CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
CML Patient Organisations
Poland: The Nationwide Association for CML Patients Aid
(Ogólnokrajowe Stowarzyszenie Pomocy Chorym na Przewlekla Bialaczke Szpikowa)
CONTACT INFORMATION:
Mailing/Postal Address:
ul. Bychowska 56
04-536 Warszawa
Poland
Email:
Website: http://www.spbs.com.pl/
KEY CONTACT:
Jacek Gugulski
President
Telephone: +48 504 153 136
EMail:
ORGANIZATIONAL OBJECTIVES:
access to new therapies, psychological support for the patients, free doctors’ consultations, help with access to valuable information
BRIEF DESCRIPTION OF ORGANIZATION:
Nationwide Association of CML Patients is located in Warsaw. We also have regional organizations in: Kraków, Lublin, Kielce, Åódź, GdaÅ„sk, Szczecin, WrocÅ‚aw, PoznaÅ„, Katowice, BiaÅ‚ystok and Opole. We co-operate with many institutions – associations, companies, hospitals, authorities – all in order to make the situation of the patients better.
AUDIENCE/CONSTITUENCY:
patients, families
NUMBER OF MEMBERS:
300 all over Poland
COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:
not applicable
WAYS OF COMMUNICATING WITH CONSTITUENCY:
publications – newsletter, telephone, fax, www, e-mail
KEY PROGRAMS:
- trainings for the patients
- program the aim of which are contacts with decision makers in order to improve patients’ situation
