CML Advocates Network

CONTACT INFORMATION:

Mailing/Postal Address:
Tallinna 22, 71001 Viljandi, postkast 9
Estonia

Email: info@leukeemia.ee
Website: www.leukeemia.ee

KEY CONTACT:

Name: Karin Naarits
Position: Chairman of board

BRIEF DESCRIPTION OF ORGANIZATION:

Founded in October 2005, Estonian Leukaemia and Lymphoma Patients Society is a non-profit and non-governmental organization aiming to unite all affected by the disease of leukaemia and lymphoma patients, their families and supporters.

AUDIENCE/CONSTITUENCY:

leukaemia and lymphoma patients and their supporters

NUMBER OF MEMBERS:

75

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

Estonia

WAYS OF COMMUNICATING WITH CONSTITUENCY:

Website www.leukeemia.ee, meetings (patients, doctors, pharmaceutical
companies representatives), e-mailing list, newsletters, etc.

KEY PROGRAMS:

1. Treatment.  We campaign to make this essential treatment available to all patients.
2. Bone marrow transplants. Bone marrow transplants have to become more available to leukaemia patients, for which it is necessary to form new state policy allowing bone marrow donor banks, formulate appropriate legislation and support international co-operation.
3. Increasing public and government awareness on leukaemia and lymphoma