CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
CML Patient Organisations
Estonia: Eesti Leukeemia ja Lümfoomihaigete Liit (Estonian Leukaemia and Lymphoma Patients Society)
CONTACT INFORMATION:
Mailing/Postal Address:Tallinna 22, 71001 Viljandi, postkast 9
Estonia
Email: info@leukeemia.ee
Website: www.leukeemia.ee
KEY CONTACT:
Name: Karin NaaritsPosition: Chairman of board
BRIEF DESCRIPTION OF ORGANIZATION:
Founded in October 2005, Estonian Leukaemia and Lymphoma Patients Society is a non-profit and non-governmental organization aiming to unite all affected by the disease of leukaemia and lymphoma patients, their families and supporters.AUDIENCE/CONSTITUENCY:
leukaemia and lymphoma patients and their supportersNUMBER OF MEMBERS:
75COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:
EstoniaWAYS OF COMMUNICATING WITH CONSTITUENCY:
Website www.leukeemia.ee, meetings (patients, doctors, pharmaceuticalcompanies representatives), e-mailing list, newsletters, etc.
KEY PROGRAMS:
- Treatment. We campaign to make this essential treatment available to all patients.
- Bone marrow transplants. Bone marrow transplants have to become more available to leukaemia patients, for which it is necessary to form new state policy allowing bone marrow donor banks, formulate appropriate legislation and support international co-operation.
- Increasing public and government awareness on leukaemia and lymphoma