CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Hungary: CML-GIST Betegek Egyesülete

Contact address:

Hódi P. u. 1.
Hódmezővásárhely
Csongrád-Csanád 6800
Hungary

Telephone: +36309401600

Email: cmlgist@cmlgist.hu

Key contacts:

Peter Hegedűs - President
Email: info@hegedusugyved.hu
Phone: +3662238793
Mobile: +36209673814

Attila Menesi - Communication partner
Email: ckoncept@m14.hu
Mobile: +36309401600

Brief description of organization:

After its previous activities, the association decided to renew in 2012. Since then the together day, a free conference in Budapest with lectures, patient-doctor meetings, and other community programs is organized every year (2013-). We regularly invite well-known personalities who talk about the everyday life of their illnesses. The event series CML-gist consulting – running since 2016 – creates personal and public space and opportunity in rural towns for patients and doctors to discuss current issues, questions, and other subjects about the diseases (Debrecen, Győr, Gyula, Szeged, Veszprém 2016-18). By the years of experience, the association has recognized the necessity of a printed CML-gist handbook, the first of its kind in Hungary. The book was published in 2020 realized as the result of a collaboration between the association and experts specialized in the diseases.

 

Organizational objectives and key programs:

Our organizational objectives are:

  • To raise awareness about CML and GIST.
  • To provide information on the treatment options in CML and GIST.
  • To raise awareness about the problems and needs of these small patient groups.
  • To address the problems of the patients, and help find solutions.
  • To represent the interests of CML and GIST patients.

Our key programs are:

  • Together day.
  • Cml-gist handbook (presentation, distribution).
  • Cml-gist video channel.
  • Recruit patients.
  • Support local patient groups, organize more meetings over the country.

Board of Directors:

3

Year of establishment:

2002

Year of becoming a CML Member:

2014

Members:

101 - 250


 
   
 

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