelouchova
ORGANIZATIONAL OBJECTIVES
- empowering the partnerś role of patients in the patient-doctor dialogue
- in cooperation with CML experts providing educationals programs (systemic, sustainable, nation-wide outreach)
- BRIEF DESCRIPTION OF ORGANIZATION
Diagnoza CML is a support group formed by patients, their family members and friends. It was founded in Prague on February 9, 2006 with the aim to address patients in all the six clinics over the country specializing in the treatment of CML. Advisory board formed by 9 hematologists, clinical psychologist, laboratory expert in molecular biology. Cooperative group of 3 nurses
current membership: 192 members
KEY PROGRAMS
- Patient Days (yearly cycle of 5 Regional meetings providing medical updates) and Patient Clubhouse (community patient meetings at regions on 1-3 monthly basis, providing mutual psychological support)
- information by means of website http://www.diagnoza-leukemie.cz, printed brochures, DVD
- non-stop telephone helpline
