CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Romania: "MIELOPRO" - Asociatia Pacientilor cu Neoplazii Mieloproliferative

Contact address:

DRISTORULUI Street,nr.97-119
BUCHAREST
SECTOR 3 31535
Romania

Telephone: +40723623376, +40744544676

Website: http://www.mielopro.ro/
Email: mielopro@gmail.com

Facebook: https://www.facebook.com/Mielopro-Asociatia-Pacientilor-cu-Neoplazii-Mieloproliferative-167726440379839

Key contacts:

CABAN - LENY - President
Email: mielopro@gmail.com
Mobile: +40723623376

IANOVICI RADU VASILE - VICE-PRESIDENT
Email: raduianovici@gmail.com
Mobile: +40744544676

Brief description of organization:

THE PURPOSE OF THE ASSOCIATION is to promote and protect the common interests of patients suffering from chronic myeloproliferative neoplasms, in accordance with the law. The purpose of the Association is non-patrimonial, medical, and humanitarian. The association does not carry out political activities and does not aim at political goals.

Audience/Constituency

Patients with mieloprplipheratives neoplasis from Romania, volunteers.

Ways of communication with constituency

National conferences,videoconferences,e mail,phone,social media.

Organizational objectives and key programs:

Our organizational objectives are:

  • Militate to ensure the necessary treatment for patients with chronic myeloproliferation, in the health units in Romania, with state-of-the-art medical products registered in Romania and the European Union;
  • Initiate actions in order to improve the access to the best therapies for the patients they represent, as well as to quality medical services;
  • Campaign for the right to life without any constraints on age, sex, ethnicity or others;
    Organize their own activities to inform the public about the pathologies represented, as well as awareness campaigns for health promotion, prevention of disease risks;
  • To collaborate with the health units and the medical staff and with the patients' families in order to improve the adherence to the treatment.

Our key programs are:

  • Militate to ensure the necessary treatment for patients with chronic myeloproliferation, in the health units in Romania, with state-of-the-art medical products registered in Romania and the European Union;
  • Initiate actions in order to improve the access to the best therapies for the patients they represent, as well as to quality medical services;
  • Campaign for the right to life without any constraints on age, sex, ethnicity or others;
  • Organize their own activities to inform the public about the pathologies represented, as well as awareness campaigns for health promotion, prevention of disease risks;
  • To collaborate with the health units and the medical staff and with the patients' families in order to improve the adherence to the treatment.

Board of Directors:

3

Year of establishment:

2016

Year of becoming a CML Member:

2016

Members:

100


 
   
 

Please donate!

Please donate!

EU e-Privacy Directive