CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Macedonia: HEMA-Association for support of patients and caregivers of Hematology diseases

Contact address:

ul.Metodija Shatorov Sharlo br.17/1-50, 1000 Skopje, N.Macedonia
Skopje
/ 1000
N.Macedonia

Telephone: +38978397704

Website: http://www.hema.org.mk/
Email: mirjana.hema@gmail.com

Facebook: https://www.facebook.com/hemaorgmk
Instagram: https://www.instagram.com/hema_macedonia/

Key contacts:

Mirjana Babamova - Program manager
Email: mirjana.hema@gmail.com
Mobile: +38978397704

Milica Kuzmanovska - Communication officer
Email: milica@hema.org.mk

Brief description of organization:

Association HEMA is dedicated to changing outcomes of patients with hematology diseases and support for caregivers by strengthening patient advocacy in this area. It aims to deliver tailored support to patients and caregivers on a national level while joining forces with institutions (Government and non-governmental), Physicians, and other organizations to review and assist with the reform on healthcare policies and research across the country and provide our patients with current therapies and better quality of life.

Audience/Constituency

Patients and caregivers.

Ways of communication with constituency

Via phone and email.

Organizational objectives and key programs:

Our organizational objectives are:

  • Advocating for better treatment, care & access to health care services.
  • Providing a platform for patients and caregivers to be able to come together and share their concerns and grievances;
  • Improving education for healthcare professionals serving hematology patients with special accent on hematological malignancies;
  • Collaborating with other initiatives and stakeholders with similar goals;
  • Lobbying for access to the latest therapy for hematological malignancies in the country.

Our key programs are:

  • Organization & holding approx. bimonthly or quarterly support workshops/support groups in regional areas for patients with hematological malignancies and separate workshops/support groups for their caregivers.
  • Active social media and web page activities in regards to hematological malignancies.
  • Blood Cancer Awareness Month Activities.
  • Composing, designing, and printing of booklets regards blood cancers.
  • Digital platform for patients and caregivers with blood cancers.

Board of Directors:

5

Year of establishment:

2017

Year of becoming a CML Member:

2020

Members:

250+


 
   
 

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