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CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

Slovenian Lymphoma and Leukemia Patient Association, L&L

CONTACT INFORMATION:

Slovenian lymphoma and leukemia patient association, L&L
Povsetova 37
SI-1000 Ljubljana
Slovenia

Web: http://www.limfom-levkemija.org
E-Mail:

KEY CONTACT:

Milena Remic
Vice-Chairwoman

BRIEF DESCRIPTION OF ORGANIZATION:

Slovenian Lymphoma and Leukemia Patient Association, L&L, was founded in May 2007 and is connecting patients, relatives, friends, medicine profesionals etc. It is a non-profit organization. L&L is a member of Lymphoma Coalition and Myeloma Euronet. Slovenia is a small country with 2.000.000 population and with one hundred of CML patients. Country Slovenia is a member of European Union and is located between Italy, Austria, Hungary and Croatia.

KEY OBJECTIVES AND INITIATIVES:

L&L's main goals are:
  • make people aware of lymphoma, leukemia and other blood diseases,
  • provide support for patients and their families,
  • provide a better access to new treatments and clinical trials,
  • assure a complete care for the patients during and after the treatment,
  • influence the slovenian health care policy and
  • promote a healthy way of living.

MEMBERS:

About 150 (Nov 2010)

 
   
 

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Tweet Feed

cmlnet
Check our global database run by patients for #patients with 51 current #CML #clinicaltrials which have been initia… twitter.com/i/web/status/9…

Thursday, 24 May 2018

ZPWLC
“When looking at statistics, it is important to remember that we are not talking about decimal points on a graph, b… twitter.com/i/web/status/9…

Retweeted Thursday, 24 May 2018

LMC_PACIENTES
From 26 April “Sprycel is indicated for the treatment of paediatric patients with: newly diagnosed Ph+ CML in chron… twitter.com/i/web/status/9…

Retweeted Saturday, 19 May 2018